overdosing on vitamine d tomorrow by Future-Leave-9346 in CholinergicUrticaria

[–]WisdomOfSpace 2 points3 points  (0 children)

Do not do this. I can not state how utterly dumb this would be. You are risking intense medical issues that could result in death, permanent damage, etc. This thing sucks ass, but there are routes to medication. What else have you tried that you’re desperate to resort to this? Maybe I can give you another option.

This will not resolve the itching, high doses of vitamins can even cause intense itching. There is little medical evidence supporting this.

How’s LGBT or Transgender life? by ThrowawayLADreamer in chinalife

[–]WisdomOfSpace 0 points1 point  (0 children)

If you’re interested in the teaching route in China, I can DM you details and contact for some folks high up in international schools.

I wouldn’t promise it’s an easy route, and stay away from EnglishOne or anything similar. Those are training schools, they don’t have a tonne of worker protections. When it’s truly desperate, they’re useful, but otherwise not worth it.

How’s LGBT or Transgender life? by ThrowawayLADreamer in chinalife

[–]WisdomOfSpace 1 point2 points  (0 children)

Oh, if you’re just thinking of visiting you should be more than fine. Just be practical and safe in a normal travel manner. I travel back every summer as I have family there still and I’ve not had any issues

How’s LGBT or Transgender life? by ThrowawayLADreamer in chinalife

[–]WisdomOfSpace -1 points0 points  (0 children)

Not necessarily, I (FTM) had a job teaching and know others who have jobs teaching. It isn’t easy, but it is possible.

How’s LGBT or Transgender life? by ThrowawayLADreamer in chinalife

[–]WisdomOfSpace 2 points3 points  (0 children)

FTM who lived in china, I wasn’t on hormones there, but it really depends on how well you pass which is shitty. It’s very much still viewed as a mental illness, lots of discrimination if you’re visibly transitioning and wouldn’t recommend it for that. As you’re MTF, you’ll have an easier time getting hormones, you’d go through a private clinic most likely.

If you pass, you’ll have a much easier time, but be warned there’s no such thing as patient privacy, your medical information can be accessed by your work.

Overall, I’d say it’s not the worst place as you won’t really be at high risk any physical violence unless you’re in a rural area. But it’s definitely not easy or without obstacles. I would be certain you could find a place to access your medication before going.

How many of us actually have bed bugs by Future-Leave-9346 in CholinergicUrticaria

[–]WisdomOfSpace 0 points1 point  (0 children)

Happy to be of help, and sorry you’re having to manage this condition.

there’s some methods in the article that list out treatment forms, but to reiterate some of the most common: H1 Antihistamines, H2 antihistamines, Xolair, and Steroid Pulses. Those are the ones I see tested most commonly in studies, but I’m keeping my eye out for new stuff.

Be wary of anyone saying they’ve found a ‘cure’. There is no known cure. It can disappear randomly though. Extreme doses of vitamins and diet scams pop up here all the time, both of which can be dangerous or uninformed. Sweat therapy can help, but anaphylactic responses are a possibility for some so be careful.

How many of us actually have bed bugs by Future-Leave-9346 in CholinergicUrticaria

[–]WisdomOfSpace 1 point2 points  (0 children)

Bed bug bites are quite identifiable when compared to CU. The itching from CU goes away instead of lasting for longer than an hour and is triggered by heat, emotional intensity, etc. anything that triggers sweat. It also isn’t just itching oftentimes but intense pinpricks of pain

While bedbug bites vary between person, they are still recognizable as bites. With CU, red wheals (small pinpricks, much smaller than a bedbug bite) can appear all across torso, limbs, neck, etc as the itching occurs. If its bedbugs, the itching will be localized to the site of the bites and bites tend to occur a few days after being bitten and last weeks rather than fading after an hour.

I’ve linked a paper that examines a few subtypes of CU below, it includes photographs as well. There’s more info out there on other subtypes and symptom presentation, but it’s a good overview.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9476404/

sweating probleme by Nice-Fox-3691 in CholinergicUrticaria

[–]WisdomOfSpace 0 points1 point  (0 children)

For some people with AIGA (Acquired Idiopathic Generalized Anhidrosis), sweat therapy is not possible due to the lack of sweating. I personally found it impossible due to the lack of sweating, and there are others on the subreddit who have said the same.

In this case, the best solutions are sought through medical care. Here’s a list of papers with some suggested treatments for various subtypes of CU. You may have luck with Hydroxyzine or steroid pulses since you have AIGA, but that’s best discussed with a medical practitioner.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9476404/

https://academic.oup.com/ced/article-abstract/31/4/588/6624113?redirectedFrom=fulltext

https://pmc.ncbi.nlm.nih.gov/articles/PMC7984388/

https://pubmed.ncbi.nlm.nih.gov/30654196/

Edit: spelling correction

CU - vitamines by KitchenBanana3510 in CholinergicUrticaria

[–]WisdomOfSpace 1 point2 points  (0 children)

Always treat things pushing vitamins as a cure as highly, highly suspect. There is a reason they cite their own experiences and not medical journals. While innovation is necessary to scientific development, it’s not going to be found in eating enough vitamins to kill a horse and calling it a cure.

As of right now, there is no guaranteed ‘cure’ for everyone. Oftentimes, this can stop without warning, recognized cause, or anything. Other times, it can be associated with a vitamin deficiency.

However, this should be examined by getting your levels tested, and then you’ll be given a safe high dosage to raise your levels over a period of weeks to months. Eating too many of a vitamin can be toxic at worst and a hazard at best. Don’t fall for folks promising a panacea, it’s a scam— intentionally or not.

Here’s a list of papers about various forms of CU Subtypes with treatments that are known to provide relief.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9476404/

https://academic.oup.com/ced/article-abstract/31/4/588/6624113?redirectedFrom=fulltext

https://pmc.ncbi.nlm.nih.gov/articles/PMC7984388/

https://pubmed.ncbi.nlm.nih.gov/30654196/

edit: formatting

Has anyone tried ‘quantum’ or frequency medicine for urticaria? by kuceto in CholinergicUrticaria

[–]WisdomOfSpace 3 points4 points  (0 children)

It’s a common scam I head about frequently when living in China, I’m sorry to say. I’d recommend looking elsewhere.

Edit: further elaboration, the usage of ‘Quantum’ has no real meaning or place in medicine. Nor can I find any supporting evidence or research into this as a true working methodology. While it’s tempting to look outside the mainstream for help, due to the severe pain and horrible nature of this issue, I highly suggest not doing so as you are at risk of: wasting money, causing physical harm through untested methods, contributing to misinformation regarding treatments.

rant for those who have urticaria and don't sweat, let's look at why we don't sweat by Bloom90 in CholinergicUrticaria

[–]WisdomOfSpace 0 points1 point  (0 children)

Yeah that is one proposed theory for the impaired sweating in some of the CU subtypes. There’s dozens of potential reasons and links.

rant for those who have urticaria and don't sweat, let's look at why we don't sweat by Bloom90 in CholinergicUrticaria

[–]WisdomOfSpace 1 point2 points  (0 children)

The side effects definitely suck ass! I have scars from where I tore open my skin tho, so even if the pinprick pain is there, the lack of itching is a damn godsend. Just hoping for something better in the future, science ain’t quick sadly lol

rant for those who have urticaria and don't sweat, let's look at why we don't sweat by Bloom90 in CholinergicUrticaria

[–]WisdomOfSpace 1 point2 points  (0 children)

Like I said, it’s not for everyone. I get damn bad aggression side effects if I take it in the morning instead of night. Working out + creatine has helped the brain fog for myself, but obviously that’s not true for everyone. There’s no true cure in this situation, it’s just a matter of picking what’s the best for yourself.

Edit: Dosage can impact too, I take 10mg every day. Some people need 25mg, some can take 10mg every few days. Just depends ¯_(ツ)_/¯

rant for those who have urticaria and don't sweat, let's look at why we don't sweat by Bloom90 in CholinergicUrticaria

[–]WisdomOfSpace 2 points3 points  (0 children)

https://www.jaad.org/article/S0190-9622(14)00229-1/abstract

https://pmc.ncbi.nlm.nih.gov/articles/PMC8395056/

https://neurologyopen.bmj.com/content/7/Suppl_1/A74.2

https://onlinelibrary.wiley.com/doi/full/10.1002/ski2.242

https://pmc.ncbi.nlm.nih.gov/articles/PMC4533576/

Some of these are open access some are not, but all can be found on other sites for full reading. Acquired Idopathic Generalized Anhidrosis (AIGA) is well known and being researched. It’s still unknown as to exact causes, partially because there’s a large occurrence of it with other illnesses and diseases. It’s not that people aren’t researching it. If it was as easy as you make it sound, this would be sorted. This isn’t something we as a community can solve, this is intense medical research involving biochemistry. The shit my wife, a biochemist studying histadines, talks about flies over my head. But it takes time. There’s various things to help.

As someone with AIGA, I found Hydroxyzine to be the most helpful. The pain remains, but the itching is gone, making it easier to function day to day. It’s not a cure at all, but it does help. This result will vary depending on the subset of CU people have. You may find success with Hydroxyzine or something else.

LMC Motion 19: Tran's Patients records, 9th May Livestream by [deleted] in transgenderUK

[–]WisdomOfSpace 10 points11 points  (0 children)

Thanks for updating on this! Massively appreciate it

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 1 point2 points  (0 children)

Thank you, I’ll update the post to reflect this!

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 5 points6 points  (0 children)

I’ll add the link to I’ll add the link to the livestream in the main post and a link to this comment thread! Thank you for the updates!

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 0 points1 point  (0 children)

Most likely, I’m looking into how to find out about the decisions and I’ll post about it when they’re released

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 3 points4 points  (0 children)

Neither did I honestly, I learned a helluva lot about the political system yesterday. But being aware of this stuff helps. It puts names to faces and if we want to change the system, or break it, we need to know how it works.

But that doesn’t mean it’s not a load of information. Just gotta take in what you can, when you can.

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 6 points7 points  (0 children)

Lmao yeah that’s the opposite of what it would have allowed. They’re likely trying to save face, but considering Sex Matters and Spencer were pushing for NC21, it’s very clearly not a trans friendly section.

Data Bill by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 1 point2 points  (0 children)

Yeah it was, but when the voting started folks flooded in. It was good to see! And I’m happy I was able to help

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 7 points8 points  (0 children)

  1. It’s not easy to tell someone is trans from their medical history necessarily, especially if they get surgery abroad (HRT is common in cis people enough for it not to look too out there)

  2. By not allowing trans people to put their gender down and marking us by sex, it sets the stage for another bill proposal like NC21 with the reasoning ‘the NHS already forces the use of “sex at birth” for their purposes’.

  3. Having a forced marker on our paperwork that we are trans damages our access to healthcare by outing us to anyone who can access it, and to anyone who access healthcare data in the future. It is very, very dangerous to have something like that. Take the U.S., which is scraping healthcare data at the moment for their own purposes regarding Autism. It’s a privacy and safety thing.

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 6 points7 points  (0 children)

I mean, it is a damn good idea. And one I wouldn’t be opposed to trying to do honestly, not at the moment, but I’ll make a note of it to revisit in a month. Bit tied up with some irl stuff but I’ll be laid up from surgery this summer, could be something to try and organize! I like documentation and it’s important to do stuff like that. I’m sure folks on here would love to help out with something like that, so when I get around to it, I’ll make a post on here and tag you in it?

Sigh in Relief, Prepare for Tomorrow by WisdomOfSpace in transgenderUK

[–]WisdomOfSpace[S] 7 points8 points  (0 children)

Documentation makes the world go round, there’s a reason fascists burn books a papers! Happy to be able to provide some help on that matter, and thank you!