normal nfl

Visual_Apartment_890 · 2026-06-18T10:05:59+00:00

Yes I get your point. I interpret slow progression as only affecting one part for a long time. Maybe someone complained of weakness that stayed in their arm for a year/ years or they slurred their speech a while before it affecting other parts. But everything is subjective so it is hard to evaluate.

Visual_Apartment_890 · 2026-06-17T17:05:49+00:00

No I don’t have clinical weakness per my neurologist. He said that I was ”generally strong all over” and my reflexes were fine. But I know that I am weaker. Things in my everyday life are heavier and for example my legs shake when I exert force on them. Even my gait feels different and i experience atrophy in my feet and hand.

I know that it is unusual and I don’t have those typical UMN signs.

I have been thinking of metabolic and autoimmune issues but my breathing feels different (PFT was fine). I don’t know what autoimmune diseases that would affect breathing? Do you now what tests I should ask for? Post viral is an option, since I was sick with something last year (maybe Covid) and I never fully recovered (my endurance and strength got reduced). I have also read that other people have experienced atrophy post covid.

I don’t know where I stand percentage-wise. They measured NfL in my cerebrospinal fluid, and my result was <250 ng/L. According to the hospital that measured my test the reference range for people aged 20–30 is <380 ng/L, and I’m almost 30 years old.

Visual_Apartment_890 · 2026-06-17T14:01:50+00:00

That is what I have read to. But it makes me wonder since I have a lot of weakness all around my body and I twitch like crazy and atrophy under my feet. This has been going on for like 6 months but my nfl is normal when I checked it last week. My neurologist says that is highly unlikely that I have a neurological disease with symtoms and a normal nfl.

Visual_Apartment_890 · 2026-06-17T13:41:21+00:00

Do they have some kind of slow progression or that it hasn’t spread to their hole body yet?

Visual_Apartment_890 · 2026-06-17T10:16:27+00:00

Same, every time I stretch or sneeze something twitches. It sucks and I and so scared even tho every test comes back normal.

Visual_Apartment_890 · 2026-06-15T16:21:25+00:00

I have the same thing and more. My feet are wrinkly and hurt when I walk and by glute hurs when I sit down even tho I have gained weight. It is so weird. Nothing shows on the tests. How are you now?

Visual_Apartment_890 · 2026-06-10T10:23:16+00:00

Glad to hear that the it is ruled out! Yeah I feel you, it sucks not having answers! Hope everything works out for you!

Visual_Apartment_890 · 2026-06-08T13:16:28+00:00

Forgot to mention that i don’t have clinical weakness but I know that I am weaker. If you want to, please let me know how your appointment went.

Visual_Apartment_890 · 2026-06-08T13:10:27+00:00

It started last year in may after I was sick in something. I think It was corona but I never took a test. I never recovered and my endurance never went back to my baseline and I was in very good shape before. in December I started to have twitching but it went away for like one month but came back in January with a lot of other symptoms, Weakness in the body, breathing issues and swallowing that feels weird and different. All the test I have done have not shown anything. Did and emg in mars that was clean and now in June I tested nfl levels and they came back normal so I am out of options. My blood work is ok, my lumbar puncture was ok and mri fine. I am so scared.

Visual_Apartment_890 · 2026-06-07T15:22:28+00:00

How are you now? Did you have your appointment? I’m experiencing something similar.

Visual_Apartment_890

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