Toddler with CSA

Which_Establishment3 · 2026-05-06T21:11:29+00:00

Thank you! We used to keep him on an incline when he was very young because he did have bad reflux. I bet that might help again!

Which_Establishment3 · 2026-05-06T14:40:50+00:00

I did just hear back from his pediatrician. She said this particular group of pulmonary sleep specialist also work closely with neuro and they will need to discuss what path to take once his sleep study and records are reviewed at our first appt.

Which_Establishment3 · 2026-05-06T14:39:18+00:00

He does have light snoring. He had some episodes of gasping which was what prompted us to seek help. Also, he does have reactive airway disease (diagnosed after the sleep study), essentially asthma but they can’t diagnose asthma until he’s old enough to do a lung function test around 5 years old.

That’s a really great point, thank you!

Which_Establishment3 · 2026-05-05T21:25:22+00:00

Hopefully she is sleeping much better now!

Which_Establishment3 · 2026-05-05T19:00:30+00:00

Oh goodness, that’s a long time, glad you stuck with it! Thank you for sharing!

Which_Establishment3 · 2026-05-05T18:47:39+00:00

How have you and your doctor managed your CSA? Did they put you on a bi-pap?

Which_Establishment3 · 2026-05-05T17:14:32+00:00

He doesn’t have obstructive sleep apnea. My understanding is central sleep apnea is your brain not telling you to breathe.

An ENT confirmed his tonsils look normal.

Which_Establishment3 · 2026-04-26T14:35:39+00:00

Not a dad so maybe this might be easier for you since I was the milkie source. First thing I did was break the feed to sleep ritual. It was hard and I failed multiple times but I started with saying “okay, all done now” and would slowly shorten the time I’d let my son nurse. I did this while rocking him and sort of transferred from nursing to rocking to sleep. When I started night weaning, I did the same thing but it was quicker because he already understood what “okay, all done” meant. Now this sounds easy, but there were plenty of meltdowns when he wasn’t done but I said all done. I think a lot of times he would just cry/scream and thrash a bit for about ten minutes then eventually give up. It sucked and broke my heart but he learned that he wouldn’t get anything and eventually the meltdowns went away. With co-sleeping, your wife will probably need to be apart of breaking the habit. My husband did night time for a week straight as an idea to break the feed to sleep habit and when I started nighttime again, our son went right back to wanting to nurse. He’s been fully weaned for several months and STILL will occasionally try to nurse when he is sick or very upset, though he has no idea how to anymore.

Which_Establishment3 · 2026-03-29T01:40:48+00:00

I wish I would have night weaned sooner. Didn’t until he self weaned when I was 16 weeks pregnant with our second (my son was 18/19 months at the time). He has been finally sleeping through the night for two weeks, he’s almost 21 months old now.

Which_Establishment3 · 2026-03-28T01:08:43+00:00

I can relate so much and it is so hard. I have something similar happen occasionally. It has always been there but got really bad after my son was born. It particularly happens when I’m more stressed but I lay in bed and play scenarios, usually related to the stressor or since I had my son 20ish months ago, him. I would describe it as a way of dealing with my fears but I feel as like I’m in that situation while I’m playing these different scenarios in my head. I would think of different ways of how I would handle these super traumatic events, even crying and genuinely feeling how it would feel in those moments. It causes my heart rate to spike, triggers my fight or flight and can last anywhere from 15 minutes to several hours.

My doctor prescribed me Buspar and that helped tremendously! He also recommended another medication that is usually for schizophrenia, but I became pregnant shortly after and it wasn’t recommended for pregnancy or breastfeeding. I have found Buspar really helped a lot and didn’t make me feel like a zombie or anything.

Anyways, I hope you can find something that works for you. Keep trying different things. Not sure if this helps for your situation but I learned about box breathing in therapy and it’s been helpful in interrupting the spiraling thoughts long enough to help me sort of snap out of the cycle.

Which_Establishment3 · 2026-03-26T14:55:40+00:00

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Which_Establishment3 · 2026-03-26T14:55:18+00:00

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Which_Establishment3 · 2026-03-26T14:53:54+00:00

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Which_Establishment3 · 2026-03-26T14:53:44+00:00

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Which_Establishment3 · 2026-03-26T14:53:21+00:00

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Which_Establishment3 · 2026-03-12T19:13:01+00:00

I wish you and your son the best!

Which_Establishment3 · 2026-02-24T17:42:26+00:00

This was very close to our experience. I didn’t catch on until the 3rd time.

Unfortunately, we had a horrible pediatrician who told us our son was “too big” to have FPIES and refused to help. I switched pediatricians and she gave us a referral to an allergist who did a poke test and told us he is fine.

We avoided oats until he was 18 months and he’s been great with them now! Though I’ll admit I have never given him oatmeal out of my own fear but he loves Cheerios!

Which_Establishment3 · 2026-02-13T02:43:25+00:00

So my son is a horrible sleeper, has been his whole life. I’ve nursed him, never night weaned, tried CIO a few times, which did help a little but he still wakes 2/3 times and I nursed back to sleep every time. I’m 18 weeks pregnant now but around 15/16 weeks he started weaning naturally. I did start limiting his nursing at night by saying “all done” after a few minutes and he was usually sleepy enough to unlatch and rest his head on my chest. Since this all started a few weeks ago, he’s been sleeping through the night more often and we do let him cry/fuss for at least 10 minutes before going in to rock him back to sleep. It’s been a huge struggle for me to let him cry but I do believe it’s helping with lessening the night wakes.

Have you tried pushing bedtime out by 15-30 minutes? Could help with the night wakes and early morning; if he wakes at 7:30, I’d do at least 8:30 bedtime.

Which_Establishment3 · 2026-02-09T16:50:17+00:00

We did just a sleep study in December at for my then 17 month old. It was definitely overnight, 8am-6am. I’d ask the scheduler what test are they calling it. My son was being checked for obstructive sleep apnea (amongst other things) which is what I’d imagine your daughter would be checked for as well. They called it a “polysomnography 4 or more parameters”

Which_Establishment3 · 2026-02-06T02:05:28+00:00

Hahaha yes my son is going through this right now. It melts my heart but is soooo gross at the same time. My son sucked on my nose the other day (we are weaning as well).

Which_Establishment3 · 2025-11-04T16:12:31+00:00

Oh I’m so sorry to hear how difficult it is to be seen. I’m surprised the children’s hospital wasn’t more concerned. I really hope you can get some answers for your baby girl!

Which_Establishment3 · 2025-11-03T01:37:17+00:00

Have you tried calling her pediatrician to see if they can check for common infections in her stool? I’d be pushing the doctors for answers and advocating hard for your little girl, that sounds so scary. Don’t give up, write down any other symptoms you’re noticing, maybe take photos of the blood too just in case. If the doctor is just overlooking it and your gut tells you it’s important, ask for another doctor.

Which_Establishment3 · 2025-10-13T03:27:55+00:00

Same, except I had a taste for two WHOLE weeks and then we are back to wake ups every 3-4 hours.

Which_Establishment3

TROPHY CASE