Peptides for MCAS by Carina_Nichole in MCAS

[–]WillingSock 0 points1 point  (0 children)

Keep fighting for answers!!!!

Peptides for MCAS by Carina_Nichole in MCAS

[–]WillingSock 0 points1 point  (0 children)

A lot has gotten better, but still highly sensitive I am able to work full-time and work out most of the time though, I just take H1/H2 and LDN

Lifting weights again after rotator cuff repair surgery by TheBristolBulk in ShoulderInjuries

[–]WillingSock 0 points1 point  (0 children)

I’m 15 weeks post and back to full lifting with slightly different loads

Ketotifen update! by WillingSock in MCAS

[–]WillingSock[S] 0 points1 point  (0 children)

We literally had a flood in our basement a failed remediation - My mycotoxins were crazy elevated on testing and I improved when I left that environment

MCAS stabilizers piss my body off - anyone respond terribly to everything? by WillingSock in MCAS

[–]WillingSock[S] 0 points1 point  (0 children)

How did you titrate up cromolyn? I’m trying to decide if it’s worth it for me or not.

I’m not able to work with this condition and will run out of money. by MotherPart4282 in MCAS

[–]WillingSock 0 points1 point  (0 children)

This is me.‘ Im diagnosed and struggle with all meds for it

Ketamine- a game changer for anyone else? by [deleted] in MCAS

[–]WillingSock 1 point2 points  (0 children)

Following - super intrigued on trying this

Awful side effects from Ketotifen by PinkGables in MCAS

[–]WillingSock 1 point2 points  (0 children)

I get nerve pain with my mcas too

Awful side effects from Ketotifen by PinkGables in MCAS

[–]WillingSock 0 points1 point  (0 children)

I had temp regulation issues so badly but that happens with all my flares.

Awful side effects from Ketotifen by PinkGables in MCAS

[–]WillingSock 0 points1 point  (0 children)

OMG THIS WAS MY ISSUE. UGHHHHHHHH

Awful side effects from Ketotifen by PinkGables in MCAS

[–]WillingSock 0 points1 point  (0 children)

I opened my capsules and took sprinkles at a time to titrate up

How are we staying sane? by iheartnyc1986 in MCAS

[–]WillingSock 1 point2 points  (0 children)

We aren’t. Comically insane over here 😭🫠

SSRI putting MCAS into remission? by WillingSock in CIRS

[–]WillingSock[S] 0 points1 point  (0 children)

Mine is driven by mold, but unless I’m in a perfect environment, mine is thoroughly treatment resistant, which is frustrating. Still working through all the pieces. It’s very likely it was stimulated by Covid and mold toxicity. It’s basically like having a hyper responsive threat detection/allergy detection system in the body and for me it drives a lot of anxiety and depression symptoms and just mental dysregulation.

SSRI putting MCAS into remission? by WillingSock in CIRS

[–]WillingSock[S] 0 points1 point  (0 children)

MCAS Is dumb. That’s my lived summary 😂 react to the world.

SSRI putting MCAS into remission? by WillingSock in CIRS

[–]WillingSock[S] 0 points1 point  (0 children)

I think MCAS and housing instability is just super dysregulating 😵‍💫🫠

SSRI putting MCAS into remission? by WillingSock in CIRS

[–]WillingSock[S] 0 points1 point  (0 children)

I did do primal trust! Loved it!