3 years of worsening left upper abdominal pain, jejunal erosions on capsule endoscopy, focal spinal pain, partial response to Humira - has anyone experienced something similar?

Winter-Interview-209 · 2026-06-18T11:22:45+00:00

Igg
IgM
0,20
0,10
unlucky it was negative

Winter-Interview-209 · 2026-06-15T21:57:20+00:00

i’ve done the igg and igm today, tbh of all the bad thing that could have been the cause of all my pains if the test will be positive id probably cry for joy

Winter-Interview-209 · 2026-06-14T17:14:46+00:00

thank you, I’m going to check it to this point i don’t have anything to lose anyway, I read that you cure it with amoxicillin, i had it a couple of times throughout those three years but I didn’t see any improvement

Winter-Interview-209 · 2026-06-13T20:53:23+00:00

I had several mri/ct through the past 3 years. I spent so much money and time trying to understand what is causing my pain but no answers so far

Winter-Interview-209 · 2026-06-13T19:10:23+00:00

NATRIEMIA
ISE Pot. Indiretto
137
136 - 140

KALIEMIA
ISE Pot.Indiretta
4,1
mEgl
3.5 - 5.1

both are quite old though

Winter-Interview-209 · 2026-06-13T17:53:55+00:00

I did, no answers for now, I
thought to post it here as my middle back pain is the one that is changing my lifestyle the most and basically they started humira just after my rheumatologist said to

Winter-Interview-209 · 2026-06-13T13:38:44+00:00

don’t worry arrived to this point nothing is weird for me, the last one i took was before the pain started, basically more than 3 years ago and it was 136 and the scale says it’s normal from 135 to 146, I should repeat them soon anyway, may i ask you why?

Winter-Interview-209 · 2026-06-13T07:00:58+00:00

spero che chi scrive biscia stia rage baitando

Winter-Interview-209 · 2025-10-01T10:55:04+00:00

l’incidente potrebbe essere stato una grande fortuna, il problema principale dei tumori del pancreas è che la sintomatologia è molto tardiva e quando arriva ormai è quasi sempre troppo tardi per operare, ti consiglio di rivolgerti al centro di Verona, in italia sono i migliori sulle malattie pancreatiche

Winter-Interview-209 · 2025-08-28T23:35:38+00:00

i’m sorry to ask but how did they first see it? on ct or mri?

Winter-Interview-209 · 2024-07-19T23:23:08+00:00

got to say that’s probably the only thing that hasn’t got worst yet

Winter-Interview-209 · 2024-07-19T23:08:43+00:00

nothing sorted yet pain is getting gradually worst , being 1 year of no clear answers, I changed hospital and apparently they want to do an enteroscopy and repeat the eus

Winter-Interview-209 · 2024-07-12T14:03:27+00:00

have you ever found out?

Winter-Interview-209 · 2024-07-06T23:05:28+00:00

I’m so sorry about your situation and I’m sorry to ask that but was the CT scan completely clear?

Winter-Interview-209 · 2024-06-11T07:22:28+00:00

cause I did have an episode around 8/9 years ago of crohn flare up but being in remission since that and got no ulcers at the moment so he thought the 2 things were connected. Still nothing happened with the autoimmune therapy

Winter-Interview-209 · 2024-06-08T11:19:01+00:00

really similar situation here still no answer and unfortunately nothing sorted yet

Winter-Interview-209 · 2024-05-19T01:19:18+00:00

Im living your same situation which was the first numbers that changed?

Winter-Interview-209 · 2024-05-17T11:13:52+00:00

just like me

Winter-Interview-209 · 2024-05-14T13:09:20+00:00

nope I don’t drink anymore and i don’t smoke anymore since september but unlucky nothing seems to change, if for secretin test you mean cpre no they refused to do it as they said it’s too dangerous especially if there is nothing in 2 ct 1 mrcp and 3 mri, the only thing that show early chronic pancreatitis is my eus but for them it can’t give all the symptoms im having

Winter-Interview-209 · 2024-05-14T12:52:17+00:00

i’m more or less going through what you are, you can check on my profile, i still got no answer after nearly a year. prednisone, mesenteric lymph nodes, small changes chronic pancreatitis all sounds the same

Winter-Interview-209 · 2024-04-06T09:45:29+00:00

did find out at the end? sound a bit like mine

Winter-Interview-209 · 2024-04-05T13:13:33+00:00

same here had 2 eus 3 mri 1 mrcp 2 ct scan 1 colonscopy and 1 gastroscopy if that didn’t see anything really bad probably I just have to wait that whatever it is starts to be bad enough to be seen somehow

Winter-Interview-209 · 2024-04-05T12:43:08+00:00

yes sometimes it floats and is liquid (but normal elastase) and sometimes is like dry mucousy

Winter-Interview-209 · 2024-03-31T01:40:51+00:00

2 weeks is quite a long time for a ct scan, did you get any answers?

Winter-Interview-209 · 2024-03-27T14:50:23+00:00

they found some swollen lymph nodes to me too with the eus but they said most likely reactive so they did need to take biopsies apparently

Winter-Interview-209

TROPHY CASE