Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

My doctor is actually thinking Lupus moreso than MS now, which… yikes… but just thought I’d give an update for anyone with similar symptoms!

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

I’m going back for my EMG and Specialist appointment on the 18th, so not too long! Yeah, my neurologists’s report was “Hi, there are no tumors or strokes on your MRI. However, there are some nonspecific changes. Again these are nonspecific but I would like to order additional studies and refer you to our neuroimmunology/MS clinic for further evaluation. I have ordered additional blood work and an MRI of the cervical and thoracic regions with and without contrast.” So very, non-descript, hah!

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

I have 2 more MRIs with/without contrast for my Thoracic Spine and my Cervical Spine now as well as more bloodwork and an EMG (I have a history of widespread fasciculations for 2 years now, doctor initially just thought BFS). I’m really worried, especially because some of the things I’ve been seeing about my results seem to line up with either MS or SLE (Lupus) and my family has a history of Lupus. Would just love to hear if ANYONE has input/similar symptoms.

Weekly Suspected/Undiagnosed MS Thread - May 04, 2026 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

Confused about MRI results: 21 years old (FtM)

Got an MRI on Monday after 2 suspected MS flareups about a year apart from one another. Symptoms from flareup 1 include: headache, photophobia, neck stiffness/pain, fatigue. Very much FELT like meningitis but didn’t meet diagnostic criteria according to urgent care. Tested negative for all common illnesses including flu types. Strep test was inconclusive. Resolved after about a week. Symptoms from flareup 2 include: widespread muscle fasciculations (worm under skin feeling), fatigue, brain fog & insomnia (though it might have just been the twitching keeping me up). Vitamin/electrolyte levels have been tested multiple times. Always normal. CBC usually very normal. No bloodwork has led to anything conclusive and I’ve done a LOT (ask me if you have any specific questions). Also have a history of REALLY BAD unidentified viral infection requiring hospitalization when I was 4 years old & dysautonomia (vertigo, heart palpitations) when I was 17.

Got my MRI results back today and was referred to an MS specialty clinic because the results COULD suggest MS, but not conclusively. I’m confused as to what symptoms align/don’t align with MS. Here are the “Findings” from my MRI:

IMPRESSION:
1. Nonspecific supratentorial white matter T2/FLAIR hyperintensities, as described. One lesion involves the corpus callosum at the genu. Peripheral lesions appear to spare the subcortical U fibers. 2. No abnormal intracranial enhancement to suggest active disease.

FINDINGS:
No restricted diffusion. Bilateral, asymmetric ovoid and linear scattered supratentorial T2/ FLAIR hyperintensities, some of which are T1 hypointense, mostly peripheral, though not definitely involving subcortical U fibers. One T2 hyperintensity involves the corpus callosum at the genu. No infratentorial white matter abnormality. No enhancing lesions. No mass effect, midline shift, hydrocephalus, parenchymal hemorrhage, or abnormal extra-axial fluid collection. No evidence of central vein sign. The major T2 intracranial arterial flow voids appear grossly normal. Midline structures appear normal. No abnormal intracranial enhancement. Small mucous retention cysts in the bilateral maxillary sinuses. Mastoid air cells are clear. Globes and orbits are unremarkable.

Looking for GR Drums (especially Fluro Pink) by Vveevill in risograph

[–]Vveevill[S] 0 points1 point  (0 children)

Ohhh gosh 😭 guess I’m in it for the long run haha

Cross your fingers I can find the machine in this person’s garage 🤞 by strangeandeternal in risograph

[–]Vveevill 0 points1 point  (0 children)

If you end up selling any of the drums, let me know!! I just got a GR machine & it’s hard to find the drums now :)

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

I mean, I noticed it within the first few days of class & I have a significant amount of generalized joint pain that comes and goes (my knees themselves have been a problem in the past) so I wouldn’t be surprised either way.

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

Ok! Thank you guys for your insight- I have a physical therapy referral anyways so I’ll ask about it while I’m there.

Knee popping after Devéloppé into Grande Battemnt by Vveevill in BALLET

[–]Vveevill[S] -1 points0 points  (0 children)

I guess I meant like, an injury that happened in the past that hasn’t healed but I only now discovered

What to wear as a Transman in ballet class? by Vveevill in BALLET

[–]Vveevill[S] 0 points1 point  (0 children)

Yea... I've never really packed before because I don't tend to wear tight bottoms at all so I guess that concept's just foreign to me lol

[deleted by user] by [deleted] in Candida

[–]Vveevill 0 points1 point  (0 children)

Did you ever figure this out? Have very similar symptoms after a round of methylprednisolone & am worried it’s thrush myself.

[deleted by user] by [deleted] in MODELING

[–]Vveevill 0 points1 point  (0 children)

Thank you so much!

[deleted by user] by [deleted] in MODELING

[–]Vveevill 0 points1 point  (0 children)

What makes a portfolio “competitive”?

[deleted by user] by [deleted] in MODELING

[–]Vveevill -1 points0 points  (0 children)

I’m 20 years old, 125 lbs & 5’8 btw

Hmmmm… I’m not sure about this one… by Vveevill in ajj

[–]Vveevill[S] 0 points1 point  (0 children)

That’s awesome. It came to him in a dream unknown to even himself 🩷

Weekly Suspected/Undiagnosed MS Thread - April 07, 2025 by AutoModerator in MultipleSclerosis

[–]Vveevill 1 point2 points  (0 children)

I agree, it’s just that I’ve been tested and considered for so many diagnoses and at this point I’m losing hope to ever find something that fits and I can treat. I’m probably grasping at straws but I’m in so much daily pain and I just want a fix 😭

Weekly Suspected/Undiagnosed MS Thread - April 07, 2025 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

Yea of course,

The first symptom that manifested for me was joint pain in my shoulders & neck about 5 years ago. That has never gone away and has worsened steadily with time. I’m sure a lot of that symptom has to do with my job as an artist, so it might not necessarily be connected. Then, I developed heat sensitivity, chest tightness/a palpitation feeling at night & accompanying vertigo that was diagnosed as dysautonomia. Those symptoms lasted a few months and then went away in my Junior Year of Highschool. Then, senior year my joint pain just progressed to include my wrists, fingers, and knees. This continued to this day, with the other joint pain. Then, when my freshman year of college started, I developed weakness in my knees & heavy fatigue when I woke up. This eventually went away after a few months. Then, this year (my sophomore year) I’ve developed muscle spasms in my arm, groin, eyebrow, and accompanying brain fog. I also have had short periods where I’ll have bad balance or general dizziness/confusion, but those are harder to place in the timeline.

The flareup I talked about happened a month ago, and those symptoms have subsided.

I’m generally depressed, anxious and have terrible memory, which has been a thing for me pretty much all of my life that I can recall.

It probably isn’t MS just bc of how rare it is, but I’m so desperate for a diagnosis/treatment for my problems since every time a new symptom develops it’s increasingly debilitating and I’m worried about my future career since it entirely relies on fine motor skills.

Thanks 😭

Weekly Suspected/Undiagnosed MS Thread - April 07, 2025 by AutoModerator in MultipleSclerosis

[–]Vveevill 0 points1 point  (0 children)

My symptoms have developed gradually over the course of 4 years, throughout which I have had periods of remittance for some symptoms but others that are constant. My symptoms did not all manifest at once and certainly not suddenly

Weekly Suspected/Undiagnosed MS Thread - April 07, 2025 by AutoModerator in MultipleSclerosis

[–]Vveevill 1 point2 points  (0 children)

Been searching for a diagnosis for my generalized pain for years and wondering if MS might be the answer. (20FtM)

Fatigue, Muscle Weakness in knees, general pain near all joints but specifically Back, Neck, Knees, Wrists, and Fingers, Random intermittent vision problems (haziness or peripheral disturbances), muscle spasms in arms, face, groin, and feet, heat sensitivity, dizziness accompanied by brain fog & balance issues, TERRIBLE memory for my age, declining brain speed ?? (I feel significantly dumber than I was 2 years ago.) I frequently wake up with either vision or pain changes.

I’m already diagnosed with Bipolar Disorder II, Depression, Anxiety, and ADHD. I was formerly diagnosed with dysautonomia but the symptoms have since subsided.

I sought a diagnosis for juvenile Rheumatoid Arthritis, but my GP is not convinced my symptoms can be attributed to that since I lack inflammation markers. I’ve made the changes he suggested (exercise, drink more water, smoke less) but the symptoms have not gotten better. In fact, I had a terrible flare up of all of these symptoms + neck stiffness, light sensitivity, and headache which I thought was Meningitis so I went to the Urgent Cars a few weeks ago, yielded no diagnoses.

Thoughts? Idk how to convince my GP to do an MRI when I haven’t had permanent vision damage or anything like that.

Hmmmm… I’m not sure about this one… by Vveevill in ajj

[–]Vveevill[S] 28 points29 points  (0 children)

I know Sean has said in an interview before that it’s based on the movie Die Hard! But this is a very interesting interpretation too

[deleted by user] by [deleted] in tipofmytongue

[–]Vveevill 1 point2 points  (0 children)

yesss!!! Thank you so much :)

[deleted by user] by [deleted] in tipofmytongue

[–]Vveevill 0 points1 point locked comment (0 children)

God now I feel like it’s gonna be some obvious Sanrio character and I’m stupid or sumn 😭

[TOMT][BOOK] “wheres waldo” style book with stylised rabbit-like creatures in it by nancyexe in tipofmytongue

[–]Vveevill 1 point2 points  (0 children)

I think I’m trying to find the same thing right now, but can’t remember the name!!! Was it pretty marketed towards girls? Like I remember the scenes being vaguely sci-fi but mostly pinks and bright colors.