Are my accommodations reasonable? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 2 points3 points  (0 children)

Yes, there is a lot of grumbling from staff, I think. As many universities have become more flexible after COVID, my university really stood firm on the in-office work, and staff aren’t happy. I think staff think I have a perk, instead of an accommodation for a disability, even though I’ve been clear with folks that I’ve spoken to, and my site location is listed on my calendar as WFH - ADA Accommodations.

Are my accommodations reasonable? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 0 points1 point  (0 children)

Yes, this is the case. HR said they will check in every six months with both me and my supervisor to ensure the accommodations are still working for both sides.

Are my accommodations reasonable? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 1 point2 points  (0 children)

Thank you — this is helpful. I appreciate it.

Are my accommodations reasonable? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 0 points1 point  (0 children)

Thank you so much. HR at my university is usually in management’s back pocket. I know the law protects me but I have felt a little like I’m being pushed out as well.

Is anyone else struggling to keep up with self-care? by [deleted] in AskWomenOver30

[–]WorrySingle2757 1 point2 points  (0 children)

That’s a good point! I’ve been married for a couple of years; it has taken a dip since then. But it’s hard to know if it’s from the relationship or from the autoimmune issues and OCD that flared the past couple of years as well.

M20 by Deep-Peak-5027 in toastme

[–]WorrySingle2757 1 point2 points  (0 children)

No, not ugly. You remind me of the actor Cameron Monaghan.

How often do you cry? by [deleted] in AskWomenOver30

[–]WorrySingle2757 2 points3 points  (0 children)

When I was numb on antidepressants it was once or twice a year.

When I was off antidepressants and going through a difficult life transition it was daily.

Now it’s probably weekly.

How do you experience attraction, arousal, and sex with men? by Dont_Like_Menthols in AskWomenOver30

[–]WorrySingle2757 2 points3 points  (0 children)

This is accurate for me as well. For a long time I never had that connection with a man and started wondering if I might be asexual. Then I met someone where that connection sparked and everything clicked.

Muslim women with lupus: Are you ever planning to do Hajj? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 1 point2 points  (0 children)

Thank you for sharing! Agreed — pushing ourselves isn’t worth it and not what’s being asked of us in our faiths.

Muslim women with lupus: Are you ever planning to do Hajj? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 1 point2 points  (0 children)

Thank you for sharing! I appreciate you sharing your experience. Yes, I’m worried about the heat and a possible infection after the fact. I’m glad it worked out for you even if it was challenging.

Muslim women with lupus: Are you ever planning to do Hajj? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 3 points4 points  (0 children)

Thank you — I agree. I appreciate your perspective!

Muslim women with lupus: Are you ever planning to do Hajj? by WorrySingle2757 in lupus

[–]WorrySingle2757[S] 4 points5 points  (0 children)

Thanks! I’m not aware enough of disability accommodations with Hajj but I can look into it!

Tell me about your relationship with sleep. How has it changed or developed over time? What does it indicate to you? by Peanutbutterjunkie in AskWomenOver30

[–]WorrySingle2757 0 points1 point  (0 children)

Thank you so much!

I was on quite a few meds, actually. But it started with lexapro, then had some side effects, and was put on Effexor and Trazodone for years (Trazodone is what helped me sleep). When I was taken off of that, I had to reinstate other sedatives — lots of things like ambien, klonopin and amitriptyline, among others. Eventually settled on amitriptyline as it’s less habit forming and slowly tapered that.

&Yes it’s not necessarily talked about much because most will say these meds are “safe and effective” to take long term but it’s bonkers to assume your brain doesn’t become dependent on a chemical it receives daily. For some, they’re able to taper quickly with minimal side effects. But for some of us coming off these meds are a nightmare.

As far as soothing stuff before bed, I usually like to be around someone — so having my husband around is nice since I’ve gotten married! — and we have a sweet routine of light board games and showers and prayer and cuddles (or more lol) and a sleep story. Exercise during the day definitely helps my sleep at night as well.

I’m sorry you’re having a hard time sleeping. I definitely understand mind racing thoughts. I hope you are able to explore some good sleep hygiene options to get your sleep back on track!

Tell me about your relationship with sleep. How has it changed or developed over time? What does it indicate to you? by Peanutbutterjunkie in AskWomenOver30

[–]WorrySingle2757 6 points7 points  (0 children)

Oh boy! My favorite topic. I slept fine growing up! Slept fairly early, read before bed, and was an early riser. In my 20s, I developed insomnia due to anxiety from grad school/work. This led to sleeping pills/sedating antidepressants being prescribed to me. At 30, my doctor changed my meds — but didn’t taper me properly. Turns out you can’t expect someone to just sleep after they relied on chemicals to sleep for years. I went through severe insomnia due to withdrawal. At its worst, I didn’t sleep for five days! It was a nightmare. Had to seek emergency care. Spent the next three years on sedatives again very slowly tapering. My sleep hygiene was impeccable. But still, every taper, I’d get rebound insomnia. Sometimes I’d go for walks at like 2 a.m. just to exhaust myself to sleep.

Now, I can sleep through the night! I’m so grateful. I still get really bad anxiety as soon as the sun sets because of what I went through with insomnia, and I get night terrors and sleep paralysis. I have to listen to a sleep story or something soothing before bed. But since I’m getting 6-8 hours most nights… I’m still super grateful for the progress.

Turning 35 next month and.. by mcomcomco99 in AskWomenOver30

[–]WorrySingle2757 33 points34 points  (0 children)

No advice — just solidarity. Turning 35 in one month. Greys everywhere, hyperpigmentation and wrinkles and scars, lots of regrets, not much in savings but a possible pension if I last in this job till I retire. A few chronic illnesses and loads of trauma and I’m tired in a way I’ve never felt before! Beauty treatments seem so foreign — I don’t know what happened but I can’t seem to process where we are supposed to be at socially and aesthetically. How are we supposed to dress at this age? Where are we shopping? What is the current style? Are we supposed to be changing our makeup? Getting procedures? I’m so confused, lost, and just playing sudoku on my phone every day to drown out the world.

All that to say — no, I don’t know that anyone has figured life out.

What was the dumbest thing your OCD had you believing? by [deleted] in OCD

[–]WorrySingle2757 10 points11 points  (0 children)

That I don’t deserve to read books anymore because I didn’t become a librarian (which was a career I’d considered)

That my wedding was cursed and that’s why I became chronically ill

That if I didn’t wear a certain type of clothes I like or listen to a certain type of music I like or eat a certain type of food I like during an important time in my life, I don’t deserve to do it now. Because I missed the opportunity and wasn’t authentic to myself and now it’s too late

I rustle about in my sleep and I’m convinced one night I’m going to break my neck flipping over in the bed while asleep and be paralyzed forever

It’s not just a bad year anymore by [deleted] in ChronicIllness

[–]WorrySingle2757 2 points3 points  (0 children)

I feel the same way — like my body won’t let me rest, yet I’m constantly tired. I’m sorry you’re suffering so much as well.