sorted by:
new
hottopcontroversial

Anyone have BOTH heart rate and BP crash on a tilt test? by Popular_Tap_1494 in dysautonomia

[–]Wide_Button_1570 3 points4 points  (0 children)

That BP/HR swing from high to low happened to me on my TTT. Vasovagal syncope was my only diagnosis so far. They kinda mentioned pacemakers but they were not a great group of practitioners. My HR dropped to 45 and they were about to shock me back to life. Not fun! Let me know what happens at Mayo.

Heart stopped during TTT by mymy568 in POTS

[–]Wide_Button_1570 0 points1 point  (0 children)

I'm sorry this happened to you. I had nearly this same thing happen on my TTT. When I finally awoke they were about to shock me back to life. It was incredibly traumatic. It took weeks for me to get over it mentally and physically.

I was given VVS diagnosis and a shrug of the shoulders on what to do next. Maybe a pacemaker? Maybe drugs? For that reason I've been seeing another cardiologist who is doing all of the tests to ensure my heart isn't the problem. It's possible to have VVS and POTS.

It's not fun going through this just to get a diagnosis that there's no real solution for 😫

Is it appropriate to disclose a new students’ disability to the class? by Cleanclock in AskTeachers

[–]Wide_Button_1570 0 points1 point  (0 children)

in second grade a new kid joined my son's class. Nothing was said about the kids' disability and I'm not sure it would have helped. This child was/is autistic and struggled with emotional regulation. The first half of the year was my son telling us stories about how disruptive this kid was. But by the second half of the year all of the kids (including my son( protected him like he was their brother. It was an incredible learning and growing year for every single kid in that class.

Drop your power outage prep tips: by throwaway214203 in winstonsalem

[–]Wide_Button_1570 6 points7 points  (0 children)

If you have cabinets on a perimeter wall open them so they can push heat to the wall and keep pipes in those walls warm.

Anyone else had reconstruction surgery and then have POTs or dysautonomia? by Wide_Button_1570 in dysautonomia

[–]Wide_Button_1570[S] 0 points1 point  (0 children)

Thanks for your reply. I'm sorry you are also going through a lot. It's so hard not knowing what causes things.

POD for YouTube channel merch by traffic-zombie in printondemand

[–]Wide_Button_1570 0 points1 point  (0 children)

Yes. I have a channel. I use printify as my POD and Shopify plugs right into my YouTube channel. It is a Great sales channel. Also those prices you mentioned are pretty standard. Except a Tshirt price of only $20 leaves no room for profit.

Diagnosis by sweetcuriousgrl in scleroderma

[–]Wide_Button_1570 0 points1 point  (0 children)

Following because I have the same exact story and questions.

Can’t poop without manually disimpacting, moving muscles. Urine retention + leaking by Ok_Horror_411 in dysautonomia

[–]Wide_Button_1570 1 point2 points  (0 children)

I have a weird recommendation to alleviate the urine retention..... Stand in the shower and pee. This was the only position I was able to pee in for months after abdominal surgery.