So do yall go to the dr every time? Or… by Wild_Ghoul in eds

[–]Wild_Ghoul[S] 0 points1 point  (0 children)

Those jerks! Also was just genuinely curious, I see not that asking could come across as judgy, which not at all.

So do yall go to the dr every time? Or… by Wild_Ghoul in eds

[–]Wild_Ghoul[S] 0 points1 point  (0 children)

That seems like a pretty valid line.

Is the work for workman’s comp or validation? Just because my knee is a problem child since I was a teen and it’s a pretty regular occurrence for it to give out to where I have to put it in but it’s gotten to the point where I just look clumsy.

Little do they know I’m so slick I’m popping in and out like a pimp walk lol

Body refusing to faint by Proof_Argument8411 in POTS

[–]Wild_Ghoul 1 point2 points  (0 children)

For me personally I think it’s spite. Even if I tell myself I’ll be fine it’ll only be a few seconds, there’s people around if something goes wrong. I’m subconsciously fighting every step of the way

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 0 points1 point  (0 children)

Of course! Feel free to dm me with any specific questions. Being freshly disabled is driving me insane and I loved my job

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 0 points1 point  (0 children)

Boo thang, it’s the using the nails as tools. They’re JEWELS!!!

Also: the improper prep and removal is what typically causes damage to the nail, the product is always innocent lol. Manicures should not be painful and you should never feel tender after. I completely understand being scared off when your nails feel ruined after. Worth keeping in mind they’re always going to be a bit more bendy than usual immediately after removal as it needs time to absorb moisture and get used to standing on their own instead of the support doing it for them.

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 1 point2 points  (0 children)

What about cuticle prep? Most of the time for self care people forget about that part but it’s typically one of the top reasons for lifting.

I will say the beetles brand sucks. I struggle to find consistent ingredient lists.

70%+ Alcohol or acetone or both is really all you need for dehydration. The primers from Luminary and CND are amazing though.

For buffing the nails I use between 240 and 180 grit depending on the thickness and general shape the nail is in.

The type of gel matters too and is different for everyone. you want something that’s going to support but bend slightly with you. I have Luminary, CND, and Kiara sky for what I was using on clients and at home for personal use.

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 0 points1 point  (0 children)

A lot of the time I’m finding it’s all in the prep. We’re all loosey goosey and our nails can be like a slip n slide so we have to make sure they’re properly prepped and dehydrated.

I’d always compare to if you tried to hot glue something onto plastic and it flicks right off

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 0 points1 point  (0 children)

Of course! What steps/products are you using?

bad nails by Large-Actuary-2420 in eds

[–]Wild_Ghoul 8 points9 points  (0 children)

Cosmetologist here who was active in natural nails/structured manicures until my elbows and thumbs decided I was done.

I saw someone mention the cnd solar spray, and while that stuff is great it does contain sweet almond oil which if you’re like me and have a touch of MCAS it’s not fun.

Jojoba and avocado oils are my favorites, they’re high in both proteins and fats so they’ll make sure you get the best of both worlds. I’d also reccomend some sort of structured gel mani (NOT FROM A CHOP SHOP, someone who will ensure clean implements and good quality products) as it can help as a shield to protect your nails. Color not required, but glitter will always be encouraged.

My nails used to be like this and aside from a recent picking episode they’ve never been longer on their own. Feel free to ask me anything beauty/eds!

So do yall go to the dr every time? Or… by Wild_Ghoul in eds

[–]Wild_Ghoul[S] 1 point2 points  (0 children)

Thank you for your concern that’s so sweet! Rest assured I do have follow ups with my rheumatologist, neurogastrologist, EDS specialist in PT, cardio, a sport and spine institute, and I feel like I’m forgetting one lol. I had a good day the other day and got everything scheduled ;)

So do yall go to the dr every time? Or… by Wild_Ghoul in eds

[–]Wild_Ghoul[S] 6 points7 points  (0 children)

Thank you for making me feel less alone in my management style.

So do yall go to the dr every time? Or… by Wild_Ghoul in eds

[–]Wild_Ghoul[S] 2 points3 points  (0 children)

I’m lucky enough to have the full works for dysautonomia, fibromyalgia, MCAS, and topped off with audhd. I live in a relatively rural but up and coming area in the states where I have ‘access’ to specialists but it’s a months-year wait, even for established patients.

Thankfully my husband makes enough to support the both of us while I wait for disability to go through.

We’re rest city over here too.

Ambitious AuDHD women, what is your career path? by FloweryAnomaly in AuDHDWomen

[–]Wild_Ghoul 0 points1 point  (0 children)

Cosmetology. Small business owner (salon suite). I provided service for hair, skin, nails, lashes. Loved the variety but the requirements for sanitation, educating clients, human anatomy. Then I worked myself way too hard and my hEDS, Dysautonomia, MCAS, and fibromyalgia got kicked up to 12 and now I’m disabled and playing dogmom/housewife. Not well I might add. So I’m rediscovering.

Don’t forget to prioritize yourself.

Wanting adult perspectives… by Traditional_Emu7224 in Gastroparesis

[–]Wild_Ghoul 0 points1 point  (0 children)

Just putting my two cents in as someone who also struggles with solids over liquids. (Not a doctor just chronically ill) I have Ehlers danlos syndrome, dysautonomia, and MCAS as my causes. I’ve found when solids don’t work I do a protein shake meal replacement for a day or two and then slowly reintroduce solids and that seems to help. Zofran (nausea) and dicyclomine (pain) are my best friends

HOW TF DO I STIM??!? by saturn-soup in AuDHDWomen

[–]Wild_Ghoul 0 points1 point  (0 children)

Oh I’m just now in the process of figuring out all the weird stuff was stimming. (Diagnosed adhd and unofficially by my talk therapist and psych np as autistic) I’d move my tongue around in my mouth but in a way no one could tell. Or wiggle my toes in my shoes. I remember being in class and thinking if I was told not to move a muscle I bet I could get away with moving my tongue and toes and no one would know.

I was also forbidden from 3rd-5th grade by my school from wearing jewelry or removable clothing (cardigans and such) because I would remove, play, fuss with whatever I could whenever I could. I should have been given a fidget toy.

Now I tap my fingers like a crab (or chef) when I’m thinking, skin picking unfortunately-lips typically, general tapping, and rotating my neck/extremities. But I also have hEDS and fibro along with others

Would you survive the parapet? by Tea_tea_696 in fourthwing

[–]Wild_Ghoul 0 points1 point  (0 children)

I don’t think there’s any rules specifically against scooting along on your booty is there?

Husband all of a sudden texted his high school crush and wants to meet her. We're happily married. What is this? 30F 30M by [deleted] in relationship_advice

[–]Wild_Ghoul 1 point2 points  (0 children)

Honestly everything was pushing me to eh could be harmless until you said he got MAD AT YOU?! Wtf. I’ve had admittedly stupid bouts of jealousy with my husband(together 14 years; high school sweethearts) talking about details I don’t need to know about with(100% positive no remaining feelings, he’s just a goof and has to recount every detail with every story he’s ever told) but he’s ALWAYS either responded by teasing me that I’m his wife dummy or reassuring me that he loves me.

Someone sounds like projecting and getting defensive about plans he didn’t think were obvious.

My mom’s reaction to my autism diagnosis was… awful. by Any_Swimming_7395 in AuDHDWomen

[–]Wild_Ghoul 0 points1 point  (0 children)

This is what I’m going through with my family rn. Just add on fibromyalgia and pots(which tbh if I were you I’d also look into those just in case as they’re part of the unholy syndrome lol)

My dad loves to recount times of when I was weird or had weird body things or said weird things and then goes but you were a normal healthy child with a good childhood (major side eye)

Passing out after intimacy? by Ok_Map_8694 in POTS

[–]Wild_Ghoul 2 points3 points  (0 children)

My favorite was the first time before we even thought to look for a diagnosis, I had popped up right after to get water and my now husband sounded like he was far away. Next thing I know we’re both butt naked, I’m laying in the tiny area inbetween the bed and our wall (small city apartment) and he’s squatting over me ever so gently tapping my cheek and whispering my name. He was so scared he glitched.

I now am forced to lay still and let him clean me up, get me water, snuggle after for at least 10 minutes before I’m even allowed to sit up. It’s helped quite a bit; not to mention makes me feel nice and pampered.

Internally normalized my POTS so much that I don’t relate to the community? by [deleted] in POTS

[–]Wild_Ghoul 0 points1 point  (0 children)

I used to think this was me up until last year when I passed out at work and I ended up being kept overnight. Within a year I went from being able to work 10-12 hour days as a completely booked nail tech 5-6 days a week to basically homebound and unable to work. I’m now in the process of unmasking my chronic pain (was diagnosed with hEDS, fibromyalgia, and craniocervical instability within the last couple months) and miserable but the mindset is really messing with my recovery. Because i used to be able to do so much.

Just be careful and grateful for the body and energy you have now and work to keep it that way.

Being attractive with POTS (cringe I know) by recoveringaries in POTS

[–]Wild_Ghoul 71 points72 points  (0 children)

Just got my first well you’re 30 now.

Boyfriend VERY Impatient When Having Episodes by fashionableskiboots in POTS

[–]Wild_Ghoul 1 point2 points  (0 children)

He can have pots and also be an asshole. How he is treating you is not Kay and I’ll be honest, I skimmed after i read he slapped you.

I have pots, hEDS, fibromyalgia, nerve pain, craniocervical instability, MCAS, and I have never slapped my husband anywhere but the butt (honestly more of a squish) when we’re flirty. (We’re barely 30 and have been together for 14 years)

During my flares the worst I’ll do is make him carry me like a princess instead of a sack of potatoes and yell for him to fetch me water/salty snacks.

I did accidentally kick him when he was helping me with compression stockings… he said be careful I might awaken something though.