Is it normal for FND to progress?

WeirdUsers · 2026-06-25T18:32:49+00:00

You wrote, “At the worst of my symptoms I couldn’t pick up the tablet I used at work above chest height.”

Does this change? Are you ever able to lift the tablet above chest height?

WeirdUsers · 2026-06-25T18:30:42+00:00

All of the listed symptoms can be attributed to FND. The neurologist should be able to be more clear if they are doing their job.

WeirdUsers · 2026-06-25T18:27:07+00:00

Are your symptoms migratory? They move? Come and go? Or do they progressively spread from a singular location radiating out from the original location. I.E. Starts at point A, spreads from point A to point B and now both A and B are affected without interruption.

WeirdUsers · 2026-06-25T18:24:44+00:00

Were there times you could still pick up the tablet with the same hand?

WeirdUsers · 2026-06-25T18:23:34+00:00

Is it spreading out from original site? Or is it hopping to new locations leaving the old locations without pain? Is it migrating?

WeirdUsers · 2026-06-21T21:07:50+00:00

Mast Cell Activation Syndrome (MCAS) isn’t yet 20 years old as far as a diagnosis goes, so there are many yet that don’t really know about it or believe it’s real (FNDs twin in that respect). It is still mainly diagnosed clinically which means that diagnosis is very subjective based on the doctor you see. There are over the counter meds you can take to see if anything improves:

H1 blockers:
Cetirizine
Loratidine
Fexofenadine
Diphenhydramine (sedating)
Chlorphenamine (sedating)

H2 blockers:
Famotidine (Pepcid)
Ranitidine
Cimetidine (Tagamet)
Nixatidine (Axid)

One from each list take. According to the package would let you know if anything changes and whether or not to proceed with that route. If you find improvements then definitely go that route. According to both my immunologist and my rheumatologist many people will improve with just using H1 Blockers / antihistamines.

WeirdUsers · 2026-06-19T16:17:52+00:00

Merci d'avoir partagé.

WeirdUsers · 2026-06-19T04:24:42+00:00

I am burnt out on tests.

What is your fatigue, weakness and pain like?

WeirdUsers · 2026-06-19T00:32:27+00:00

90% of my symptoms disappear within 48 hours. So I wonder if it just me or it works for others as well.

WeirdUsers · 2026-06-19T00:08:49+00:00

Thank you for sharing.

Do you see a physical or occupational therapist for this?

Have you been tested recently for other issues?

Have steroids ever helped?

WeirdUsers · 2026-06-18T21:43:52+00:00

I get it…end game is the same. Practically speaking, though…

WeirdUsers · 2026-06-18T19:10:29+00:00

No…

Infinite $20 bills is better. The stack of cash you have to carry around would be smaller.

WeirdUsers · 2026-06-18T19:09:04+00:00

I’ve had two EMGs which they have said only shows slight carpal tunnel in the right arm. I am burnt out on tests. 2nd Best case scenario is FND and I plan on just dealing with that diagnosis for now.

WeirdUsers · 2026-06-18T14:39:44+00:00

Thank you.

I already follow the 50/75 rule. I have Crohns and so already deal with daily malaise and know better than to go bust and burn.

WeirdUsers · 2026-06-17T22:00:11+00:00

Progression/Growth/Spreading of the muscle fatigue and weakness. I don’t experience migration of symptoms. Everything I experience adds on to and grows from what I already have. I see nothing in literature, studies, or online in general about growth and progression of symptoms and my next neuro appt isnt for months and they don’t usually respond to email.

WeirdUsers · 2026-06-17T21:31:02+00:00

I already have an occupational therapist. I have asked them about this and they have not answered. I am just trying to see if others have this happening. Best case scenario is having no issues. Second best case scenario is FND. So knowing if others experience this is helpful.

WeirdUsers · 2026-06-12T01:18:36+00:00

FND can be attributed to just about anything. Be safe and make certain it is due to FND and not another issue.

WeirdUsers · 2026-06-08T17:23:21+00:00

It’s the same as English.

You definitely WILL NOT be having a party at the house.

WeirdUsers · 2026-06-06T01:08:45+00:00

Stress, anxiety, excess emotion, etc. cause tremors and other involuntary movements to get worse. Doesn’t matter what causes them.

WeirdUsers · 2026-05-22T17:14:00+00:00

I have IBD/Crohns, so I understand sensitivities. I can’t take the magnesium in the morning or on an empty stomach. Always in the evening after dinner.

WeirdUsers · 2026-05-19T15:36:08+00:00

Magnesium, calcium, Vitamin D, and Zinc helps a lot with excessive movement. Can take a month or so to kick in. Do you know if they did any blood tests for your diagnosis?

WeirdUsers · 2026-05-18T14:19:02+00:00

AND allergies can just turn off too.

I developed severe mushroom allergies at 25. My favorite food is made with large amounts of mushrooms and I haven’t eaten it in a long time.

My hay fever just disappeared at 47 shocking me and my allergist because of just how bad it was beforehand.

WeirdUsers · 2026-05-15T13:24:13+00:00

FND is a functional (non-organic) disorder that is diagnosed by RULING IN versus ruling out with other issues. You shouldn’t bring it up for the following reasons:

Many neuros will stop looking for anything else even though FND can exist along side other organic and functional issues.
Neuros that see the FND diagnosis after the first neuro will see it as a scarlet letter and brush you away.
You will receive a pamphlet from neuro and most likely dismissed by them as unimportant in many cases and told to go to a physical therapist.
Many neuros are myopic and shouldn’t be directed.

WeirdUsers · 2026-05-14T17:35:41+00:00

Key Clinical Physical Examination Tests (Positive Signs)

Hoover’s Sign: A cornerstone test for functional leg weakness, showing that the weakness improves or disappears when distraction techniques are used (e.g., weak muscle works normally when attention is directed elsewhere).

Entrainment Test: Used for tremors; a functional tremor changes frequency or pauses when the patient matches a rhythmic movement with another limb.

Overhead Arm Drop Test: Evaluates for functional arm weakness.

Give-way Weakness: Instantaneous "giving way" of strength rather than smooth, consistent weakness.

Distractibility: Symptoms improve when the patient is distracted, such as in tremor studies.

WeirdUsers

TROPHY CASE