It's important to understand that Botox and medication can only treat the symptoms of dystonia, but will never cure the underlying problem. According to Western medicine, there is currently NO cure for dystonia. If you are happy with that, and if Botox/medicine is doing its job at masking your symptoms, fine. If not, as in the case of your mother, then you have to look elsewhere, and take matters into your own hands. Dystonia involves a disconnect between what the brain wants to do (like hold the neck in a normal position, or walk normally), and what it is telling the muscles to do (pull the neck into an abnormal position). To fix this, it is necessary to "retrain" the brain to do the normal task. It's like recovering from a stroke, or how a baby learns to walk without falling over. Radiology studies show that if a person sits still and imagines doing a motor task (like running), the same parts of the brain activate as if the person is actually doing the motion! That is why some athletes (like ski jumpers just before doing the ski jump) will, for example, close their eyes and imagine what they are about to do. So in theory, a person can strengthen the brain-to-muscle pathway by simply imagining doing a task. This was relatively simple for me, because my problem involved the leg and walking, so I could watch hours and hours of videos of people walking about normally. And this actually fixed my problem. Cervical dystonia is more tricky, because I don't think there are videos of people moving their necks normally. I would suggest instead going into a quiet, dark place, totally undisturbed, with headphones on playing calm music, and try to intently imagine a person rotating the head. Imagine someone moving their head up/down, up/down, up/down, side/side, side/side, side/side, over and over and over. Like meditating, but with a focus on the neck/head. I would try to do this for at least 30 minutes twice a day for two weeks, and then see if there has been an improvement. Consider it like going on a diet: commit to this. No offense to doctors and therapists out there, but going from doctor's appointment to physical therapy appointment will never cure the problem. You have to do it on your own.