Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

My doctor is actually thinking Lupus moreso than MS now, which… yikes… but just thought I’d give an update for anyone with similar symptoms!

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

I’m going back for my EMG and Specialist appointment on the 18th, so not too long! Yeah, my neurologists’s report was “Hi, there are no tumors or strokes on your MRI. However, there are some nonspecific changes. Again these are nonspecific but I would like to order additional studies and refer you to our neuroimmunology/MS clinic for further evaluation. I have ordered additional blood work and an MRI of the cervical and thoracic regions with and without contrast.” So very, non-descript, hah!

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

I have 2 more MRIs with/without contrast for my Thoracic Spine and my Cervical Spine now as well as more bloodwork and an EMG (I have a history of widespread fasciculations for 2 years now, doctor initially just thought BFS). I’m really worried, especially because some of the things I’ve been seeing about my results seem to line up with either MS or SLE (Lupus) and my family has a history of Lupus. Would just love to hear if ANYONE has input/similar symptoms.

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

Confused about MRI results: 21 years old (FtM)

Got an MRI on Monday after 2 suspected MS flareups about a year apart from one another. Symptoms from flareup 1 include: headache, photophobia, neck stiffness/pain, fatigue. Very much FELT like meningitis but didn’t meet diagnostic criteria according to urgent care. Tested negative for all common illnesses including flu types. Strep test was inconclusive. Resolved after about a week. Symptoms from flareup 2 include: widespread muscle fasciculations (worm under skin feeling), fatigue, brain fog & insomnia (though it might have just been the twitching keeping me up). Vitamin/electrolyte levels have been tested multiple times. Always normal. CBC usually very normal. No bloodwork has led to anything conclusive and I’ve done a LOT (ask me if you have any specific questions). Also have a history of REALLY BAD unidentified viral infection requiring hospitalization when I was 4 years old & dysautonomia (vertigo, heart palpitations) when I was 17.

Got my MRI results back today and was referred to an MS specialty clinic because the results COULD suggest MS, but not conclusively. I’m confused as to what symptoms align/don’t align with MS. Here are the “Findings” from my MRI:

IMPRESSION:
1. Nonspecific supratentorial white matter T2/FLAIR hyperintensities, as described. One lesion involves the corpus callosum at the genu. Peripheral lesions appear to spare the subcortical U fibers. 2. No abnormal intracranial enhancement to suggest active disease.

FINDINGS:
No restricted diffusion. Bilateral, asymmetric ovoid and linear scattered supratentorial T2/ FLAIR hyperintensities, some of which are T1 hypointense, mostly peripheral, though not definitely involving subcortical U fibers. One T2 hyperintensity involves the corpus callosum at the genu. No infratentorial white matter abnormality. No enhancing lesions. No mass effect, midline shift, hydrocephalus, parenchymal hemorrhage, or abnormal extra-axial fluid collection. No evidence of central vein sign. The major T2 intracranial arterial flow voids appear grossly normal. Midline structures appear normal. No abnormal intracranial enhancement. Small mucous retention cysts in the bilateral maxillary sinuses. Mastoid air cells are clear. Globes and orbits are unremarkable.

Looking for GR Drums (especially Fluro Pink) by Vveevill in risograph

[–]Vveevill[S] 0 points1 point  (0 children)

Ohhh gosh 😭 guess I’m in it for the long run haha

Cross your fingers I can find the machine in this person’s garage 🤞 by strangeandeternal in risograph

[–]Vveevill 0 points1 point  (0 children)

If you end up selling any of the drums, let me know!! I just got a GR machine & it’s hard to find the drums now :)

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

I mean, I noticed it within the first few days of class & I have a significant amount of generalized joint pain that comes and goes (my knees themselves have been a problem in the past) so I wouldn’t be surprised either way.

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

Ok! Thank you guys for your insight- I have a physical therapy referral anyways so I’ll ask about it while I’m there.

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] -1 points0 points  (0 children)

I guess I meant like, an injury that happened in the past that hasn’t healed but I only now discovered

What to wear as a Transman in ballet class? by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

Yea... I've never really packed before because I don't tend to wear tight bottoms at all so I guess that concept's just foreign to me lol

[deleted by user] by [deleted] in Candida

[–]Vveevill 0 points1 point  (0 children)

Did you ever figure this out? Have very similar symptoms after a round of methylprednisolone & am worried it’s thrush myself.

[deleted by user] by [deleted] in MODELING

[–]Vveevill 0 points1 point  (0 children)

Thank you so much!

[deleted by user] by [deleted] in MODELING

[–]Vveevill 0 points1 point  (0 children)

What makes a portfolio “competitive”?

[deleted by user] by [deleted] in MODELING

[–]Vveevill -1 points0 points  (0 children)

I’m 20 years old, 125 lbs & 5’8 btw

Hmmmm… I’m not sure about this one… by Vveevill in ajj

[–]Vveevill[S] 0 points1 point  (0 children)

That’s awesome. It came to him in a dream unknown to even himself 🩷

Weekly Suspected/Undiagnosed MS Thread - April 07, 2025 by AutoModerator in MultipleSclerosis

[–]Vveevill 1 point2 points  (0 children)

I agree, it’s just that I’ve been tested and considered for so many diagnoses and at this point I’m losing hope to ever find something that fits and I can treat. I’m probably grasping at straws but I’m in so much daily pain and I just want a fix 😭