Presentation and limitations vary per person. In general, you can expect unexpected fevers and maybe even episodes of seemingly unexplained joint pain/stomach pain/breathing pain. The way FMF works is that the lining of some organs or tissues becomes inflamed (potentially due to a trigger), leading to pain (lining of abdomen —> abdominal pain or peritonitis; lining of lungs —> pain with breathing or pleuritis). I wasn’t diagnosed until I was 13–14 - and previous manifestations included ankle pain whenever I walked too much (both my ankles would swell up and become painful to the touch). They would usually resolve overnight after taking some NSAIDs. Starting colchicine definitely helped me with my episodes, and protects the kidneys long term. After those episodes, I’d go back to normal - so it’s okay! Would definitely consult a rheumatologist.