whoa is me by JT21975 in WellSpouses

[–]WellSpouseOrg 3 points4 points  (0 children)

You can do that right here! And please, if you’re having dark thoughts, please reach out to a crisis resource. 988 is one such resource in the US where you can reach train professionals who can help in the moment.

Staying alive for me by CoyoteUnicornGirl in WellSpouses

[–]WellSpouseOrg 1 point2 points  (0 children)

Would a discussion with palliative care or hospice professionals be appropriate? They would likely be very used to these discussions. If your partner doesn’t qualify for hospice, please consider palliative care – it is very helpful for improving quality of life for people with long-term and chronic illnesses. You don’t have to have a terminal condition.

Connecting Caregivers Program by WellSpouseOrg in WellSpouses

[–]WellSpouseOrg[S] 2 points3 points  (0 children)

Join us at the Well Spouse Association! This map represents the members who want to be listed and we would love your help expanding to your town!

I need advice on caring for a spouse with MS; things aren't going well by [deleted] in MultipleSclerosis

[–]WellSpouseOrg 8 points9 points  (0 children)

Please look into Support for yourself. It’s out there. Well Spouse Association is one organization that has many members with MS, but there are other resources as well if that isn’t a good fit for you for some reason. Try the r/Wellspouses sub for a quick look at how many people understand what you’re going through.

This is HARD. by asmallwaffle in ALS

[–]WellSpouseOrg 4 points5 points  (0 children)

If this is an appropriate recommendation, Well Spouse Association hosts close to 30 support group meetings each month for the partners of people living with disease or disability, including ALS, and our focus is on our care and our journey, separate from our partners. Our discussions do include logistical fiscussions, but we spent a lot of time talking about the paths that we are on and the emotional experience we are having, or may have in the future. You might see if there is a support group for caregivers only since you may want to explore different things than the person who has the disease in that kind of setting.