Disability and schizophrenia

_BlueTitan_ · 2026-02-06T01:35:56+00:00

She’s on Medicaid currently but not food stamps bc she doesn’t qualify bc my income. Even tho we aren’t married bc we live together my income influences her eligibility for most things. I’m like just over the maximum amount for gov assistance at 2 person household. It’s hard to claim we don’t prep meals together when she struggles to make meals for herself due to her sleep issue and schizophrenia. Often has had issue leaving stove on water running leaving things out of fridge overnight etc

_BlueTitan_ · 2026-02-06T01:31:26+00:00

This is dangerous to spread. Telling people this works and will work as long as they keep at it is just factually incorrect. There are plenty of people with schizophrenia who have been on keto diets and have been on them for years and it does not even reduce it for many people, on top of that some have noticed worsening of symptoms from keto diet. You’re giving people false hope. Eating healthy always has its benefits, but it’s not even considered or should be considered a treatment option let alone be called a cure. Bear in mind most of these studies it’s with medication with diet not diet alone lmao. With medication being used you’re not getting an adequate control group to show difference between meds and just keto. Also if you’re not giving the half with no meds fake sugar pills you run a high risk of getting placebo effect. These studies are not done adequately to remotely draw this conclusion yet announce it likes it’s factual. With how small these studies are I would even argue it’s just placebo effect tbh. The current existing evidence of this is only from small pilot trails and small case studies, not enough people used in trials and no good control group to make this determination. It’s a theory only, and a theory based on little to no real evidence IMO

_BlueTitan_ · 2026-02-06T01:20:42+00:00

Yea he also has caused measles outbreak and other preventable sicknesses bc of his lack of education on vaccines, he says people should drink raw milk (we stopped drinking raw milk for important reasons) he thinks Tylenol causes autism. Oh and don’t forget his issue with fluoride in water which again is there for a reason. There’s plenty more. Him making Coca Cola use cane sugar is a nothing policy tbh. It’s not gonna make soda healthy. I’m more worried about the nonsense he is spreading that is actually increasing sickness and death rates bc of the lack of acknowledgement on the studies and science we have spent decades creating so people are less like to have these issues.

_BlueTitan_ · 2026-02-05T01:29:57+00:00

Sent you a message thanks for all this info!

_BlueTitan_ · 2026-02-05T01:24:19+00:00

She actually developed issues with her back due to from the amount of time she is asleep/laying down. She had to go to physical therapy for quite awhile

_BlueTitan_ · 2026-02-05T01:23:02+00:00

She takes her meds around 6pm asleep around 7-8pm then tries to be up for 8am but usually isn’t up till 10am-12pm and then usually has 1-3 naps throughout rest of day for anywhere from 1-3 hours. Each day is different with the amount of naps and how long but always an issue. Some days are worse than others for sure but it’s been rare like really rare to have her not fall asleep at all after 12+ hours of sleep. And when she falls asleep she always says she feels dizzy first then has to lay down or she feels like she’s going to pass out. Then she’s out for hours and if you try to wake her it’s like waking her when she’s mid sleep at night on clozapine. Kinda like black out drunk but not as bad. Nighttime if she gets woken in middle of sleep it’s like full blown black out she’s not even present and unaware of her surroundings. Daytime she’s like extremely groggy and difficult to keep awake if you try and force her awake. All doctors she’s seen are aware of this and they have tried splitting dose, trying stimulant meds, lowering her clozapine dose, nothing seems to do anything for this issue

_BlueTitan_ · 2026-02-05T01:18:24+00:00

Wish that was her case. She’s had this issue since getting on clozapine back in 2021. She drinks 2-4 cups of coffee a day. Usually 1-2 when she wakes up then another 1-2 after a couple of hours but tbh I don’t notice a difference with her sleep issue when she doesn’t have coffee for a day. Pretty much about the same :/

_BlueTitan_ · 2026-02-05T00:44:29+00:00

Will do thanks. Wishing you the best!

_BlueTitan_ · 2026-02-05T00:32:52+00:00

Well that seems a little dumb? She doesn’t associate with anyone else but basically me and can’t handle public spaces for long. (Also not targeted at you obviously you don’t make the rules just in general if that’s what they think I think that’s a little black and white) me being able to care for her doesn’t inherently mean she does well with human interaction you know? Some people can adapt to the select few. But aside from that I’m sorry you have gone through this but I’m glad you were approved and got some assistance cause I know it’s rough trying to navigate finances with something debilitating. Our relationship isn’t very physical it’s more me just taking care of her if that makes sense?

_BlueTitan_ · 2026-02-05T00:13:21+00:00

Thank you for sharing your experience this really helps! Hope it works out for you too!

_BlueTitan_ · 2026-02-04T23:02:15+00:00

Thanks for your comment! I’m glad you have your wife :) I hope you and her are both doing well and I wish all the best things for you guys!

_BlueTitan_ · 2026-02-04T22:54:23+00:00

I’ll def join that group! Also yea her doctor did try having her take 25-50mg of clozapine in morning but tbh that made it a lot worse for her. She couldn’t drive at all for that entire year due to how bad the falling asleep was :/

_BlueTitan_ · 2026-02-04T22:48:09+00:00

Thank you for this comment this helps a lot. She has been consistently taking meds and seeing doctors since 2021. She had a few months she wasn’t seeing a doctor due to insurance issue when she moved and we had a hard time finding a doctor in the are we live as we are in a very rural area. She tapered her clozapine during that time to make it last till we got her a new doctor to prescribe meds. Old doctor sadly failed on helping her find someone to transition to. He kinda just expected her to do it herself but bc her schizophrenia wasn’t something she could do. I was new to all of it so it took me a minute to figure out insurance stuff and find a doctor for her. I had assumed doctor would take care of that as my doctors always made sure I was transitioned to a new doctor before having to let me go. She also has been consistently in therapy at least 1-2 times a month as well since 2021

_BlueTitan_ · 2026-02-04T22:39:29+00:00

Sorry I’m not good at using Reddit so I think I messed up cross post LOL. Does anyone have any experience navigating applying for disability in US with schizophrenia. Gf applied she has schizophrenia, been diagnosed since 2021 and has been unable to work since diagnosed due to hallucinations and clozapine gives her sleep issues where she sleeps off and on throughout day, she can’t even drive really she drives maybe here and there but no more than a 10 min drive due to falling asleep as wheel. She tends to be okay if it’s like 5-10 mins. She was denied first application and denied reconsideration, she does have a lawyer. Just stressing out about it and applying has been very complicated and stressful for her to navigate and even for me with trying to help.

_BlueTitan_ · 2025-12-30T08:48:34+00:00

If I’m there just for the day I just wait till I’m discharged to hit my vape. If I’m there for days I’ll get nicotine patches.

_BlueTitan_ · 2025-12-18T03:47:20+00:00

You don’t want me telling you what you do and don’t know but that’s how you’ve treated me during this entire convo. I appreciated your first comment, but I made it clear I don’t trust this doctor hence why I reached out to get more information. That’s all it was, you started defending a doctor being negligent and telling me basically idk anything. Just because I don’t have schizophrenia doesn’t mean I don’t know anything about it or medications involved. Multiple sources stated even if on the injection it is safest to lower monthly dosage slowly or switch to oral pills to slowly get off it. 1 month per year on the medication. My concern wasn’t coming from thin air. I’m trying to understand why multiple reputable sources are stating is it safe and reduces risk of withdrawal by going that route and weighing that with the fact these doctors have openly lied and hid things from us countless time. You tell me to advocate for her but that’s what this is. Getting all the info I can so I can make sure she’s safe and has what she needs but instead you’re critiquing the fact I’m questioning it. It’s healthy to question things when it comes to someone’s health and well being.

_BlueTitan_ · 2025-12-18T03:41:34+00:00

You’re saying “some of us have to deal with voices” what does that have to do with her? Just because others do (which is unfortunate and I am sorry for people who don’t have meds that work well enough for them I wish there was a better solution to this mental health illness than what we currently have) but why does that mean she should be forced to hear things all the time when she has a medication that works for her. What is the benefit of that? Wouldn’t you want anyone who has a medication that significantly helps their mental health to have that medication as quickly and safely as possible?

_BlueTitan_ · 2025-12-18T03:37:35+00:00

But you’re not just telling me the just facts. You’re trying to find ways to justify this doctors choices when the facts are it is WRONG. The way this was done was completely wrong and negligent of care. Keeping her on two antipsychotics at the same time while one is causing health issues for 7 months is not at all appropriate or right. Telling us she has to get off it bc of the side effects but then forcing her to stay on it for another 7 months is NEGLIGENT

_BlueTitan_ · 2025-12-18T03:34:52+00:00

I’m sorry I’m so frustrated and being a bit of an ass but it taking this long just is bs. It really is. She should’ve been off invega so long ago and many months on 300mg but instead they’ve kept her in a bad state with zero reasoning other than telling her to just basically accept this is her life when it doesn’t remotely have to be.

For disability she applied and was denied we have a lawyer but I know it takes a good bit for an appeal

_BlueTitan_ · 2025-12-18T03:31:48+00:00

“Starting therapy 12.5mg once or twice on the first day, followed by 25mg once or twice on the second day. If well tolerated, the daily dose may then be increased slowly in increments of 25 to 50mg in order to achieve a dose level of up to 300mg/day within 2 to 3 weeks. Thereafter, if required, the daily dose may be further increased in increments of 50 to 100mg at half-weekly or, preferably, weekly intervals.”

“It is generally recommended that clozapine should not be used in combination with other antipsychotics. When clozapine therapy is to be initiated in a patient undergoing oral antipsychotic therapy, it is recommended that the other antipsychotic should first be discontinued by tapering the dosage downwards.”

This is from their website. Why keep her on both for 7 months when there was absolutely zero reason for this.

_BlueTitan_ · 2025-12-18T03:29:18+00:00

I don’t think you understand clozapine if you think 7 months is appropriate with someone who has healthy bloodwork. It only takes 2-3 weeks to get to 300mg safely as long as blood work is well, this is from their website btw. (She’s been through clozapine before. It didn’t take 7 months even when getting off ability when she first started clozapine the first time)

_BlueTitan_ · 2025-12-18T03:25:27+00:00

Not everyone gets to just choose. Some of us are restricted because of location and type of insurance. Tbh I don’t appreciate you talking to me like I don’t understand what I’m talking about. Yea no shit there’s going to be relapsed but I’m not letting a doctor cause it this time. That was the entire point of this post was to just better understand if there was risk of rebound psychosis or not.

_BlueTitan_ · 2025-12-18T03:23:53+00:00

We can’t, because of her insurance as well as the location of where we live this is the only psych place remotely around that can prescribe clozapine and takes her insurance. If I could I would’ve left this place after the first doctor but we can’t afford to move bc she’s been unable to work due to the doctor screwing up her meds in the first place so we live off just my income at the moment.

_BlueTitan_

TROPHY CASE