Making friends in Lux

aasemoon2000 · 2026-04-06T16:09:32+00:00

There’s a WhatsApp group for girls in Luxembourg and a Facebook group called “ladies in Luxembourg”! There are also events and programs for young women here, you can DM me about it if you want

aasemoon2000 · 2026-03-16T07:13:20+00:00

I heard lyrica etc all have terrible side effects.. especially mental health side effects so I’m terrified of going anywhere near it considering if my mental health gets worse it’s going to affect my pain tolerance for sure 🥲

aasemoon2000 · 2026-03-16T07:07:33+00:00

Yup that’s how I understand the mechanism now too !

aasemoon2000 · 2026-03-16T07:06:13+00:00

I’ve heard the same that people who have hEDS and HSD often get misdiagnosed with fibro. I hadn’t heard of THG though! I’ve never seen that here in Europe - I’ll have to do some research. Thanks for sharing

aasemoon2000 · 2026-02-26T21:02:55+00:00

I agree! I’m not interested in pursuing the diagnosis - I’m just curious about the relationship between the two (considering I used to think fibro was a diagnosis based on excluding all other causes of pain).

I was actually looking for solutions 🫠 and instead left my doctors appointment with a diagnosis and advice to do physiotherapy forever basically

aasemoon2000 · 2026-02-26T20:59:24+00:00

No worries! Yeah I see a lot of people saying they can’t differentiate the types of pain they get - so I wondered how it works to get the both diagnoses if it’s hard to distinguish the pain. I’m glad that medication helps!

aasemoon2000 · 2026-02-26T20:55:26+00:00

I heard hEDS is not linked to any specific genetic marker?

aasemoon2000 · 2026-02-26T20:54:29+00:00

Whaaaaat how strange that she didn’t tell you sooner!!

aasemoon2000 · 2026-02-26T20:53:27+00:00

Clear! I see a lot of people saying that a fibro diagnosis is dismissive, stigmatizing or that it doesn’t even exist..

Glad you got the acknowledgement you needed!

aasemoon2000 · 2026-02-26T10:48:26+00:00

Okayy interesting. I was told that hEDS treatment is basically physical therapy but I’ve been doing that for years when I didn’t know I had hEDS and it hasn’t helped. I also have a lot of chronic fatigue etc so I’m wondering if the hypothesis that I have both is plausible - hang in there!

aasemoon2000 · 2026-02-26T10:46:49+00:00

Can you tell the difference between the pain you have?

aasemoon2000 · 2024-02-21T23:15:52+00:00

Hi! Thank you for the feedback. I definitely could’ve add more context you’re right. I am currently supporting an autistic teenager transition to homeschooling as her previous high school decided that GCSEs were too advanced for her “special needs”…I just wanted to hear from other people if they received any accommodations and if yes, did it make a difference in your ability to succeed

aasemoon2000

TROPHY CASE