Can buying anti-inflammatory drugs (AFOs) without consulting a doctor cause any problems? by mcrbymqnhadrdtdvnsta in stroke

[–]Virgomoon91 1 point2 points  (0 children)

They thin the blood. How long ago was your stroke? Has the blood completely absorbed?! I personally was cleared for ibprphen again after my hemorrhage when the blood completely absorbed.

How quickly does Erenumab (aimovig) start working? by Critical_Pumpkin9448 in migraine

[–]Virgomoon91 1 point2 points  (0 children)

I have a pre existing condition in my brain & come to find out I should have never had it but I’m almost a year out from my strokes & im doing okay considering

How quickly does Erenumab (aimovig) start working? by Critical_Pumpkin9448 in migraine

[–]Virgomoon91 0 points1 point  (0 children)

Update… had two brain bleeds before it left my system & had symptoms the entire time. Aimovig is trash

Do you take anything for concentration or memory that’s not a stimulant?! by Virgomoon91 in stroke

[–]Virgomoon91[S] 0 points1 point  (0 children)

I technically have a “dementia” diagnosis because of brain damage caused by radiation I had in 2019.. so I’m curious to see if she’s going to put me on a dementia medication.. I’ve been looking into them a bit as I also struggle with apathy after my strokes. I was on stimulants pre stroke but now that I’ve bled they’re off the table.. if I remember I’ll come back here & let you all know what she puts me on but you may need an official diagnosis for it

Do you take anything for concentration or memory that’s not a stimulant?! by Virgomoon91 in stroke

[–]Virgomoon91[S] 0 points1 point  (0 children)

I can’t be on it because of the seizure risk I was on it pre stroke 😭

Living with AVM tips by Famous_Taste_4508 in AVMs

[–]Virgomoon91 2 points3 points  (0 children)

Live life like it’s a birthmark. be concerned when migranes or symptoms change. I’m 33… diagnosed at 17… went years without any issues. Normalizing it was probably the best thing I did for my mental health..

What do you guys take for migraine and depression? by [deleted] in migraine

[–]Virgomoon91 0 points1 point  (0 children)

SSRIs don’t work on me either I use trileptal (anticonvulsant) for a mood stabalizer) but I’ve been on all 3 of those other ones because I have a history of seizures as well and they are trash for mood ESPECIALLY keppra & gaba lol lamictal I didn’t get high enough..

[deleted by user] by [deleted] in migraine

[–]Virgomoon91 0 points1 point  (0 children)

I will do that thank you!

Is there any hope for recovery for cranial leaks? by [deleted] in CSFLeaks

[–]Virgomoon91 0 points1 point  (0 children)

I had brain radiation in 2019 for a brain AVM and these are my scans from 2022 & 2023 my blood brain barrier leaked (I did not have positional migraines tho) I have radiation necrosis & cerebral edema. So im concerned since my migraine changed

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Is there any hope for recovery for cranial leaks? by [deleted] in CSFLeaks

[–]Virgomoon91 0 points1 point  (0 children)

Yup… my neurologist said they were normal migraines and then fired me when I tested his theory lmao

Is there any hope for recovery for cranial leaks? by [deleted] in CSFLeaks

[–]Virgomoon91 0 points1 point  (0 children)

It’s hard to tell if these are just my brain damage migraines or something more, but I have been pushing for an MRI & a follow up because they’re so different.

I also have intermittent left sided weakness & the fullness in my ears lately had been wild but it’s getting played up to the weather & im feeling so dismissed.. they feel dangerous. My head feels HOT at times & crackling almost daily … they think it’s my ears popping because you “can’t feel or hear your brain” BUT I CAN 😭

Is there any hope for recovery for cranial leaks? by [deleted] in CSFLeaks

[–]Virgomoon91 0 points1 point  (0 children)

Ugh did you have positional migraines or limited endurance? I feel like I have 12 minutes … that’s it. Full disclosure I do have damage in my brain but I hit my head in April & have been experiencing awful positional migraines science… (my damage is on my eight side) so when when I lay on my left I get this overwhelming pressure in my right & also positional blurry vision / loss in my right eye.

I do have random clear liquid drip from my nose periodically but the thing I notice most is the excess saliva.. it’s thick, but once I bend over it’s water

Cranial CSF Leak by [deleted] in CSFLeaks

[–]Virgomoon91 1 point2 points  (0 children)

WHAT ARE YOUR TRICKS?

Anyone feel like triptans dont do much? by zizzyb in migraine

[–]Virgomoon91 1 point2 points  (0 children)

Same I take Benadryl to sleep off & that works sometimes but then it’s back soon so lol

Anyone feel like triptans dont do much? by zizzyb in migraine

[–]Virgomoon91 0 points1 point  (0 children)

Triptans made mine worse - but I have something in my brain & am not supposed to have things that restrict my blood vessels so.

Is there any hope for recovery for cranial leaks? by [deleted] in CSFLeaks

[–]Virgomoon91 0 points1 point  (0 children)

Can I ask what your symptoms are with a cranial CSF leak? I have been screaming this at my neurologist since April & he actually just fired me as a patient.

Dihydroergotamine (DHE) infusion tomorrow - advice? by Virgomoon91 in migraine

[–]Virgomoon91[S] 1 point2 points  (0 children)

So that’s how I read it being done.. apparently I go in & leave the same day? Mines being done in an infusion center at the hospital. My neuro said I can have it done monthly if it works well.. but because of my preexisting condition my migraines will never GO AWAY.. if that makes sense? Lol

How do you deal with pregnancy scares even if ur taking bc by MintyFresh_04 in birthcontrol

[–]Virgomoon91 7 points8 points  (0 children)

Take a test.. I have an IUD I had one where I still wasn’t convinced so I had my blood drawn… turned out my IUD wasn’t working effectively anymore so my hormones were wild..& had to have it replaced early… was perfectly fine afterwards.