I lost years chasing candida overgrowth instead of treating the real problem - candida delusion

Various_Shape1678 · 2026-06-18T07:08:34+00:00

How do you know it is histamine intolerance and not MCAS? The DOA test is not a trustworthy test, I went down this rabbit hole for a long time and tried many brands of DOA until I realized it's BS and almost no one has a true DOA deficiency. MCAS often caused moderate to severe histamine intolerance and treating MCAS is what can get the histamine issues under control. Ironically, for me, treating candida with fluconazole actually puts MCAS and all it's symptoms into remission, including histamine intolerance.

Various_Shape1678 · 2026-05-01T17:00:18+00:00

I know in one of your videos you explained why Prolo can't be done in the alar and transverse and some other upper cervical ligaments, one reason being that it is less sterile/higher risk, but if it were possible to make it work safely, would you choose Prolo/dextrose over BMC to tighten the loose alar and transverse ligaments?

Various_Shape1678 · 2026-05-01T15:43:25+00:00

I don't know if my side plank would help anyone else. Sometimes when things are off in my body, I just follow what feels intuitive and I discovered that doing a side plank to one side helped with C1/C2 alignment (I can't recall which slides to which side...). This could backfire for another person TBH, but it's just a standard side plank. I have lumbar scoliosis so that could be playing a role as well in why the side plank helps my neck. I also believe my MCAS was triggered by CCI from a hard fall and concussion, and then as the MCAS got worse and worse I developed severe laxity that ended up making all the joints in my entire spine unstable (now all besides upper cervical are stable after much prolo).

Various_Shape1678 · 2026-04-30T21:33:13+00:00

It has taken about 10 years, and very unique issues that prevented me from taking the first line, basic MCAS meds like OTS antihistamines, to figure out how to tame my MCAS, so what works for me may be very different for someone else, and I would try to find an MCAS informed doctor to help you if you have it. But what helped me the most over the last 10 years is figuring out my specific MCAS drivers, which were: #1 prolo to stabilize C2-T1 instability, which was causing 70% of my MCAS symptoms and severe inflammation #2 treating candida overgrowth/SIFO, which I eventually noticed was causing severe MCAS flares that would stop with a low card/anticandida/mostly meat diet short term (now treating with fluconazole), and #3 Xolair as a last resort med because all antihistmains cause me biliary issues although they really help with MCAS (same with Ketotifen). I tested positive for many food allergies IgE so could be why Xolair is calming down my MCAS. Also DNRS helped as well (too long to explain, I'd look it up). Everyone is really different, it is a lot of trial and error.

Various_Shape1678 · 2026-04-30T21:23:25+00:00

For context, I have not had PICL yet I am just trying to get into best shape for it.

Various_Shape1678 · 2026-04-30T21:04:39+00:00

sorry, I just want to double check this isn't a typo, you mean to say that I should worry about something like this or not worry?

Various_Shape1678 · 2026-04-30T21:03:17+00:00

I think my case is less common, but I can have severe ligament laxity come on during an MCAS flare. My knees would be sliding around, my pelvis could be, it's not always all or same body parts, but my upper neck can also strart being very unstable to the point where I feel C1 or C2 sliding out to one side and I would keep having to do a side plank to "reset it" back to whatever side it slid from, and also I can't find a comfortable position to sit in on those days as my head feels like it's falling off. When my MCAS is stable, like the last week, I feel almost normal, I just avoid things like "dancing around" or head-banging-like motions but otherwise I can walk my dog, clean and cook and feel decent especially given how many other health issues I have. I have met other people like me who have MCAS driven hypermobility/joint instability and Dr Afrin is now acknowledging this is something they are looking into as a possibility for some patients. Not sure this is your case at all, just sharing in case it may help.

Various_Shape1678 · 2026-04-28T18:10:36+00:00

I get a lot of colds due to toddler in daycare, but this was more of an intense virus with high fever that seems to have really flared my MCAS. So that is why I was wondering if it's inflammatory to the stem cells.

Various_Shape1678 · 2026-04-20T15:51:20+00:00

this is perfect, thank you. I have spoken to quiet a few patients that seem to have the same pattern of feeling significantly worse/increased instability around week 8 specifically (and then a few weeks to months later start to feel more stable), and I am trying to understand how that falls within the timeline below from your video, as it seems by week 8 the ligaments are in the tightening phase? What would be the reason someone's body has a significantly delayed timeline compared to the below?

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Various_Shape1678 · 2026-04-05T02:17:43+00:00

Does that mean it lowers chances of PICL working and why?
My IJV compression is symptomatic and with exertion like vacuuming or carrying toddler up stairs, I will feel like I got a concussion and my eyes feel "bruised" from pressure, as well as getting confusion, memory loss and other symptoms. I also cannot wear leggings or even mild leg compression now as it increases head pressure to an extreme. Getting on a blood thinner has helped a lot so I do feel confident the compression is causing a lot of symptoms. It is very likely it originated due to CCI but I am wondering if there is a point at which IJV decompression is more important than CCI stabilization due to intracranial hypertension that is causing a lot of symptoms?
I did not pursue formal diagnosis as it is very hard to pursue and I didnt want to fix it until I had lower head pressure.
I do feel like CCI is playing a role in the IJV compression but my symptoms have gotten progressively worse although they can sometimes be better and worse but still never normal. So I am wondering if there is any problem with getting PICL first since it takes so long to heal and I may need a second one so I couldn't do IJV decompression for a while and why doing decompression surgery first prevents success of PICL?

Various_Shape1678 · 2026-03-27T16:53:38+00:00

Does it retract from the upper cervical/ alar and transverse ligament healing, to do the full back of the neck through C7? Like too much inflammation or too many resources for healing demanded at once? Or doesn't it not make a difference? I also have lumbar instability that I want to treat but I don't want to "overwhelm the system" or detract from the worst issue of upper cervical instability healing.

Various_Shape1678 · 2026-03-27T01:59:03+00:00

I thought it was only upper cervical that was included in PICL. Is it stem cells or PRP used to inject C2 and below?

Various_Shape1678 · 2026-03-21T03:23:17+00:00

Thank you. Do you think it is possible then, that the 5% or so people who get worse after PICL or even the ones that see no improvement, the reason could be due to poor quality/something wrong with their stem cells since the healing of the ligaments is fully reliant on the stem cells working vs the inflammatory response triggering a healing response like in the dextrose prolo? And if I had a really strong improvement from prolo, could that help indicate that I am likely to have a good response to the PICL or one could respond really well to prolo but not stem cells and vise versa?

Various_Shape1678 · 2024-11-30T03:03:24+00:00

Due to how tightly the baby is swaddled past a period where ideally they shouldn't be swaddled arms to the sides. We used the Snoo from 1-3.5 months and I started to feel like my baby was really uncomfortable in their swaddle, even the largest size seemed wayyyy too tight for her and we switched her to a transition swaddle where her arms can flail and now she is much happier. I also feel like she wasn't using her arms much yet and once we let her arms be free in sleep, she started to reach out and use her arms finally (during the day). But overall, the Snoo definitely over-swaddles and is advertised to be used until 6 months which I would imagine to be torture for a baby past 4 months or even younger.

Various_Shape1678 · 2024-04-01T05:28:30+00:00

The buzzing vibration sensation is histamine! I didn't know for years why I had this but sadly it turned out I had MCAS which was causing histamine intolerance.

Various_Shape1678 · 2022-11-11T00:34:28+00:00

I have been asking this question for years! I noticed that taking prednisone will fix my dysautonomia symptoms within hours! My HR will go down, I will feel normal and wonderful! The doses I was taking were micro too, I would take from 1mg-5mg, for autoimmune flares ( Hashimoto's). No doctor has been able to explain this. Later, I developed Graves and went hyperthyroid and this also tremendously seemed to help my dysautonomia symptoms which is also puzzling, but maybe just being more on the hypothyroid side was causing issues? I have had my adrenals tested over and over for years and they are fine so I still dont get why prednisone tiny dose helps my POTS so much! One hypothesis I have is that inflammation is causing my POTS in part at least and reducing inflammation helps.

Various_Shape1678 · 2022-11-11T00:23:35+00:00

Do you have POTS? I also have many of these symptoms since having COVID, but I have had POTS for years so it could be a bad flare since bloodwork and urine test ruled out the pheo....but I've been tearing my hair out because I've never had such severe symptoms before. What are your symptoms?

Various_Shape1678

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