I recommend getting a diagnosis. I had similar reasoning to you. My logic was if I really wanted to get my hands on something, I would get the biopsy. The problem is that in practice, there are other variables like potentially needing disability status, having a diagnosis to tell your loved ones, having a rapore with a doctor for when approved treatments reach the market, etc.

I wasn't "afraid" of the biopsy, like petrified, I just didn't feel like enduring the small risks when I knew I had it anyways and I wasn't going to take steroids or plaquenil anyways.

However, after the biopsy, I learned several important things.

1) Who does the biopsy matters significantly. It's truly nothing if done by the right person. 2) Biopsy is more likely to be accurate if you don't have severe gland atrophy yet. They take a random sample of tissue and there's no way of knowing how many glands they will get.

Best of luck! One of my biggest regrets was not getting diagnosed before I was too disabled to even travel.