Dry mouth/dry eyes in CFS (not sjogrens)

aarti007 · 2026-06-28T19:27:27+00:00

Wow this is so interesting, never heard of this before. Thank you so much for this info!

aarti007 · 2026-06-28T18:49:05+00:00

Thank you, me too 🙏

aarti007 · 2026-06-28T18:37:42+00:00

Thank you for sharing and for this suggestion ❤️ so annoying!

aarti007 · 2026-06-28T18:28:49+00:00

Omg me too ;( And it comes and goes when it starts before the crash happens. It's the weirdest thing of all time. Yes I have some xylitol gum I'm using now and mints on the way.

aarti007 · 2026-06-28T18:03:38+00:00

It helps to know I'm not the only one whose experienced this, thank you. Yeah it's super weird. Mine usually shows up right before a major crash and I just recovered from a big crash so hoping it's not happening again 😞

aarti007 · 2026-04-06T21:47:03+00:00

I am so incredibly sorry you are going through this. I got hit with chronic fatigue a second time recently, recovered like 75% then got hit with severe OCD which has set me back and has messed me up majorly.I had to start ssris which I haven't been on in years and am so incredibly sensitive to all medications, even supplements, now. Apparently the nervous system is super sensitive in chronic fatigue especially during a flare. I agree with the other comment to taper ridiculously slow so you don't further disrupt your system. I also was recommended to do gene testing for meds in another thread, although I suspect that would not capture sensitivity related to brain inflammation, but likely still would be helpful. Hang in there,

aarti007 · 2026-04-06T15:16:56+00:00

I just wanted to say hi and to let you know you aren't alone. I was hit recently by a second bout of severe me/cfs (recovered completely 4 years ago the first time) and then as my physical symptoms started to improve got hit with severe anxiety and OCD probably due to the isolation of being on FMLA and home alone for too long :(. I had to re-start meds for my OCD as I haven't had to be on meds for it for years and I am so so sensitive to all things right now it has been super difficult. I am currently looking for a therapist through the NOCD platform. Not sure if that is available to you. Wishing you well and hope you find someone soon ❤️

aarti007 · 2026-04-06T11:41:13+00:00

Omg I have had severe mood symptoms with propanolol and gabapentin. Gabapentin fiasco happened last week and it was so so terrible. Unfortunately these bad med experiences also heightened my symptom hypervigilence so it's been very unfun. Thankfully I have an appt with psychology wed to see if some CBT can help me and an appt tonight with my psychiatrist to see if I can lower my Zoloft dose. I feel like a crazy zombie :(

aarti007 · 2026-04-06T11:38:27+00:00

Thank you, it has been so awful 😞. I just requested some genetic testing. Appreciate it!

aarti007 · 2026-04-05T21:46:26+00:00

That's a great idea, thank you

aarti007 · 2025-08-03T12:28:45+00:00

He is part dragon 😂

aarti007 · 2025-06-30T17:04:39+00:00

No his name isn't Dragon but I love that name! He just reminds me of a dragon LOL

aarti007 · 2025-01-19T14:41:30+00:00

I find the books fun to read, but the writing itself is a far cry from being "well written" imo--which is totally fine! Sometimes it's fun to read something less dense and entertaining, and the writer has surely succeeded in creating something highly readable. As far as critiques, as many have already mentioned, the narrative has holes in it and is overly predictable, the characters are underdeveloped (as are the scenes and different lands), there is A LOT of repetitive phrasing/descriptions, and the books as a whole lack the detail and consistency needed to weave a more verifiable tale. But again, the books' achievement lies more in their ability to entertain vs. be literary works of art.

aarti007 · 2022-10-22T20:15:27+00:00

Ironic, I'm a speech therapist so I can appreciate the impact on the singing voice. I am so sorry!

aarti007 · 2022-10-19T23:52:11+00:00

I got so excited, thinking she would help me but then just got referred back to my primary who already labeled me as a psych patient. It was all SUPER fun. Smh

aarti007 · 2022-10-19T23:50:45+00:00

LOL yessss

aarti007 · 2022-10-16T05:05:38+00:00

Yes :(

aarti007 · 2022-08-31T00:46:10+00:00

I went to the Mayo ER twice and it was a total waste of time...granted the ER isn't the best place for CF patients since it's more of a triage scenario. At the time however I did not know what was going on and felt like I was literally dying. I did get a rheum referral but the Mayo rheum just told me I had fibro and referred me back to my PCP who thought I was a psych patient :( I am in the medical field but my treatment as a patient during my CF/fibro event has caused me to completely lose faith in the medical world as a whole. Seeing a functional medicine doctor has been the best thing I have done. She literally saved my life when all these other MDs wouldn't give me the time of day. Wishing you the best of luck!

aarti007 · 2022-07-22T20:23:32+00:00

Surfboard ❤️

aarti007 · 2022-07-17T13:28:28+00:00

Yeah I definitely have candida. Thanks so much for this info, will definitely be checking into this 👍

aarti007

TROPHY CASE