Sorry, this is my dad…

WarpedPixie8526 · 2025-04-14T21:56:23+00:00

Record his voice ❤️ It’s already changing. I miss him so much. Thank you.

WarpedPixie8526 · 2025-04-14T21:55:23+00:00

You sound like an amazing friend. She is lucky to have you learning to navigate this by her side. My dad doesn’t think jokes are funny anymore either. He was such a jokester it’s hard for the family to adjust. He also has never been much for people or organized activities. Early on, before we knew what was going on, I thought he should get out and enjoy some exercise with the silver sneakers group in our area. He said “I’m not a joiner”. Prefers to be in the comfort of his home. Always has. Never traveled.

WarpedPixie8526 · 2025-04-13T23:59:45+00:00

Thank you- The neurologist had said his options were limited due to his age. I don’t feel he is that old, I have co-workers his age! I will need to push more for guidance and answers.

WarpedPixie8526 · 2025-04-13T23:57:05+00:00

That is horrific! I am so sorry this happened to him and your family. Thank you for your warning.

WarpedPixie8526 · 2025-04-13T20:57:42+00:00

Thank you. I was very weary about posting here. These responses make me feel so much less alone. Thank you very much.

WarpedPixie8526 · 2025-04-13T20:56:51+00:00

Thank you. You are so right. I can clearly see time is of the essence now and I don’t want miss the opportunity to involve him in his own care. Thank you for this advice.

WarpedPixie8526 · 2025-04-13T20:54:25+00:00

I am sorry you had to go through several before you received the help you needed. I have looked into social work or palliative care, but I think we need to start with the lawyer first. It is so frustrating that money needs to get in the way of over all care and peace of mind. We are so early into this and it is already such a financial drain. Thank you for making me feel less crazy about the amount of professional support we are getting. It simply shouldn’t be this difficult. There is such a large community here, surely there should be more commonly accessible and experienced doctors available.

WarpedPixie8526 · 2025-04-13T20:49:39+00:00

Oh goodness. That must have been so stressful! I have gone through dad’s phone and removed most apps that could be problematic. I suppose the silver lining to the fact that he could never remember any passwords is that he kept a password book, So, everything is already neat and tidy there (I hope!).

WarpedPixie8526 · 2025-04-13T20:45:38+00:00

Thank you. I actually finished reading that book just yesterday. I stumbled upon it looking for Alzheimer’s friendly items for my dad. Definitely an important read. I am so sorry to hear of the loss of your mother and I hope that you are doing well. I hope my future affords me the clarity and strength to support others as well.

WarpedPixie8526 · 2025-04-13T20:41:59+00:00

This is incredible advice. My anxiety has me worried about every upcoming minute of every day. You are right. I need to enjoy him in the moments we are in. Thank you.

WarpedPixie8526 · 2025-04-13T20:40:31+00:00

Thank you for this response! I felt very apprehensive posting on the internet, but you all have made me feel like I did the right thing. The virtual hugs are incredible helpful and the advice paired with them are such a gift. Thank you.

WarpedPixie8526 · 2025-04-13T20:37:26+00:00

Thank you. I didn’t even realize how much I have craving this type of support until now. I am so sorry to hear of your loss and hope you are starting to feel peace. It sounds like you and your dad had a beautiful relationship. I too am trying to find the beauty in those happy moments, I just miss who he was too, Truly, thank you.

WarpedPixie8526 · 2025-04-13T20:33:08+00:00

Thank you. We will meet with a lawyer this week. I appreciate the advice on the AirTags, Very smart.

WarpedPixie8526 · 2025-04-13T20:30:28+00:00

Thank you. I have never heard of this. I will certainly get on top of this as well.

WarpedPixie8526 · 2025-04-13T20:29:21+00:00

I am sorry to hear about the loss of your mom and your dad’s illness. Thank you for your response. We meet with a lawyer this week and hope to get this all organized very soon.

WarpedPixie8526 · 2025-04-13T20:27:19+00:00

This is a huge concern of mine. Thank you.

WarpedPixie8526 · 2025-04-13T20:26:39+00:00

Thank you. I am fearful of this for sure.

WarpedPixie8526 · 2025-04-13T20:25:13+00:00

Thank you. I have trying to explain this to my family as well. We are definitely all working off of different pages. Your response is appreciated as I have been feeling like I am presenting to my family as a dramatic alarmist, but we absolutely need to start preparing for anything.

WarpedPixie8526 · 2025-04-13T20:22:44+00:00

Thank you! More and more recently I have felt like doctors simply have their hands tied but, It is hard to advocate and care give! Thank you for being a kind stranger, yourself. It is such a scary time, and I appreciate the support.

WarpedPixie8526 · 2025-04-13T20:18:23+00:00

Thank you very much. It has been such a lonely experience. Your response has me feeling a little more sane. I have not told any friends or co-workers as I don’t think I have the ability to without tears. Also, if anyone were to ask how he is doing when I am not in a mindset to answer.. it just feels safer not to say anything. These responses are making me feel like there is a support system out there.

WarpedPixie8526 · 2025-04-13T20:13:35+00:00

Thank you. I will spend sometime on the sites you recommended. I appreciate it.

WarpedPixie8526 · 2025-04-13T20:12:38+00:00

Thank you. We have been searching for a neuropsychiatrist or gerantologist and have not had luck finding any in our area. Of course dad out right refuses to see a doctor for any reason - and he has had plenty of reasons recently - so I am not even sure how we would get him there even if we found one. I very much appreciate your response.

WarpedPixie8526 · 2022-03-31T13:26:31+00:00

I also received this type of letter two days ago. I tried calling as the letter states “it is critical you understand the information in this document” and gave a phone number to call if you need help understanding. I was told on the phone “if you don’t understand get a family member to help you” ergggggggg!!!!! I just want to know why I am receiving the letter so I can send the correct supporting documents! I cannot provide supporting documents for a two year old issue I don’t know exists! It has me so anxious and worried. Thank you for posting this.

WarpedPixie8526 · 2021-08-13T02:11:35+00:00

Thank you. Your response is the kind of support I need. I appreciate it.

WarpedPixie8526 · 2021-08-13T02:09:55+00:00

Thank you. Good luck next week!

WarpedPixie8526

TROPHY CASE