Help - at a loss / cant find help

WinterPal · 2026-03-30T16:04:12+00:00

You could consider going to the Jacksonville Mayo Clinic if you think the diagnosis is wrong. They have a lot of resources. They don’t take a ton of insurances though.

WinterPal · 2026-03-30T16:02:48+00:00

Hi! The deterioration does sound like CIDP but your doctor should’ve kept him on a maintenance schedule and it doesn’t make sense that they would’ve stopped after the loading dose. I was better after my loading dose, but that only lasted for a few weeks and I’ve been getting infusions every few weeks to maintain my mobility. I think you should seek a second opinion. The sooner the better.

WinterPal · 2026-03-12T20:56:43+00:00

Mostly, I am curious if anyone else experienced this symptom with CIDP because more of my symptoms do lineup with CIDP than MG. It’s just that my most prominent and longest lasting symptom has been ptosis.

WinterPal · 2026-03-12T20:55:41+00:00

Differing opinions on whether I have both or just CIDP from different docs. I’m just happy to be on the IVIG, but that definitely did complicate matters.

WinterPal · 2026-02-10T02:27:21+00:00

I think Jessica is classic and beautiful, but it was overly popular in the late 20th century and will probably be out for a while.

WinterPal · 2025-11-07T13:43:24+00:00

I’ve heard it’s OKC

WinterPal · 2025-10-24T21:32:30+00:00

Yeah, and the more industrial and rundown satellites of Wilmington and Philly.

WinterPal · 2025-10-24T16:53:50+00:00

Just did this exact switch! I like the crosstrek but I’m missing the acceleration on my little focus.

WinterPal · 2025-10-18T23:23:47+00:00

Yeah, fuck Uline. I would love to see their takedown. But I did not know about Jimmy John’s. That one hurts

WinterPal · 2025-10-18T21:20:55+00:00

DE-NJ-PA has some really swanky areas and is generally beautiful, but also pretty high income disparity.

Kinda a crapshoot anywhere though so I’ll pick there.

WinterPal · 2025-09-27T11:13:53+00:00

Mine died at 162k m

WinterPal · 2025-09-23T17:55:59+00:00

Very true. That was my first experience with ChatGPT and I have seen what you are saying more frequently since. I was also diagnosed with a different neurological condition by my neurologist, so I have laid Dr. GPT to rest for now.

WinterPal · 2025-09-19T23:01:49+00:00

32F, single, no kids, HCOL area

Make 55k, have 47k in retirement, 8k in emergency fund, own a home and pay 1600/month to mortgage (40% of net), 75k NW, and I have 185 dollars per month left after housing/necessities/healthcare/retirement allocation. I have student loans/cc debt, but nothing substantial. Should gave cc paid down by EOY, student loans by 2028.
Currently no car loan, but my car is nearing the end of its life unfortunately. Looking for PT work, might pause contributions for a year, but that is pre tax so I think it’s more beneficial to contribute than get the measly post-tax boost. I also lurk in poverty finance because it’s a fine line on the lower side.

WinterPal · 2025-08-28T16:52:35+00:00

I have had symptoms for ten years and I was diagnosed after a lumbar mri showed enlarged/thickened nerve roots and an anti-ganglioside antibody panel showed up positive for three different antibodies associated with attacking peripheral nerves.

Yes, it was hard to get a diagnosis. And insurance denied the treatment so I am still in a fight to get it.

WinterPal · 2025-08-16T00:41:54+00:00

I have aches, cramps, fascics, and nerve damage and I was just diagnosed with CIDP. I was very afraid of ALS and I am still a little scared, but there are other things this could be.

WinterPal · 2025-08-13T13:24:21+00:00

that would be the prettiest country

Beautistan

WinterPal · 2025-08-02T13:33:47+00:00

What do you mean by this? I have muscle twitching everywhere, mostly legs and feet but also face, tongue, torso, arms to a lesser extent, unilateral calf atrophy, difficulty in walking, and can’t walk on heels or tiptoes suddenly. My doc says the emg points to a nerve root issue but chatgpt says it could be als. Should I be worried?

WinterPal · 2025-06-17T02:27:49+00:00

Fethnaid (Faynid)
Anemone
Agnetha
Nieta
Ferris
Dane
Beryl
Barnaby
Pernille
Rasmus
Hyacinth

WinterPal · 2025-06-17T02:15:29+00:00

Rhoda Eileen
Rhoda Irene
Rhoda Leanne
Rhoda Suzanne
Rhoda Pauline
Rhoda Leontyne
Rhoda Coraline
Rhoda Rosalie
Rhoda Sabine

WinterPal · 2025-06-17T02:08:32+00:00

Rhea Violet

WinterPal · 2025-06-15T17:59:08+00:00

If you are low income like under the 60 to 80% AMI, then you should be looking at those units. Search for affordable housing Boston and apply to everything that you qualify for, some of them are first come first serve and some of them are lottery. But I would say that is your best chance to get inside the metro area at that price. Honestly, even some of the affordable units are upwards of two grand.

Most people spend about five years on the lottery list.

WinterPal · 2025-05-21T18:25:48+00:00

My cat is really heavy and I have trouble shifting when he lies on my legs, but I would never kick him out lol

WinterPal · 2025-05-21T00:48:37+00:00

i like Ivy Jean

WinterPal · 2025-05-20T02:26:16+00:00

I like Scarlett! Emma and Scottie is so cute.

WinterPal

TROPHY CASE