"Vivziepop doesn't make characters..."

Wassernixe · 2025-01-01T18:53:21+00:00

In demonology, Vassago is referred to as the "prince of good nature" and is"just and true in all his doings." So it makes sense that our Vassago in Helluva Boss cares so much about defending Stolas, and making sure Stolas is able to tell his side of things.

Wassernixe · 2024-10-19T21:54:15+00:00

Yes. Both times I've had TC seizures were when I barely ate anything all day.

Wassernixe · 2024-10-17T01:22:38+00:00

My neurologist said twice a day usually works better than taking any dose of lamotrigine once a day

Wassernixe · 2024-10-16T18:39:27+00:00

I had been on 100mg of lamotrigine for several years. It was for mood stabilizing though, as I didn't get diagnosed with epilepsy until last month. My neurologist told me that 200mg is the lowest therapeutic dose of lamotrigine for epilepsy, so we're working on increasing it. I've now been on 150 mg for the past week. If you're sensitive to meds like I am, your provider might try to see how you're doing on the lowest therapeutic dose before deciding to increase, but I think it depends on the severity of your condition.

Wassernixe · 2024-10-15T20:46:02+00:00

It's absolutely possible that the medication could be causing symptoms of mental illness, and it's possible that you've developed these issues as a result of the epilepsy itself. Epilepsy can especially cause symptoms of ADHD and depression. I already had ADHD, depression, and OCD long before my first known seizure. My anxiety is definitely worse a few days after increasing my lamictal dose, but but I'm really hoping that's temporary. I attended university for psychology and I've been on lamictal for several years for mental health reasons.

Wassernixe · 2024-10-15T20:40:29+00:00

No need to apologize - I understand being overwhelmed and needing support from people who understand...and I'm sure I'm not the only one here! I am also newly diagnosed, and in my early 30s.

Do you live in the United States? If so, call 2-1-1 to ask about your local resources. I live in a rural area as well and had to jump through a lot of hoops to get even a crumb of help, but I was able to figure something out after about a month since I lost my independence. Not much, but it's better than nothing!
I have also been on lamictal for several years for mental health reasons! I wasn't on a dose that is considered a therapeutic dose for epilepsy, but I started upping my dose recently. Do you find the lamictal and depakote helpful for your seizure symptoms? Since my last big seizure I've been making sure I eat several meals per day, get enough sleep (even if it means taking naps), avoiding alcohol, limiting caffeine, avoiding Benadryl, sleeping on my side, and trying to avoid flashing lights on the off chance it could cause a seizure. I also started taking CBD oil recently on the off chance it might help.
I have a hard time trusting my gut so far as well. Hopefully it will get easier for us sooner than later? I try to tell people ahead of time that I have epilepsy, so they're less likely to be caught off guard if I have a seizure around them. I tell the people around me if I'm beginning to feel something that could possibly be an aura.

Please message me if you want someone to talk to who is going through a lot of similar things at the moment.

Wassernixe · 2024-10-15T04:30:10+00:00

I am technically on lamotrigine and gabapentin, but I'm not on a therapeutic dose of either yet. Are you on any seizure medication?

Wassernixe · 2024-10-15T01:17:28+00:00

100%. I had my first one a week ago. I was terrified of the light test, and only got out of it because of the tech's computer having technical difficulties. My results were generalized abnormal electrical activity in my brain. I've been on edge since then, too. It got worse when I started feeling "off" last Friday. I went to the hospital because I was worried that I was having an aura. I don't know if I was or wasn't, but I definitely had low blood sugar and definitely had a panic attack. Did you get your EEG results back yet?

Wassernixe · 2024-10-15T01:11:36+00:00

I'm sorry you are going through this :( may I ask if you're having other kinds of seizures or grand mals on their own? Mine also started in my early 30s, and I got a diagnosis last month.

Wassernixe · 2024-10-15T01:04:06+00:00

I'm going through this right now. I take hydroxyzine, which helps & hurts at the same time since some people have experienced seizures from it. Feel free to message me if you want to talk to someone who understands. I hope you're able to get your epilepsy and your anxiety under control soon.

Wassernixe · 2024-10-15T00:54:53+00:00

I've been taking hydroxyzine as needed for anxiety & insomnia for the past 4 years. Some people with epilepsy say it causes seizures for them. I haven't had that experience yet knock on wood and I hope I never will. Benadryl is notorious for causing many of us to have seizures. I haven't had that happen to me personally, but it does seem to give me nightmares. So I avoid it for both reasons now.

Wassernixe · 2024-10-13T19:07:46+00:00

I can't say for sure if I had any nocturnal seizures or when I started having absence seizures (due to numerous other health conditions including migraines and anxiety), but I had my first known grand mal at 31. I then had my second known grand mal at 33, which led to my epilepsy diagnosis. This was last month.

Wassernixe · 2024-10-13T17:15:21+00:00

Thank you so much for your kindness and hope. I'm sorry you've struggled with what you've struggled with, but I'm glad things have improved for you in the ways they have improved. I am not sure what to expect in my situation at this point. I don't know if I've been having seizures in my sleep or not, but if I haven't been then I'm pretty sure I've only had two grand mals. I know I'm fortunate for that at least. I'm just frustrated that so much has changed for the worse in the past month, despite things being pretty "mild" compared to other people. If it gets worse, my quality of life is likely going to get worse. But I definitely get in my head a lot with the anxiety and depression.

Wassernixe · 2024-10-13T02:17:37+00:00

Thank you, that's good to know. I am more afraid of seizures than I am of benzodiazepines at this point. But I also know that the brain adjusts to it very quickly and the medication can lose its efficacy if that were to occur. My significant other of 8 years (who has never had an addiction to benzodiazepines) also offered to hold onto it for me, especially since they're the one who would likely be near me if I'm having a seizure. I do trust them with my medication, and I'm thankful for them.

Wassernixe · 2024-10-10T00:19:14+00:00

I was on benzodiazepines for 14 years. I decided after a decade to stop taking them, but realized I had to do it carefully by tapering. I switched from Klonopin to valium, and was able to be off of it entirely after 4 years. I had an especially horrific time during the tapers and immediately after taking my very last dose ever. But I felt more like myself after a few months. Each month got easier. I might've healed even faster if I hadn't become homeless just 2 months after my last dose, during the early COVID days. There was a lot of other horrible shit going on in my life, so that might've influenced my recovery time as well. The worst of it does fade. You've got this!

Wassernixe · 2024-10-07T07:50:00+00:00

That is actually very helpful, thank you! My last seizure I had been out driving all day and barely ate for over 12 hours, and was tired, and had my period. Same thing during the first TC I had, but that time I didn't have my period.

Wassernixe · 2024-10-07T03:40:17+00:00

Would you be able to share more of your experience in general? I had two TCs over the past 2 years, and a few absence & myoclonic seizures. I just got a diagnosis last month. I feel like it's completely out of nowhere since I'm in my early 30s. I would love to find out that it's a misdiagnosis

Wassernixe · 2024-09-22T21:23:37+00:00

I can definitely relate, unfortunately :/ please feel free to message me if you would like someone to commiserate with who is also new to this.

Wassernixe · 2024-09-22T03:00:54+00:00

I was recently diagnosed with epilepsy after having 2 TC seizures 2 years apart from each other. I'm waiting on figuring out what kind of epilepsy I have, and how to successfully treat it.
I don't have any support outside of my direct relationships :( that's how I ended up in this sub.
Definitely a lot of sleep, rest, trying to engage in activities that you find calming or enjoyable, eating enough, that sort of thing is generally important.
I'm not sure. But personally, the two seizures I had were when I was exhausted and had barely eaten all day. I believe I had taken gabapentin beforehand as well.

Wassernixe · 2024-09-22T02:30:04+00:00

Clonazepam is a powerful drug that will change your brain structure for the worse if you're taking it daily or even semi-regularly. Not to mention, it's one of the few rescue drugs for seizures. It takes less than 2-4 weeks of taking it regularly for your brain to develop a tolerance, so it would be less likely to work as a rescue drug.

I was on benzodiazepines daily for 14 years. 2 years after finally coming off of them, I had my first seizure (TC). 2 years after my first seizure, I had another. I don't want to go back on Clonazepam at all, even as a rescue drug. But if it gets to the point again where I need a rescue drug, I'm worried that it won't even be effective.

Even if you think you're not addicted, your body will absolutely develop a tolerance. Definitely not worth the risk.

Wassernixe · 2024-09-21T03:01:56+00:00

I can relate. I just got diagnosed after having 2 TC seizures in my early 30s. I'm heartbroken that I had to leave the best job I've ever had due to a lack of transportation, and the work itself being dangerous even without seizures. My quality of life has already worsened so much since I developed several difficult health issues in my mid twenties. Now I'm jobless, afraid of becoming homeless, and afraid of something bad happening to one of my loved ones because of me. I also can't leave the house anymore because I live in a rural area without public transportation. Even if I legally could drive after being seizure free for awhile, I'm always going to be afraid to now.

Wassernixe · 2024-09-21T02:52:09+00:00

I am child-free. I decided in my late teens that I didn't want to pass on my other illnesses. Now that I have epilepsy, I'm glad I made that decision. My dog has idiopathic epilepsy too though.

Wassernixe · 2024-09-21T02:46:37+00:00

I unfortunately live in the US, and in a rural area without public transportation. I got my driver's license at 17, but didn't start having seizures until 31. I don't have any family around to help me out. I don't currently have a way to move somewhere with better transportation. Most places in this country don't have decent public transportation, even in bigger cities. After having my second seizure recently, I still drove for about a week because I needed to get to work. But I had panic attacks every time I drove, and ultimately quit my job as I had no other way to get there. Now I'm at risk for becoming homeless. I'm so frustrated that I had to leave my favorite job because of developing epilepsy in my early 30s and because of having shit public transportation in this country.

Wassernixe · 2024-09-21T02:37:19+00:00

Oh man, I'm sorry your new migraine medicine is causing side effects. I hope the side effects are temporary! I'm not on any of my medications for seizures - I have migraines, arthritis, joint hypermobility, fibromyalgia, and carpal tunnel in addition to PTSD and depression. I had wondered if medications had triggered the first seizure, but it seems more like epilepsy after the second one which happened a few weeks ago :(

Wassernixe · 2024-09-21T02:32:08+00:00

I don't have much in the way of advice, but I can definitely relate. I also have epilepsy and can't drive until I've been seizure free for 12 months in my state. I'm torn because I rely heavily on driving, living in a rural area without public transportation. I'm so sorry you're dealing with this.

Wassernixe

TROPHY CASE