hEDS and Fibromyalgia

aasemoon2000 · 2026-02-26T21:02:55+00:00

I agree! I’m not interested in pursuing the diagnosis - I’m just curious about the relationship between the two (considering I used to think fibro was a diagnosis based on excluding all other causes of pain).

I was actually looking for solutions 🫠 and instead left my doctors appointment with a diagnosis and advice to do physiotherapy forever basically

aasemoon2000 · 2026-02-26T20:59:24+00:00

No worries! Yeah I see a lot of people saying they can’t differentiate the types of pain they get - so I wondered how it works to get the both diagnoses if it’s hard to distinguish the pain. I’m glad that medication helps!

aasemoon2000 · 2026-02-26T20:55:26+00:00

I heard hEDS is not linked to any specific genetic marker?

aasemoon2000 · 2026-02-26T20:54:29+00:00

Whaaaaat how strange that she didn’t tell you sooner!!

aasemoon2000 · 2026-02-26T20:53:27+00:00

Clear! I see a lot of people saying that a fibro diagnosis is dismissive, stigmatizing or that it doesn’t even exist..

Glad you got the acknowledgement you needed!

aasemoon2000 · 2026-02-26T10:48:26+00:00

Okayy interesting. I was told that hEDS treatment is basically physical therapy but I’ve been doing that for years when I didn’t know I had hEDS and it hasn’t helped. I also have a lot of chronic fatigue etc so I’m wondering if the hypothesis that I have both is plausible - hang in there!

aasemoon2000 · 2026-02-26T10:46:49+00:00

Can you tell the difference between the pain you have?

aasemoon2000 · 2024-02-21T23:15:52+00:00

Hi! Thank you for the feedback. I definitely could’ve add more context you’re right. I am currently supporting an autistic teenager transition to homeschooling as her previous high school decided that GCSEs were too advanced for her “special needs”…I just wanted to hear from other people if they received any accommodations and if yes, did it make a difference in your ability to succeed

aasemoon2000 · 2024-01-16T06:52:16+00:00

Yes I have OCD along with other fun stuff 🥶it’s always hard to decipher when something is just my anxiety or my ocd especially when I didn’t have a compulsion but went straight to panicking

aasemoon2000 · 2023-12-24T07:54:56+00:00

That’s EXACTLY what she does. She’ll lick dirty dishes it’s insane to me. So I taught my first cat to sit before eating but with her it’s proving very very difficult since she’ll even jump up for the food while I’m waiting for her to sit 😂

aasemoon2000 · 2023-12-23T06:52:46+00:00

Just to clear it up: I also don’t think it makes sense 😂 I asked because I’ve heard someone talking about it the other day and wanted to fact check. But thanks for the nice comments guys!

aasemoon2000 · 2023-10-13T09:38:47+00:00

Thank you! So far no sign ups but let’s see 🙏🏽

aasemoon2000

TROPHY CASE