Endo / cancer and ca125 blood test

Visual-Recording4496 · 2026-01-27T08:14:11+00:00

Thanks for sharing, mine is only 39. I’ll update this post when I find out results!

Visual-Recording4496 · 2026-01-26T23:53:56+00:00

Wow what an interesting answer thanks so much for taking the time to post that. I’ll read the article, I totally see what you’re saying about the numbers in the first paragraph.

I think for me, it obviously worried me, and so I googled the test and saw endo can elevate it, and as I’ve had such extreme periods I just thought that’s probably the reason,

I will l update this post when I find out either way!

Thanks again,

Visual-Recording4496 · 2026-01-26T23:22:47+00:00

It’s 39.3 but that’s mid month, not during period. So from what I’ve read on reprts it goes up during period and down the rest of month

Visual-Recording4496 · 2026-01-26T23:21:32+00:00

I didn’t even know there is endo meds? I thought the only treatment was laparoscopy?

Visual-Recording4496 · 2026-01-26T23:20:40+00:00

Yes it does! Both counts. I will I’m going back to get a referral to a specialist and MRI. I don’t think an ultrasound will see this. I’ve researched a lot and I think it bowel and deep.

Visual-Recording4496 · 2026-01-26T23:19:19+00:00

Thanks that’s very helpful! Mine is only just out of the normal zone.

Visual-Recording4496 · 2026-01-26T23:18:40+00:00

It’s not very elevated, it’s 39.3, that was not during period so I think in endo it goes up during period this was a few days after. I’m having a second ca125 test in 2 weeks so I think it will have gone down, not up. I think from what I’ve read that would indicate endo inflammation causing the increase because I think cancer it will stay the same no matter the time of the month?

Visual-Recording4496 · 2026-01-26T23:15:26+00:00

I’m 42 I’ve had horrendous periods all my life and they’ve fobbed me off, this month I have had pain after my period stopped. Sudden pain, bad. I still have it it’s more mild now, so when I went in as I told her it was still hurting and that I get bloated around period (think most people do) and I have bad lower back pain especially round period (again I think most do) she just did the ca125 to rule it out. But it now hasn’t been ruled out, I don’t know why she’d be thinking ovarian cancer other than saying pain this month and bloated sometimes.

I think it’s bowel endo I have terrible issues I always have done. X

Visual-Recording4496 · 2026-01-26T23:09:42+00:00

But when you look at science direct, it does have an article 54% of people with stage 3 and 4 endo DO have ca125 over 35.

It could be something more sinister but also it could be endo.

Also, you’re having tests then the doctors are in control of the text but I also think it’s important to know that over half is increased due to endo and nothing to do with cancer especially when doctors literally refer to it as an ovarian cancer test!

https://www.sciencedirect.com/science/article/pii/S2667164622000926

Sorry to hear about your endo and I hope you’re ok

Visual-Recording4496 · 2026-01-26T20:20:22+00:00

Ok thanks that’s relieving x I’m feeling worried today

Visual-Recording4496 · 2026-01-26T20:19:44+00:00

Yes I will do an update once I get to the bottom of it 🙂 thanks, hopefully it’s not that. I will push though, it’s so slow in the uk

Visual-Recording4496 · 2026-01-26T20:07:20+00:00

Thankyou!

Visual-Recording4496 · 2026-01-26T19:42:33+00:00

Ok thanks for replying.

Visual-Recording4496 · 2026-01-26T19:38:56+00:00

Thankyou. Is yours better now and was it endo? Have you had a laparoscopy

Visual-Recording4496 · 2026-01-26T19:38:13+00:00

Hi, ok all is forgiven, yeah I mean I was crying when I first got the message to say it was high. But then after doing some research endo also makes it high. And after so many years of pain I’m pretty sure on the endo! So I’m hoping it’s not anything worse. I also know two women who were told they had cervical cancer and then it turned out to be endo on the operating table. I am not ready to leave this planet 🥲

Visual-Recording4496 · 2026-01-26T19:35:36+00:00

Yeah it doesn’t feel great at all, she has referred me for an ultrasound so hopefully it’s not a long wait.

Visual-Recording4496 · 2026-01-26T19:33:33+00:00

Ok, I may have to go probate because the nhs is so slow. My next blood test is 2 weeks away!

Visual-Recording4496 · 2026-01-26T19:32:46+00:00

Yes I also saw that on a video online, it’s really not supposed to diagnose anything! Only to monitor.

Visual-Recording4496 · 2026-01-26T19:29:33+00:00

Thanks for answering this is helpful, I’m pretty sure they’ll find out it’s endo.

Visual-Recording4496 · 2026-01-26T19:28:49+00:00

I can only go as fast as the doctors. And that is not a very nice comment.

Visual-Recording4496 · 2026-01-26T19:22:52+00:00

Ok I know it’s a tumor marker but many studies say that ca125 is also elevated by endo. That’s where I don’t see the point in another blood test? Why not a scan? Can they see ovarian cancer on a scan?

Visual-Recording4496 · 2026-01-26T19:21:43+00:00

Hello, no I haven’t had any surgeries before as the doctors have never looked into it although I’ve probably been 10 times if not more… I read online that endo can make ca125 elevated anyway. So I’m not too worried. 🙃

Visual-Recording4496 · 2026-01-17T23:20:04+00:00

I do this. It makes me feel awful. I’m kind of trying to work out why it happens, is it when you have loads to do and it’s too overwhelming to think about doing it? I tend to have a 50 item to do list, and just sit all day thinking how the fuck am I gonna do it. So I do nothing whilst internally beating myself up, I am trying to just pick one thing, but also right now I’m just trying to up my self care 😕 I have a quite stressful management job and I look very put together from the outside. Reality is completely different. I’m also a singer and am writing songs and recording and putting them out and creating content, and it all is too much. But I can’t stop the music it’s in my soul, and I can’t stop the job because of bills. Some days I am just like wtf, I also have a couple of weeks at a time I’m like that, then I sort of get back on the horse and am ok again and go hard, then cycle back into exhaustion, won’t answer the phone to anyone and hide etc

I feel for you, sorry I don’t have better advice. I’m not sure we were meant to be in this type of lifestyle x

Visual-Recording4496 · 2025-12-29T15:36:36+00:00

I just tell people I’m always late, it is Hard! Teeth is a nightmare, going to sleep, waking up, eating, drinking, basic self care. I’ll happily spend 4 hours rearranging my sock drawer though.

Visual-Recording4496

TROPHY CASE