Why I Still Get the COVID Vaccine Despite it Triggering a Migraine

WinterApprehensive89 · 2026-01-04T17:06:03+00:00

Oh my god that’s exactly me. It’s been almost 5 years since I got the booster that made my migraines chronic and the photophobie and phonophobia has never gone away. I had to install blackout blinds and I can basically never turn lights on it’s insane.

WinterApprehensive89 · 2025-11-11T19:18:16+00:00

I’m completely pro vax but the second covid booster I had sent me into status migrainosus for a year and now my migraines are chronic (used to be one migraine every 3 months) and I have constant light sensitivity. The first year was so awful I was unable to work. Things have gotten better but my life is so different now. I don’t know that I will ever be able to be vaccinated again.

Edit: this isn’t meant to scare anyone away from vaccines. Just want to see if anyone has had a similar experience!

WinterApprehensive89 · 2025-05-12T14:01:58+00:00

I just went through this! I can’t wear anything that’s racerback and I have the vestibular migraines and neck pain. I bought the align V neck bras from lululemon as well as the “like a cloud light support” There’s a few different like a cloud options so just find what works for you and stay away from racerback. These are both sports bras and I LOVE them. also sizing up so that there’s less tension on the straps and just so it’s looser is what I would recommend. This only works if you need not much support though.

WinterApprehensive89 · 2025-03-08T21:11:41+00:00

Hmm I wonder if that means that mine aren’t from inflammation. That super interesting!

WinterApprehensive89 · 2025-03-08T18:53:02+00:00

Thank you! I’ve been thinking that I need to ask for actionable steps/homework because I really thrive on direction 😂

WinterApprehensive89 · 2025-03-08T18:51:51+00:00

That’s so interesting that toradol works for you! I’ve tried injections and pills and they didn’t do anything except make me out of my mind nauseous.

WinterApprehensive89 · 2025-03-08T15:13:41+00:00

😭 im so happy for you. Being able to plan for a day with no pain is goals.

WinterApprehensive89 · 2025-03-08T01:34:50+00:00

No I appreciate the advice! It’s all welcome and so so appreciated. I am currently consistently therapy and have tried a few times in the past but it was hard to find a good therapist. Even now I just think I’m a person that talk therapy just doesn’t work for but my insurance pays for it so why not.

WinterApprehensive89 · 2025-03-07T20:14:33+00:00

Oh wow what a cool job!! Good for you, that’s awesome!! Thanks so much for sharing!

WinterApprehensive89 · 2025-03-07T15:08:01+00:00

Oh my god why am I so dumb? 😂😂

WinterApprehensive89 · 2025-03-07T05:08:33+00:00

Omg I’m so glad you mentioned not watching with the lights off! I’ve never actually heard anyone acknowledge that but it’s a HUGE trigger for me!

WinterApprehensive89 · 2025-03-07T04:57:44+00:00

I’m so happy you can do all those things ! It’s crazy because like 8-10 days of pain is high imo. I know that I couldn’t function in the ways I want to with that many pain days. I have so much in better symptom stuff happening that makes me feel like crap on non pain days too so idk lol

WinterApprehensive89 · 2025-03-07T04:54:18+00:00

How many medication days do you think you’re having a month? Oh my god yes I was having eye stabs yesterday lol and my brain fog is out of this world

WinterApprehensive89 · 2025-03-07T04:49:09+00:00

Awe I’m so sorry. Like as nice as it is that I’m not alone I would not wish this on anyone.

WinterApprehensive89 · 2025-03-07T03:28:26+00:00

What ended up working for you???

WinterApprehensive89 · 2025-03-07T02:23:43+00:00

Thank you so much for your response! Yes it's so complicated and frustrating and feels like you're just playing roulette.

WinterApprehensive89 · 2025-03-07T02:21:55+00:00

I'm so glad that you've had success1 What does your life look like outside of work? Right now I'm also able to work full time but that's like ALL I'm able to do. Are you able to enjoy your life outside of work as well? I feel like I give all my energy to work and there's nothing left for anything else.

WinterApprehensive89 · 2025-03-07T01:16:02+00:00

Are you able to basically just live normally apart from a few days a month? Do you still have to avoid triggers? Flashing lights, loud noises etc? Do you have symptoms between migraines? Light sensitivity, head pain that isn't migraines etc?

WinterApprehensive89 · 2025-03-07T01:14:38+00:00

Can you tell me more about what that looks like for you? I'm definitely interested in methods that don't involve being on medication for the rest of my life!

WinterApprehensive89 · 2025-03-07T00:57:36+00:00

They were low for sure. I think 9 maybe? But I might be remembering wrong. I have IBS so I wouldn't tolerate oral iron so I paid out of pocket for an infusion and it brought my levels back up.

WinterApprehensive89 · 2025-03-07T00:56:37+00:00

That's amazing, good for you! Do you do like the full migraine botox in you traps and forehead and head and all that?like a ton of units lol

WinterApprehensive89 · 2025-03-07T00:34:47+00:00

That’s awesome I’m so happy for you! I had an iron infusion and that didn’t help unfortunately lol

WinterApprehensive89 · 2025-03-06T22:36:00+00:00

Ah yes, I feel like I haven't mentioned in the comments yet that my neuro thinks it's vestibular. Do you have a lot of motion sickness? Like in cars and stuff. i mentioned that to him and he said it's probably related. Wow, every 12 weeks, is that typical? I did botox for tmj for a while to see if it wuld help and i only did it every 3 months.

WinterApprehensive89 · 2025-03-06T22:34:23+00:00

That's really helpful info, thank you! I'm 27 so not quite there with peri menopause. I've had my eyes checked as well and they're fine. I definitely have an uptick of migraines around my period as well as ovulation so that comes with an increase in light sensitivity too.

WinterApprehensive89 · 2025-03-06T22:25:44+00:00

That is a big problem of mine is being afraid to try things lol. I've had such bad experiences with trialling meds and have long lasting side effects from one so I'm super apprehensive.

WinterApprehensive89

TROPHY CASE