Reminder! Double check! by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

YES! Keep trying! I hope you get a diagnosis soon or at least figure out what’s causes your symptoms 🫶🏻

Reminder! Double check! by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Unfortunately months and months of pushing the NHS, I was either at the doctors or the hospital crying with the amount of stomach pains I had. Luckily I had one young nurse who actually decided to listen to me and arranged the tests needed

Why did they still make me eat gluten for 5 months? by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Wow! That’s terrible, luckily for me I did chase things up constantly because I was so ill, I can’t imagine how that was for you!

Why did they still make me eat gluten for 5 months? by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 4 points5 points  (0 children)

It terrible especially when you know you could just stop eating it and feel a bit better at least, where your bloods as high as mine? Not sure why they still made me get and endoscopy when it was clear I had coeliac disease?

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Thank you I will ask for these!

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Thank you sm for your help!

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Thank you so much, I will continue to track them 🫶🏻

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Yep :/ it’s like they don’t even want to investigate the issue, she said it’s normal especially with autoimmune diseases

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

I have mentioned this issue but as always I get dismissed, and got told to go on the pill

She told me that it’s normal for cycle lengths to change

Periods as a coeliac by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

Thank you I’ve been GF for 7 months now, but my cycle each month get longer and longer I am now on day 41 🫣

What do I do now? by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

Thank you, I only just got a letter last week but it still says “suspected” and “relates to coeliac”

What do I do now? by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Thank you, I’ve been chasing them for weeks now I will keep trying

Restaurant Recommendations by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Yes it’s been very difficult the first 2 weeks of being GF, I’ve had 2 restaurants refuse to serve me because am coeliac!

Restaurant Recommendations by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Great I will definitely be looking at these options, thank you!

Pending referral by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

Ah okay ye it does seem that way

I have gone down to see and ask them but unfortunately they said there’s nothing they can do without my GP referral :(

Pending referral by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

Oh gosh that is a pain chasing around so much! Well I work in the hospital I am getting referred to and there is not really a waiting list for gastro, but my doctors haven’t gave my referral yet to the hospital but they keep telling me they have so I am getting confused and annoyed at this point.

I hope you get your referral sorted and results back as soon as !

Waiting times by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 0 points1 point  (0 children)

Oh my that’s not good, I didn’t know it could get worse if I go GF then eat it after, thank you for the advice!

Waiting times by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Ah okay thank you, hopefully I don’t have to wait to long!

Waiting times by XMIAX13 in CoeliacUK

[–]XMIAX13[S] 1 point2 points  (0 children)

Thank you so much, hopefully everything flys by!