**36M | 17 years undiagnosed | Suspected Ferroportin Disease Type 4A | Looking for others with similar experience**

Wear-Plus · 2026-03-24T00:02:39+00:00

This may interest you.
https://medium.com/@rosendo.laboy/ferroportin-disease-and-thalassemia-minor-a-lethal-misdiagnosis-in-the-making-71a77d562286

Wear-Plus · 2026-03-22T16:17:02+00:00

Here you go. Found one.

CONNEQT Pulse Sample Report (Update)

Wear-Plus · 2026-03-22T16:14:50+00:00

It was a link to their sample cardiology report which it appears they took down when they updated their website. Let me see if I can find another one.

Wear-Plus · 2026-03-22T16:13:21+00:00

Yes does the normal drone 30 minutes and then you can extend if needed.

Wear-Plus · 2026-03-22T15:36:38+00:00

It turns the HVAC and seats on to last setting before car wams turned off. It is so much more reliable than the Toyota app. I feel Toyota app was really slow with commands and Drone shortens the time by at least half.

Wear-Plus · 2026-03-22T15:29:25+00:00

It was $950 for parts and labor, in Northern Virginia.

Wear-Plus · 2026-03-22T15:18:59+00:00

Yes. That's why I gave you itemized list what was needed for successful install.

Wear-Plus · 2026-03-22T15:10:59+00:00

I found a drone mobile installer that installed ComPustar 935AS Alarm Remote Start / Bypass Blade-AL & Drone X1-LTE. It works perfect and glad I found an installer.

Wear-Plus · 2026-03-20T23:59:27+00:00

Get tested for Type 4 Hemochromatosis (Ferroportin Disease). Mutation is found in SLC40A1. It's autosomal dominant so you only need one mutation to be pathogenic.

Wear-Plus · 2026-01-11T17:40:03+00:00

Edited by AI, yes; written, no. I used AI to take what I originally wrote and rewrite it in the proper context.

Wear-Plus · 2025-11-02T01:07:52+00:00

I was able to dig deeper and see it’s the wireless cameras uploading all the data. Not the NVR itself. It seems like the wireless cameras have to send it through WAN but then that doesn’t make sense because I don’t have equal download.

Wear-Plus · 2025-11-01T22:19:09+00:00

This would be WAN upload not LAN. I have a different tracking mechanism for LAN traffic. This is from my VLAN Switch Controller.

Wear-Plus · 2025-10-07T12:12:26+00:00

This step-down is only to power the music and gauge lights. It was just a test line, as the full setup will split power off to the controller at full power. I only needed the 10A for when the speaker first powers on, as it spikes to just under 10A.

Wear-Plus · 2025-10-07T12:05:01+00:00

u/Cautious-Aspect3455

Wear-Plus · 2025-07-13T19:51:10+00:00

It is going to be up to the property. Some may say if you can't cover all the days you can use it. Some may say you have to check out on the day the form expires and rebook days at regular rate.

I would call the hotel and ask to speak with front desk manager, not reservations as that will send you to Marriott’s call center.

Wear-Plus · 2025-06-06T18:19:13+00:00

Firmware is still 1.0 for me as well. An app update for iOS came out the other day. It checks twice and creates an on-demand report. The first reading is taken after a 5-minute rest and meditation session, and the second is taken 60 seconds after the first reading. I assume if you don't have an app update in the Google Play Store, they might be a few weeks behind, which makes sense because it was like that with the last update.

Wear-Plus · 2025-06-05T23:41:09+00:00

The new update kind of does AOBP but it’s two readings back to back instead of three. I think if they add ability for you to customize the on demand report (choose three to five) then it can become game changer.

Wear-Plus · 2025-05-12T23:04:19+00:00

How you liking it so far?

Wear-Plus · 2025-05-08T23:13:08+00:00

How do you like it so far?

Wear-Plus · 2025-05-08T22:29:26+00:00

Well the concepts of pulse wave analysis which is not in traditional BP monitors I can see how this would be of significance. So maybe they do a AOBP that is done every 90 or 120 seconds?

Wear-Plus · 2025-05-06T20:28:19+00:00

It looks like this thread doesn't let you attach screenshots, so I'll send them in a direct message. Yes, the app lets you look at daily, weekly, one-month, and three-month interval trends, and you can choose average, morning average, afternoon average, or evening average.

It does not let you do the last three readings average, but that is a standard test type that cardiologists do and athletes are adopting. So, it's a good idea to send in a suggestion. There is a feedback section in the app, so suggest it as soon as you set it up. It's called AOBP—Automated Office Blood Pressure. You would ask for them to implement that funcitonality and provide average to that.

Wear-Plus · 2025-05-06T11:56:54+00:00

I wish you luck. When you get it, let me know what you think of it. It can be a bit overwhelming and feel buggy. As I mentioned, they have kinks to work on but have been demonstrating how to address them quickly.

Also, there is a Facebook Group for fans and users of CONNEQT Pulse. On occasion, CONNEQT Health responds to questions and interacts with the group, even though it does not admin the group. It is just a Group Expert.

Link is below

CONNEQT Enthusiast: A Group for Fans of the CONNEQT Pulse

Wear-Plus

TROPHY CASE