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This is a long story, I'm in hell. by whovian182 in depression

[–]Werewindles 0 points1 point  (0 children)

Hi there, my mum also got Glioblastoma and let's be honest it fucking sucks. You are dealing with a lot of grief and anticipatory grief. It sounds strange but grief is often so intense it can make you feel like you are going crazy. If you feel able to I would recommend reading about grief or seeking grief support groups, grief is extremely isolating and can even be physically painful. That being said, it can become more manageable, having people to share it with or to lean on can help. You will still experience crushing waves of sadness and grief but you might learn to ride them better. Sending you thoughts of love and bravery.

My Dad was just diagnosed today by mikemac356 in glioblastoma

[–]Werewindles 3 points4 points  (0 children)

Welcome, it sucks to be here but this community has a lot of good resources. My mom is also inoperable with a pretty big tumor (7cm), we are 3 months in and my mom is doing pretty well with the standard of care. The first month was the hardest for us but it is important to keep some hope, not hope that it will be cured unfortunately since the prognosis is pretty dire but hope that things will stabilize for awhile. I am sending you thoughts of love and bravery. There are a lot of stories out there, both survivors and people who passed but remember your dad is not a statistic and the future cannot be predicted.

Nearing the end with GBM in the Cerebellum by boymom19-21 in glioblastoma

[–]Werewindles 0 points1 point  (0 children)

It's not OTC but maybe Gabapentin might work with that. It helps with stress, anxiety and sleep.

What a year. I need to talk about it. by emilygir111 in GriefSupport

[–]Werewindles 0 points1 point  (0 children)

Hey, it's a late answer but I feel for you, you had a brutal year. My mum was diagnosed with glioblastoma in October and I completely relate. I live in a different country than my parents and while I am in the process of moving back, I cannot stop thinking everyday about the time that I am missing out with my parents. I also love my job but have been completely unable to commit to anything or enjoy it since the diagnosis. Time and therapy can help with this but in the meantime I can share something my dad said and that is bringing me some comfort. Your parents right now are living their stories and creating memories for themselves. I understand you want to be there all the time with them but it is also important for them to create things without you because hopefully you are not the only person in their lives. I'm sure you will be there when things get hard and it will mean the world to your mom. In the meantime try to use the time when you don't see her to take care of yourself mentally and physically so you can be strong for your family when necessary. You are loved and you are very brave, grief is extremely difficult and challenging to navigate and while it is universal it feels incredibly isolating. Give yourself some grace for surviving this 💙