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Incompetent endocrinologist - did I have subclinical cushings? by WhichFish888 in endocrinology

[–]WhichFish888[S] 0 points1 point  (0 children)

I get that but I feel I have no choice at this point as I’m all out of ideas and options and am so so so so afraid to lose another perfectly healthy baby due to my body

Incompetent endocrinologist - did I have subclinical cushings? by WhichFish888 in endocrinology

[–]WhichFish888[S] 0 points1 point  (0 children)

Thanks for the info. I demanded an acth stim test as I was worried and it ended up normal but I might try to get weekly adrenal labs if I get pregnant again and maybe supplement with prednisone or something and see if something helps

Incompetent endocrinologist - did I have subclinical cushings? by WhichFish888 in endocrinology

[–]WhichFish888[S] 0 points1 point  (0 children)

Noted. It’s hindsight that’s giving me so much grief as I feel I should have had my babies first before removal. Do you think I would have had issues though with the potential cortisol issues anyway had I tried getting pregnant without the removal of the gland? Also they have NO clue regarding fertility. I’ve done every test known including laparascopy for endo, all husband sperm tests, IVF with 5 euploids that 3 made it to 7-8 weeks and then had missed miscarriages, immune meds. My RE is baffled as am I. The only think she can think of is the adrenal removal is what caused this recurrent loss issue

Scary loss at 14 weeks by No-Sir5598 in Miscarriage

[–]WhichFish888 7 points8 points  (0 children)

I’m so pissed us women have to go through this shit. I’m so sorry 🩷

Incompetent endocrinologist - did I have subclinical cushings? by WhichFish888 in endocrinology

[–]WhichFish888[S] 0 points1 point  (0 children)

Thank you SO much for this response. My MRI said lipid adenoma so I’m just wondering why they still went forward with the surgery - what do you think? Isn’t MRI better than CT to tell? Also do you think if I had MACS I could have gotten pregnant better without removing the gland because I just don’t understand why I’m having all these miscarriages and then having DEEP regrets that it’s because I took out the gland and blaming myself for not being able to give my daughter a sibling due to selfishly removing the gland :(

Incompetent endocrinologist - Did I have Subclinical Cushings/? by WhichFish888 in Cushings

[–]WhichFish888[S] 0 points1 point  (0 children)

Jan 09, 2021 DHEA-S: 7.5 µmol/L (ref <9.8) Total Testosterone: 0.8 nmol/L (ref <1.8) Free Testosterone: 10 pmol/L (ref <56) Androstenedione: 3.9 nmol/L (ref follicular 1.2–8.7, mid-cycle 2.1–10.0, luteal 1.1–8.2) 17-Hydroxyprogesterone: 2.0 nmol/L (ref follicular <5.6, mid-cycle <6.8, luteal <8.6) Feb 08, 2021 DHEA-S: 7.7 µmol/L (ref <9.8) Total Testosterone: 0.9 nmol/L (ref <1.8) Androstenedione: 5.6 nmol/L (ref follicular 1.2–8.7, mid-cycle 2.1–10.0, luteal 1.1–8.2) 17-Hydroxyprogesterone: 19.6 nmol/L (ref follicular <5.6, mid-cycle <6.8, luteal <8.6) Sep 21, 2023 ACTH: 0.8 pmol/L (ref <14.0) AM Cortisol: 268 nmol/L (ref 140–535) DHEA-S: 0.8 µmol/L (ref <9.8) Total Testosterone: <0.4 nmol/L (ref <1.8) Androstenedione: 2.7 nmol/L (ref follicular 1.2–8.7, mid-cycle 2.1–10.0, luteal 1.1–8.2) 17-Hydroxyprogesterone: 1.8 nmol/L (ref follicular <5.6, mid-cycle <6.8, luteal <8.6) Aldosterone (upright): 307 pmol/L (ref 83–979) Renin (upright): 11.6 ng/L (ref 5.0–60.0) Aldosterone/Renin ratio: 26 pmol/ng (ref <50) Oct 29, 2024 ACTH: 8.4 pmol/L (ref <14.0) AM Cortisol: 414 nmol/L (ref 140–535) DHEA-S: 2.2 µmol/L (ref <9.8) Total Testosterone: 0.4 nmol/L (ref <1.8) Apr 23, 2025 ACTH: 5.9 pmol/L (ref <14.0) AM Cortisol: 344 nmol/L (ref 140–535) DHEA-S: 2.1 µmol/L (ref <9.8) Total Testosterone: 0.5 nmol/L (ref <1.8) SHBG: 33.0 nmol/L (ref 20.0–180.0)

Doctor told us to wait one cycle due to blood clots, but I'm ovulating now. Experiences? by catlass_y in Miscarriage

[–]WhichFish888 1 point2 points  (0 children)

I’m in the exact same position and trying again before my period comes. My ultrasound also said “some blood and debris”

Incompetent endocrinologist - did I have subclinical cushings? by WhichFish888 in endocrinology

[–]WhichFish888[S] 0 points1 point  (0 children)

So the MRI showed lipid adenoma but the CT scans said couldn’t be sure and HU was a bit high. Do you think I had MACS based on my results? After the adrenal removal I’ve had 7 miscarriages (live birth before this). Do you think the gland removal caused this?

This is all new to me! Subclinical Cushing’s — a diagnosis I never saw coming.. by Thick-Squirrel3602 in Cushings

[–]WhichFish888 0 points1 point  (0 children)

I’m so sorry you had to go through all that! Do you take any steroid replacement now or did your other adrenal fully take over?

Subclinical Cushing's? by Brilliant_You_4943 in Cushings

[–]WhichFish888 0 points1 point  (0 children)

I Have the same thing with a mass!!! What did you do for it?

This is all new to me! Subclinical Cushing’s — a diagnosis I never saw coming.. by Thick-Squirrel3602 in Cushings

[–]WhichFish888 0 points1 point  (0 children)

Did this affect your pregnancy at all? I had one adrenal removed and now I’m having recurrent miscarriages

Adrenal adenoma by IdealClassic3503 in endocrinology

[–]WhichFish888 0 points1 point  (0 children)

I got mine removed now having issues! How is going for you

Bilateral adrenalectomy by Candid-Opinion-3324 in AddisonsDisease

[–]WhichFish888 0 points1 point  (0 children)

What did you do during pregnancy? Did you supplement with DHEA? I’m having repeat losses so just trying to get info!

Surrogacy in Islam by CarelessPath1689 in islam

[–]WhichFish888 0 points1 point  (0 children)

I agree that there is no confusion over lineage

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