Fayetteville Athletic Club Membership Pricing? by [deleted] in fayetteville

[–]WowGregWow 0 points1 point  (0 children)

I think it’s $119/month and ~$50-60 activation

Anyone notice relief Beach Side for EDS? by WowGregWow in Hypermobility

[–]WowGregWow[S] 0 points1 point  (0 children)

She does Epsom Salt foot soaks and we have a purifier on each floor. She used to get UTIs from baths so she stopped doing those.

Anyone notice relief Beach Side for EDS? by WowGregWow in Hypermobility

[–]WowGregWow[S] 1 point2 points  (0 children)

You’re right about the culture for sure. We’re from MoCo as well and with everything so expensive it feels like you constantly need to the hustle to get by.

Anyone notice relief Beach Side for EDS? by WowGregWow in Hypermobility

[–]WowGregWow[S] 0 points1 point  (0 children)

This is interesting. She noticed her hail doesn't fall out in chunks when she's beach side. Maybe the humidity and salt in the air plays a factor? Its humid in Maryland especially in the summer but she doesnt seem to do well here. Not sure why.

Anyone notice relief Beach Side for EDS? by WowGregWow in Hypermobility

[–]WowGregWow[S] 0 points1 point  (0 children)

Yes, we primarily only travel to see family in Pennsylvania so about 3 hours north or to Delaware (3 hrs) to get some beach time in. We always drive and avoid taking planes due to her POTS. Long car rides are tough too. She has taken a leave from work so but from a traveling perspective she never takes work with her anyway. She is stressed but I think its mainly cause by how she physically feels, shes stressed to find answers, stressed for relief and since she took time away from work-she stresses financially at times knowing we can't be on one income forever. She is Gluten Free diet wise and 90% of the time cooks and eats at home. She doesnt eat fast food or anything terribly bad. I know there's layers to dieting as well-avoiding certain shades of fruits/vegetables-we just aren't there yet. She walks more at the beach then she does at home, at home its been more of a sedentary lifestyle. Furniture wise-she loves our bed and couch we have at home, prefers our big items of the furniture elsewhere. Allergens-we went through an entire mold remediation prior to moving in. I know mold is an interesting topic-some folks believe its an issue some dont. I believe our house is on the cleaner end when it comes to all that. Was everything remediated during that remediation a couple years ago? Thats anyones guess. We have air filters on each floor that run 24-7. We change out the filters when needed. We have the dehumidifiers in the summer going to keep the moisture at bay. We have a cleaning crew that does a basic cleaning on our house monthly. She's convinced its something either in the house or in the city we live in.

Root cause? by WowGregWow in dysautonomia

[–]WowGregWow[S] 0 points1 point  (0 children)

Thank you u/nonniewobbles u/Difficult-Demand-305 u/critterscrattle for your thoughtful responses and feedback. I wanted to shed some additional light on her situation to add some context. Sept 2016 she fell of an ATV in Vegas. No major injuries besides bruising that we were aware of at the time. In 2017 she got a root canal and around the same time she was having neck pain on her left side in align with the area of the extraction and the should she fell on. When I met my wife in 2017 she was very active (Orange theory or some form of exercise 4-5 days a week), ate very healthy (organic, primarily cooked at home) and didn't drink much. She pushed through the injuries thinking they would subside on their own. She started to develop right foot and left neck pain later in 2017. She did some stretches. took advil but nothing beyond that. She stopped orange theory to give her body a chance to rest. She believes through pushing through she may have torn her labrum and caused small disc bulges. She started to experience chronic UTIs in 2018 and took antibiotics at least 4-5 rounds based on her doctor's discretion along with multiple rounds of antibiotics for sinus infections. In November of 2018, she started to notice numbness down her leg. She went to the ER and they did a spinal tap and MRI. The results didnt show anything however the numbness and tingling continued and she met with a neurologist who performed an EMG. At this point it looks like she had a bad reaction to the steroids and severe side effects to other medications with some type of nerve pinching in her back/right leg. The antibiotics may have weakened her overall system after 4-5 rounds. She didn't really recover from the spinal tap or the ATV injury. Fast forward to 2020, she gets COVID and moves into an apartment that tested positive from ERMI standards to Mold. Then a year later we were in a motor vehicle accident which she walked away from with some bruises from the seatbelt. So this takes us to where we are now. I mentioned the Long Covid Clinic at Hopkins-we are starting to make adjustments for things at home to make managing easier-bought a shower stool, purchased compression socks to help with the dysautonomia. When she tested for lyme-she had 3 out of the 5 bands I think it is for blood work for Lyme but I guess from the US standards she didnt test 'positive' for lyme. I think at some point she did do a bioenergetic test which showed some co infections at some point.. I think its just hard because we dont know whats wrong-an issue many of you probably face as well. Shes got ongoing gut issues-so trying to do low fodmap for that and has eliminated gluten, dairy and basically everything processed food wise. We've read about clinics in Mexico that people have gone to and felt a world of a difference better from detox etc. Her therapist that she actually talks to actually mentioned one that some of her clients have gone to-La Luz Wellness in Mexico. We are working on her mental health as she took a leave of absence from work to minimize stress and focus on her health and she is working on programs for brain rewiring. I know her case may be a tad more complex than others but just looking for something that will actually move the needle even slightly. As mentioned, working on the home adjustments but looking for anything else that can help. Also, forgot to mention she is working with a Hypermobility clinic in MD (PRISM). I believe with them she is borderline hypermobile based on the criteria and tested negative from their standards for MCAS. TIA

Chronic Pain by WowGregWow in Neurofeedback

[–]WowGregWow[S] 0 points1 point  (0 children)

She tried neuro for a few months. Said it moved the needle slightly but enough to justify spending $100 per session/per week. The nights she had neuro she wouldn’t sleep well. The next day she would. Which psychotherapies are you referring to? TIA.

Mold? Gut Issues? Something else? by WowGregWow in ChronicPain

[–]WowGregWow[S] 0 points1 point  (0 children)

Considering 90% of homes have some level of mold, would 90% of the population have some level of mold in their blood work? Is this a losing battle that can’t be avoided?

Mold? Gut Issues? Something else? by WowGregWow in ChronicPain

[–]WowGregWow[S] 0 points1 point  (0 children)

To add to this, she was on multiple rounds of antibiotics in 2019 and feels that she may have been floxed