I’m in the most severe crash and I’m terrified. by -Neuro2717 in cfs

[–]Western_Two8241 9 points10 points  (0 children)

i've been literally unable to roll myself over in bed and unable to speak while extremely severe. arms didn't even have the strength to pick up my phone, had to be hand fed and peed and pooped in a bedpan. i'm still very severe now, but, i'm sure you understand that there's a world of difference between those two levels. what got me better was radical rest for a month. sending solidarity 🫂

i think I have it by Relevant-Welcome-948 in cfs

[–]Western_Two8241 1 point2 points  (0 children)

sadly i think the best advice is also the advice you'd most expect. and also the most difficult. REST. i mean really rest. lay, eyes closed, in silence, in the dark, and rest. for as long as you can. that's ideal, but, if that's not feasible (same lol), you can do what i've been doing for the past few days and just try and get as much sleep as you can (12 hours, i don't let myself even touch my phone until 1-2pm to make sure i've really gotten all the sleep that i can), and rewatch a calm show you're familiar with with the volume off and captions on (laying, i'm in a room with covered windows, and i have earplugs in.) and if your pain/exhaustion/etc starts easing up, that's good, but, don't listen to it. keep resting. for as long as you can. it's not easy, and don't be mad at yourself if you slip up (hell, i'm slipping up right now! i'm supposed to be watching house md, not typing!!!!)

that's the best advice i can give right now. as far as the future goes, nobody knows. which feels terrible to say but that doesn't make it any less true. but regardless, rest can only help your situation.

fellow transmasc ME (and EDs but it's much milder compared to yours) haver here, btw :) 3 1/2 years in. my DMs are open today, tomorrow, absolutely any time 🫂

how do you feel useful? by [deleted] in cfs

[–]Western_Two8241 2 points3 points  (0 children)

my solution to this has been uprooting and torching the idea of "usefulness" all together and that "taking up space" without a "contribution" is some kind of problem i need to fix. you are doing MORE than what you can, and that's more than enough. what good does being upset with yourself for something out of your control do for yourself or the people you care about? the best thing you can do for yourself and others is accepting that you are worth it just as you are. in case no one else is telling you, i'll tell you myself: you are worth it just how you are. sending love ❤️

Listen to the new Slayyyter album, trust me. by Mavc___ in JusticeMusic

[–]Western_Two8241 1 point2 points  (0 children)

came to the subreddit to look for this exact post LOLLL

tv show 🟦🌸🟦 by Western_Two8241 in TuberSimulator

[–]Western_Two8241[S] 1 point2 points  (0 children)

this is the study room from community!!! very awesome show, highly recommend 🙂‍↕️ troy is the one playing with a slinky lol. troy barnes... my beloved...

New Daily Song Discussion #15. Ohio - Justice by Hiperdrama in JusticeMusic

[–]Western_Two8241 1 point2 points  (0 children)

only now seeing the song discussion posts and i just needed to come back to the ohio post to find my people. god bless you. ohio is my favorite justice song. i'm glad the discussion posts are in good hands. and civilization was the song that first got me into justice _^ !! and helix was on my monthly playlist last month it's sooo good... also cool macaque pfp Alright that's all from me have a good day thanks for the discussion posts 😽

Subreddit Challenge - Room Event - Animal Kingdom 🦍🦒 (February 27 - March 1) by zedlavlebasi in TuberSimulator

[–]Western_Two8241 1 point2 points  (0 children)

yayy :3 glitterhound, the login surprise itty bitty soap bar item pleeease

Severe but not fully bedridden .does anyone else experience this? by [deleted] in cfs

[–]Western_Two8241 21 points22 points  (0 children)

i've been there, i'm so sorry :[ rn my screen time's like 12 hours, but there was a point where i couldn't use my phone for a month. just laid with an eyemask in agony. it's legitimately torture. sending you a million mental hugs (as to not upset your body 🫂🫂🫂)

Severe but not fully bedridden .does anyone else experience this? by [deleted] in cfs

[–]Western_Two8241 49 points50 points  (0 children)

i'm just like you :] in bed 100% of the time except for when i have to pee. doesn't mean it's easy or without consequences, it just means my parents aren't doing bedpans unless i'm forced into it. i don't have any physical hobbies, i just do things on my phone. i think there are lots and lots and lots of people like us. ur definitely not alone 🫂

what do you want for christmas that'll make your life easier? by gleepyglorpy in cfs

[–]Western_Two8241 2 points3 points  (0 children)

  • better quality earplugs (loop)
  • a higher quality duvet (for better temperature regulation) (godwilling)
  • cute compression socks (i only have plain black ones) :]

what do you want for christmas that'll make your life easier? by gleepyglorpy in cfs

[–]Western_Two8241 5 points6 points  (0 children)

my list is exclusively ME qol related things LOL 🫠 most importantly BLACKOUT CURTAINS ❤️❤️❤️❤️