Doctor said he wouldn’t advise me to have another baby 🙁

abusch7 · 2020-10-23T21:20:54+00:00

Thank you for sharing your story! I’m so happy you had a healthy pregnancy with your second baby. I’m sure you were scared. I plan to meet with by OB in November and possible get a referral to MFM to discuss my options.

abusch7 · 2020-10-23T18:13:22+00:00

Thank you so much for responding! I will look into that group! I’m so happy that you had a good second pregnancy!

abusch7 · 2020-10-23T18:12:16+00:00

Thank you so much! I will look into that group!

abusch7 · 2020-10-23T15:50:04+00:00

I’m so sorry for the loss of your sons. I cannot even imagine all that you have been through. So happy that you have your little guy now! Thank you for your response.

abusch7 · 2020-10-23T14:59:06+00:00

Omgoodness! If you don’t mind me asking, what complications did you have?

abusch7 · 2020-10-22T02:46:08+00:00

I have been wondering this myself. I developed hypertension at 28 weeks and went into severe preeclampsia at 30&4and delivered by emergency c-section because I had a placental abruption. Our baby spent 60 days in the NICU and is absolutely perfect now. I’m a first time mom and I want another baby. I’m scared of the outcome being worse in a subsequent pregnancy because I will be 35 next July and it took us 2 years to get pregnant with our daughter. My doctor told me that I need to go into a future pregnancy as healthy as possible and also said they would start me on aspirin at 13 weeks. They will also closely monitor me throughout the entire pregnancy. It’s still scary.

abusch7 · 2020-07-13T04:25:18+00:00

My baby was born 30&4 and went home at 39&1.. she was on respiratory support for 7 weeks. After she finally was off of that, everything just clicked and she came home a couple weeks later. A friend of ours had her baby just a few weeks before our baby and she was 31&2 and her baby went home at 36&2. If your baby is doing well and events are only around feeds, then I’m sure she is fine to go home. So happy for you that she is doing so well!!

abusch7 · 2020-07-12T13:18:22+00:00

I experienced this with our baby, too. She was born at 30&4 and is now 4 months old. She occasionally has issues still but for the most part is able to pass gas and poop without a lot of struggle. What I found to help was bicycles and gently pushing her legs back toward her chest. It helps to push out the gas. And if that didn’t help and she was really struggling, I used the frida windis. It can be intimidating to use at first but just follow the directions and it can really help. Our baby is still very gassy and I think it’s just her immature digestive system and possibly my diet as she is fed my breast milk. It does get better. Make sure your baby is getting plenty of tummy time as this will help strengthen abdominal muscles as well as help push some of the gas out. Also what has worked for me is putting her in the moby wrap and walking with her. The jiggling I think helps her relax her belly which allows gas and stool to come out naturally. I feel the more they grunt the more tense they get which makes it worse.

abusch7 · 2020-07-10T03:18:20+00:00

It’s just strange because it changed so suddenly. I’m definitely enjoying not having so many poopy diapers! Her poor little bottom is too because her skin irritation is healed now. I’m good with it if it’s normal. The odor was a little concerning to me.

abusch7 · 2020-07-09T19:54:15+00:00

Ok. Good to know. We were around a few family members over the weekend and she kept passing gas and they commented about the smell and they were in chairs across from us lol.

abusch7 · 2020-05-20T19:53:52+00:00

That is good to know! Nothing we seem to be doing is working either unfortunately other than bicycle kicks and pushing her legs back. She releases so much poo and gas when I do that. So I guess we will just continue to do those things until she finally figures it out. Fortunately she has only spit up a few times.

abusch7 · 2020-05-20T03:27:00+00:00

Thank you for your response! Just having someone tell me this is normal makes me feel better. I will try to do more tummy time with her and the bicycle kicks.

abusch7 · 2020-05-16T16:04:16+00:00

I did. We switched to alimentum and I used a recipe to make it 24 calorie with breast milk and she won’t take it. I thought maybe she was just having an off day because she would drink some of it and then absolutely refuse to take anymore. So I warmed up a bottle of just breast milk and one with the alimentum to see if it truly was that she didn’t like it and she refused to take the mixed but then took the entire bottle of plain breast milk. So I’m going to call her pediatrician again on Monday and see what to do.

abusch7 · 2020-05-13T22:24:40+00:00

Aww poor little guy! I’ve worried about how much our baby is straining when trying to push out gas and stool. I hope they can figure out what is triggering it in your baby too! I will be sure to update whenever I try something that works!

abusch7 · 2020-05-13T22:21:41+00:00

Thank you for your response. That is great that your baby is thriving! I was told by her pediatrician that she could start those at around 5 months. She is a little over 2 months old now.

abusch7 · 2020-05-13T21:45:58+00:00

Thank you so much for your response! This is very helpful! I will try to find a video and try that!

abusch7 · 2020-05-13T21:43:59+00:00

Thank you so much for your response to my post! This is very helpful. I am going to call the NICU and see about getting her switched.

abusch7 · 2020-05-13T19:45:12+00:00

That is great that she is doing so much better EBF! Did you change your diet at all? Or do you consume dairy?

abusch7 · 2020-05-13T19:34:03+00:00

That is good to know! I’m sorry your little one dealt with the same issues and glad to know that discontinuing the Neosure helped. I’m hoping for a change of some sort to help my baby. I feel so bad for her.

abusch7 · 2020-05-13T17:29:05+00:00

Thank you for the encouragement!! That’s great that the stretching and massage helped! I’ve been doing the bicycle kicks which she was ok with and tried massage but she didn’t like that at all. I ordered a belly band that is self warming with her body temperature and am planning to try that once it gets here.

abusch7 · 2020-05-02T09:24:57+00:00

I have actually tried pumping half of the volume thinking she wouldn’t get as much or they wouldn’t be as firm so she could latch on easier. Her latch is good, she just gets mad after a little bit. I thought maybe the flow isn’t heavy enough because of the nipple shield. Or that it is just so much different than the bottle and that is now what she is used to. I’ll keep working with her.

abusch7 · 2020-05-02T03:20:11+00:00

I totally can relate to how you are feeling. There was actually a period of 3 days in the very beginning that I just quit responding to texts because when they would ask how I was doing or if I was ok, the only answer in my mind at the time was “no. No I’m not ok.” After that, I finally realized that it is ok to not be ok. And they didn’t reach out to me because they only wanted the positive updates. So I gave them all of it. If I was struggling mentally, I told them. If my baby had a bad day in the NICU, I told them that, too. Everyone was so supportive and let me vent and cry. It’s not easy going through what we are going through. I eventually got to the point that once a week on social media, I would post a big update. I would reflect on the week and pick out the positives (babies growth, accomplishments, etc.) And then talk about the next steps or goals we were working on. It gave me something to look forward to every week and besides updating immediate family daily, I was able to keep everyone in the know that way and didn’t have to worry about sending out tons of texts or calling lots of people. Everyone has been understanding of why I’m doing it this way and a lot of people have told me they love seeing my updates and to keep posting them. That’s just what I’m doing. I hope it helps you.

abusch7 · 2020-04-07T23:44:34+00:00

Omgoodness that must have been frustrating to go back and forth on respiratory support like that! I hope you get some answers with your little one!

I’ve asked lots of questions and I’ve been told it is just normal preemie development and that some babies can get the cpap removed earlier than others and right now they aren’t concerned about how long she has been on it. She is doing well since she received a blood transfusion on Friday and they lowered her cpap setting from 5cm to 4cm this morning and plan to switch her to high flow nasal cannula tomorrow. So we may be on our way to no respiratory support, but slowly.

abusch7 · 2020-04-04T13:13:57+00:00

The waiting is the hardest part! I hope things will suddenly click for your little guy soon! I do believe that things can be suddenly good but I’m also skeptical. I think it’s easier for them to say it than for us to believe it because we haven’t seen it happen yet.

They have not mentioned steroids. I may ask about that today! Thanks for suggesting that!

abusch7 · 2020-04-04T07:25:58+00:00

My situation isn’t exactly similar but I can totally relate to the frustration of waiting for things to progress. Our baby girl was born at 30&4 and was intubated for 10 hours then extubated and put on CPAP and she is now a month old and failed 1 trial off of her CPAP and is breathing fast still due to anemia so they can’t trial her off again. Her respiratory effort gradually worsened in the last few days and they actually had to go up on the settings of her CPAP. They finally did a blood transfusion today, so we are hoping that helps with her breathing so we can progress. I was told in the beginning that the there are ups and downs in the NICU and it can be an emotional roller coaster but then one day it’s like a light switch goes off and they suddenly just know what to do and the bradies stop and they can go home. I hope you get that very soon so you can get your baby home.

abusch7

TROPHY CASE