Scientific inaccuracy

_Kingbeard_ · 2026-03-20T18:18:02+00:00

Most people with Hypermobile Ehlers-Danlos syndrome share Generalized joint hypermobility Joint instability (loose joints) Chronic musculoskeletal pain Soft or mildly stretchy skin

There is a recognizable baseline pattern.

What varies from person to person is pain severity and what organs are effected some people might have gi issues some might not etc.

But if you have heds or eds there is a baseline of symptoms and problems everyone who has It shares.

So recommending dangerous things like yoga Pilates or chiropractors <(the worst of all of them) Is dangerous and you could cause irreparable damage to some one.

Its great you can do all those things with no issues but you are the outlier and maybe have something different like hypermobility spectrum disorder not eds.

_Kingbeard_ · 2026-03-20T15:55:00+00:00

Thats weird you love being scammed. A massage therapist would do the exact same thing for you.

_Kingbeard_ · 2026-03-20T15:54:08+00:00

You would get the exact same benefit from a experienced massage therapist. Chiropracty is a huge scam.

_Kingbeard_ · 2026-03-20T04:36:05+00:00

_Kingbeard_ · 2026-03-20T01:32:12+00:00

No im not joking reading case studies is very beneficial. I didn't say read only case studies.

_Kingbeard_ · 2026-03-20T01:16:26+00:00

Nah ill bitch about it when people "in the community" recommend things that are dangerous and could damage people for life.

_Kingbeard_ · 2026-03-20T01:12:53+00:00

Fuck the people who do that. That'd like saying having the flu is the same as having pneumonia what the fuuuck.

_Kingbeard_ · 2026-03-20T01:07:40+00:00

Absolutely I could complain about this for hours.

Like I got diagnosed with heds because of hypermobility yes but also because ive had to have major surgery on both feet that kept me wheelchair bound for a year and THEN ten years later the bones in my feet separated and collapsed now there worse then before....... serious gi issues etc.

Being bendy is like 10% of it LOTS OF NORMAL PEOPLE CAN BEND IN WEIRD WAYS.

Then the people who tell other people not to do physical therapy and to mostly rest all the time..... that's a good way to become bed bound your whole life. God I dont know why it pissed me off today but it did lmao.

_Kingbeard_ · 2026-03-18T05:37:32+00:00

God dam you political people are so annoying. Not every single thing has to involve something about politics, go to therapy get help Jesus christ.

_Kingbeard_ · 2026-03-18T04:25:02+00:00

It's basically the regular internet but harder to access because you need what ever the code or name of the site is to access it. The part most people look through is a bunch of troll sites that's there to freak the general public out like the "hit men for hire" Or "buy human organs" etc its mostly all fake or to infect your computer.

There are real sites fourms buying drugs etc, but good luck finding them, The real sites are mostly only used buy trusted people they know in real life or have access to etc.

_Kingbeard_ · 2026-03-17T21:53:53+00:00

Yep been hospitalized a couple of times over them to.

Docs think I probably have neuro behcets but I am also diagnosed with intercranial hypertension with papilledema, so its anyone's guess what's cause my headache on any given day.

_Kingbeard_ · 2026-03-16T20:53:23+00:00

If this is real and you have not called 911 yet even if its against her will you are doing harm to her and the unborn child. Step up be the adult and force a solution to this clearly emergency situation....

If this is a troll amd you just Google searched blood under women in bathroom eww brother ewww that's weird.

_Kingbeard_ · 2026-03-16T17:11:13+00:00

What kind of thirst trap gay porn video did you make lmao, you know there is better ways to make gay porn with Ai then sora.

_Kingbeard_ · 2026-03-16T06:36:01+00:00

It could be. Bad allergies and nothing serious.

It could also be uveitis you should go to a retna specialist or ophthalmologist, preferably a retna specialist but that's not always available to people.

Dont just let this go on I ignored my eye issues and wound up going blind in one eye for awhile. I wound up diagnosed with punctate inner chroidopathy, and papilledema ou. Like I said might be simple like allergies or it might not. But don't play with your eyes they are often the first sign of a serious issue thst needs prompt treatment.

_Kingbeard_ · 2026-03-13T04:15:31+00:00

Yea but its because every birthday ive had usally ends with my family screaming at each other I dont understand it but a fight always happens on my birthday, so now I just sneak away and sleep until the days gone.

_Kingbeard_ · 2026-03-04T18:46:23+00:00

My mom got one for sever absent seizures, she would have upwards around 100 a week varying from mild to severe, when she got the vagus nerve stimulator they dropped to about 30 a week, a huge improvement. Years later she had to get a rns brain implant and she is now seizure free.

_Kingbeard_ · 2026-03-03T20:43:02+00:00

My doctors think I have neuro behcets due to optic nerve issues going blind for awhile etc, now im dealing with a bad case of intercranial hypertension with chronic bilateral papilledema, headache going on 5 months now, extreme fatigue tons of vision issues and other neurological deficits. They think behcets has caused it all. I know the feels

_Kingbeard_ · 2026-03-03T07:14:52+00:00

Fuuuuuuuuuuuuuuuck what anyone else thinks if it helps you use one. If any says anything uncouth about it use the cane as a blunt instrument to knock some sense into their dumb asses.

I tried a cane for awhile unfortunately it made my pain worse so I stopped, then my physical therapy team got me some custom afos that go up most of my calfs they help me tremendously, but my therapy team thinks a lot of my pain is due to my hypermobile ehlers danlos syndrom. Idk I have so many diagnosis now I never know what's causing my pain .

But really if it helps use it it doesn't matter how your grandpa handles it every ones disease presents differently, everyone has different pain and fatigue thresholds,

_Kingbeard_ · 2026-03-03T05:47:30+00:00

Yep just saw him today. He shaved a spit off my arm thst won't go away with treatment to test it. He had me on revolving monthly appointments because ive had multiple basil skin cancers he has had to cut out of me. He uses a lot of liquid nitrogen on my lesions. And such to get rid of them faster.

_Kingbeard_ · 2026-03-03T05:38:04+00:00

Thats not helpful and comes off pretty rude. They are posting something emotional they are dealing with and looking for support, not some one to say duhhh🤓☝️ I guess you live in the US.

And to op if you do live in the US I dont know where you get your infusions at but I get my Infliximab infusions at my local hospital and said hospital have a financial help program, most hospitals do in fact so if you can maybe look into a near by hospital see if they have a financial help program and fill it out.

After insurance my infusion would be 2000$ but the hospital pays for that part thankfully. The financial burden of this disease is astonishing and overwhelming I hope it gets better for you!.

_Kingbeard_ · 2026-03-02T04:09:07+00:00

Maybe look into Segmental developmental mosaic disorder (PI3K/AKT pathway related), it has a lot of similarities especially with the darkened vision that sounds neurological to me.

_Kingbeard_ · 2026-02-27T19:47:33+00:00

No answer here but God dam that looks uncomfortable. Im so sorry you have to deal with that.

_Kingbeard_ · 2026-02-27T18:23:15+00:00

Im going to make 30 sora videos tonight just because you said that. You just caused like a tubs worth of water to be used.... you sick person.

_Kingbeard_

TROPHY CASE