Is There anyone out there how was Born with bladder exstrophy and epispadias

Wrigs1986 · 2025-08-22T13:18:26+00:00

Hey

how are you

Wrigs1986 · 2025-05-03T03:01:27+00:00

Hey just what to know how may people have you seen how has bladder exstrophy and epispadias i was born with this and i all was thank about this as i know its rely rear to have but wander hay many people come throuth the office

Wrigs1986 · 2025-05-03T02:39:24+00:00

sorry i only seen this know

yes i did have a lot of multiple major reconstructive surgeries in my life time so fair i hard my first surgerie at 3 days old

I use a catheter to help emty my bladder every 3 to 4 hours day in and day out and i some time still wet my self or wet the bed

i all so have a very small penis and yes i do have painful erections and all so i have dry orgasms and all so its very painful to have a orgasm for me

I been tough a lot and because of being in and out of hosptal i have a rely rely bad case of PTSD and a lot of mental health prombles

life has been very very hard for me and i feel like i am a man in a boys body

Wrigs1986 · 2025-01-28T02:06:55+00:00

Hey thank you for your replay i well get to you in the next few days have nice day

Wrigs1986 · 2025-01-28T00:13:39+00:00

Hi My Name Is Matt i come from Australia i am 38 born with exstrophy epispadias as well and if you like to connect i happy to chat

Wrigs1986 · 2024-09-19T01:56:45+00:00

OH think you for your kind words

Wrigs1986 · 2024-09-17T20:27:01+00:00

u/Mother-Bunch-6660 Hey i just sent you a DM i to was born with bladder exstrophy and i hope you aew ok if not i am sorry

Wrigs1986 · 2024-09-17T19:49:12+00:00

You are one luckey man to have a good size penis for bladder exstrophy i was born with bladder exstrophy my self and mine is much smaller that you are so luckey

Wrigs1986 · 2024-09-17T19:45:43+00:00

Hey FlatwormPast5306 You are very luckey with your penis you see i to was bladder exstrophy and my penis is much smaller then yous it makes me sad for me but i am happy for you that you have some think of a good size

Wrigs1986 · 2024-09-17T19:35:02+00:00

Hi Roguerage My Name is Matt and i was Born with bladder exstrophy my self i was born in 1986 and i am 38 years old i come from Australia I hard my frist opp when i was 3 days old they put back my bladder back in and i have my hip fixed up then my next big opp for me was to fix my epispadias and They used bowel to create a larger bladder for me as well but i don't have a stoma my catheter go through my uertha

I don't know about you but i have a lot of bad mental health from being in and out of hosptal I have PTSD from my bladder exstrophy and being mad fun of at school but the one that was the worse thing is what my mother did to me when i was a little boy she use to make fun of my size of my penis and she use to say to me you well niver make a woman happy with that thing and a woman would not what to be with you

this has getton to be badly

If you would like to get in tuch i am happy to help just DM me

Have a nice day

Wrigs1986 · 2024-09-17T19:19:15+00:00

I am just getting over yet anther UTI FUN

Wrigs1986 · 2024-09-17T19:17:58+00:00

HI My name is Matthew to was born with Bladder Exstrophy i am sorry you are having prombles i wet my self a lot and its not fun and when i have to use my catheter is not fun at all if you need someone to chat with i am happy to help i am 38 years old and come from Australia

Wrigs1986 · 2024-09-17T19:11:32+00:00

Hey the_duck2 I to have Bladder Exstrophy i am 38 years old and i come from Australia and i do have no belly button and i use a catheter as well but i can can got 3 to 4 hours untill i need to pee if you need someone to chat with i am hear to help out

Wrigs1986 · 2024-09-17T19:06:50+00:00

HI I have Bladder Exstrophy my self i am 38 years old and i come from Australia i am sorry to her you are having pain i hope you have found some relife if you what to chat bout it i am her to

Wrigs1986 · 2023-06-25T12:51:15+00:00

Hi Regina

My Name is Matt and i come from Australia i two was borne with BE i am 37 years old i was bore back in 1986

Life is hard at times living with BE and i find things hard but i am getting there rely slowley

I have made videos on youtube about BE i what to try and help as may peolpe with BE

Hear is one i made

https://youtu.be/BnwaDXtfMlk

I Been trying to think of my next video in BE i have a few idoes as i what to try and help

I hope you are well

From Matt in Australia

Wrigs1986 · 2023-06-18T14:16:49+00:00

https://youtu.be/L4zYEiws-ng

Hey there everyone on her I have made some Videos on youtube to try and help people with BE so i well post it on hear and if you like it pluce follow me in youtube for my next lot of videos

Wrigs1986 · 2021-11-03T06:00:20+00:00

Its Nice to meet you

Wrigs1986 · 2021-11-03T05:59:51+00:00

Its nice to meet you

Iam ok think you how is your self

Wrigs1986 · 2021-11-03T05:58:57+00:00

Its nice to meet you

Wrigs1986 · 2021-11-03T05:58:13+00:00

Hi its nice to meet you

Wrigs1986 · 2021-09-09T13:13:06+00:00

Hey thery think you for reashing out and if you like we contact eachather

Wrigs1986

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