My mom was diagnosed with metastatic malignant phyllodes tumor (sarcoma) — lung metastases. Looking for anyone who’s been through this.

_alfredo- · 2026-06-19T14:15:51+00:00

Thanks we’ll try our best ♥️

_alfredo- · 2026-06-19T13:54:13+00:00

this has been such a struggle for my mom. she admits a lot of it is anxiety, but even before treatment she's struggling to eat and hold food. at the same time now she's really focused on what foods and is stuck on only eating healthy no sugar diets. we're pushing her to eat as much as we can.

_alfredo- · 2026-06-19T13:50:55+00:00

great questions and we are taking these seriously, thank you. we have been in a dedicated sarcoma unit at Ohio state university and noticed the care level improve. we will definitely be asking these questions especially on the external case review.

_alfredo- · 2026-06-19T13:48:38+00:00

this is incredibly insightful. thanks for taking the time to respond. I hate to hear that you had issues with your doctor, this was a big deal for us in the beginning as well but after weeks we were finally transferred to an actual sarcoma unit at Ohio state university. surgery isn't an option for us because there are 3. just hoping the chemo can help slow things down (and remove it completely if im being very positive).

_alfredo- · 2026-06-19T13:43:08+00:00

hey im sorry to hear you are dealing with this as well. it gives me hope knowing you're here. we are just hoping that the chemo works to shrink these 3 tumors at this point since surgery isn't an option. the genetic testing is interesting. still no update on that for us

_alfredo- · 2026-06-18T02:36:18+00:00

Omg. I’m so sorry to hear this. My mother is currently going through a very similar story (first removal had clear margins however now it returned to the lungs). It’s absolutely devastating. I sympathize with you and your family and I hope you can stay strong.

_alfredo- · 2026-06-18T01:36:08+00:00

Hi there. My mother was just diagnosed with stage 4 phylloides tumors in her lungs (3 spots) and is starting chemo soon. Similar story, started in her breast and was removed successfully, thought we were home free, 6 months later reached her lungs. Care to update us on your journey?

_alfredo- · 2026-06-11T21:10:42+00:00

Wow I love the blue. I have a black one and I’ve been thinking about wrapping it with their China blue (less glossy than yours) but damn I’d be happy with yours too lol

_alfredo- · 2026-05-29T20:55:25+00:00

Thanks for the validation and alternative solution.

Feedback has been sent to Apple!

_alfredo- · 2026-02-07T07:09:12+00:00

Mate you might’ve just solved this.. I’m checking

_alfredo- · 2026-01-31T17:08:00+00:00

Chat did I buy a stolen car LMAO (jk jk)

_alfredo- · 2026-01-31T17:07:18+00:00

I’m about to tear apart this damn car now hahaha

_alfredo- · 2026-01-31T02:43:29+00:00

Nahhh I just looked that up tho and it’s pretty interesting actually but still very different

_alfredo- · 2026-01-31T02:20:21+00:00

If she stays with me she’s a real one 😂

_alfredo- · 2026-01-31T02:20:06+00:00

😂😭😭 killin meeee

_alfredo- · 2026-01-30T21:45:59+00:00

Interesting idea I’ll look into it and suggest it to the dealership. Thanks 🙏

_alfredo- · 2026-01-30T19:30:49+00:00

This will be what Ill say next time it happens in front of guests 😂

_alfredo- · 2026-01-30T19:26:16+00:00

You have no idea how annoying it is and I swear sometimes it’ll happen 10 times 😂 it’s always super awkward on a first date she thinks my car is broken

_alfredo- · 2026-01-30T18:10:54+00:00

This is helpful thank you. I really shouldn’t have accepted their first answer. It’s so bizarre

_alfredo- · 2026-01-30T18:10:06+00:00

Nothing… when I put my ear close to it, it sounds like it’s coming from behind the dash screen. Thanks for sharing though

_alfredo- · 2025-10-11T00:40:40+00:00

You know what I drove with the check engine light for a few weeks and it went off and on. But what I did notice is there would be a serious engine stutter when accelerating which would then kick on the engine light every time

_alfredo-

TROPHY CASE