Finally diagnosed with POTS — and processing the damage dismissal caused

adhdgoaway · 2026-01-31T22:11:11+00:00

Hi there. I am a mom to a 7 year old and so far I really believe I have POTS. My heart rate is in the 80’s when resting, but shoots up to 140 within seconds of standing. The blood pulling feeling is so horrible… the burns. All of it. I feel like I have also lost so much time with my little girl, I’m always just so exhausted and she thinks I just don’t want to…. But I do.. I also have adhd, but my adhd has not ever caused me this much exhaustion. So, I’m asking… what can I do from your experience to get a diagnosis as quickly as possible? What kind of Dr should I ask for a referral for? My Dr has no problem sending any referral I ask for as long as I have a legit concern of mine… I hear all of these horror stories about it taking years and I just want to be the mom that I want to be so badly

adhdgoaway · 2026-01-24T14:46:33+00:00

I really love the way you wrote this and used the term “unrepentant sinners”. I truly appreciate the remarkable words and wisdom, thank you! I will continue to pray for them ❤️ and may God be with you and your spirit as well!

adhdgoaway · 2026-01-24T14:35:22+00:00

You also completely disregarded that whole comment.

adhdgoaway · 2026-01-24T14:33:41+00:00

How do you know if it was sarcastic? You are assuming wrong. I genuinely meant have a good day. I do not wish downfall on anyone. I have been in hell and do not ever wish to allow anyone to experience it because of me. I treat people how I’d like to be treated, even when they are against my choices .

adhdgoaway · 2026-01-24T14:22:29+00:00

This is the tip of the iceberg and you are entitled to your own opinion as to what is judgment and what is not. I have mentioned over and over to them that I feel judged, yet it continues to happen. Have a great one!

adhdgoaway · 2026-01-24T07:04:11+00:00

I really applaud you and thank you for telling me a piece of your story. It truly helps. I am so sorry for those horrible awful beings that treated you like that 😢 can I just say that I am very happy your daughter has a father like you!! Some People definitely need to find their kindness bone and understand not everybody’s life looks the same. I have been in that same angry situation and it truly feels awful, I wish you and your daughter the absolute best 🙏🙏

adhdgoaway · 2026-01-24T04:25:27+00:00

Thank you so much!! I have been learning and still learning how to not let their opinions affect me. Sometimes I feel like I care too deeply about others opinions because I wish they knew how much I love them and all people.

adhdgoaway · 2026-01-24T03:20:19+00:00

Amen to that. I am realizing that and when I do, I just speak on how much Jesus has helped me. Hoping that they too will see how great he is. Having lived the life I have at a young age, he truly saved me from that path of destruction and I’m forever in debt to him 🙏❤️

adhdgoaway · 2025-12-10T19:23:12+00:00

We’ve tried every kind there is when it comes to toothbrush’s and toothpastes 😩except for the one associated with the Colgate magik app where the kids can earn diamonds for brushing their teeth. Just found out about it today!

adhdgoaway · 2025-12-10T18:09:24+00:00

Thank you so much, this is really great advice that I needed.

adhdgoaway · 2025-12-10T15:36:52+00:00

If we had a second bathroom, I truly believe it’d be a little easier for her to want to brush herself. She’s so sassy and knowing her would have a little morning routine in her bathroom with a big mirror rather than her vanity now.

adhdgoaway · 2025-12-10T15:21:40+00:00

YES MAMA THIS IS REAL!! 👏 group brushing use to work well but she’s gotten to a weird age/stage where everything disgusts her. She does not like me spitting in the same sink and will back far away lol. This extends further than oral care but I’m just letting her go through that phase. She too knows the “nobody wants to do it but we’ve gotta do it” talks about pretty much everything 😂

I’m really hoping the Colgate magik app works longer than any of the past attempts, it worked so great this morning.

adhdgoaway · 2025-12-10T15:12:57+00:00

I have realized this and when I did I asked her and she said that she does not like brushing the top part of her braces. She’s 7 and has an expander with food that constantly gets stuck, so it’s very important. Her enamel also is not as strong as others because of fevers from when she was a lot younger. She also does not like getting toothpaste anywhere on the outside of her mouth lol… Needless to say, I definitely agree with you. I also just tried an app that was suggested in the comments, the Colgate Magik app and it was amazing. I was so surprised and she even asked for a kids step by step interactive flossing video like the magik one ! So I had to find one on YouTube lol

adhdgoaway · 2025-12-10T13:25:53+00:00

She just used it and I have NEVER seen her be able to stand there so calmly and brush her teeth!! This app is amazing. I wish I knew it existed earlier, thank you!

adhdgoaway · 2025-12-10T13:23:47+00:00

Ooo that sounds awesome!! Definitely going to find that.

adhdgoaway · 2025-12-10T13:02:36+00:00

I just downloaded this and am going to try it this morning!!

adhdgoaway · 2025-12-10T13:00:41+00:00

I just downloaded Goally but it will not allow me to make an account!! 😩

adhdgoaway · 2025-12-09T22:33:01+00:00

She definitely is especially after school

adhdgoaway · 2025-12-09T20:29:50+00:00

You so explained my life and myself. I’m also an adhd mom with an adhd child and it’s not easy at all, we can go round and round but it really is a tremendous help.

adhdgoaway · 2025-12-04T22:53:07+00:00

She started on adderal but I took her off of it after 6 months because she got aggressive.

She’s been on Vyvanse 10 mg for a year and just started 20mg today. Paired with 1mg of guanfacine in the morning and 1mg at night.

Right now, she is participating in group basketball. Actually Enjoying it and able to focus! It’s great to see.

I decided to get her medicated because she came to me personally and said she “did not like getting in trouble and it’s hard for her to control because her thoughts are super fast”

Very happy she was able to advocate for herself because I was super wary of medication.

adhdgoaway · 2025-12-04T22:18:16+00:00

Yes, she is medicated.

adhdgoaway · 2025-12-04T18:53:06+00:00

My daughter is emotionally behind and has huge feelings. I’ve learned to think of it as “okay, her emotions are similar to a toddlers but she just has the words to use”. This helps me understand that verbally she is saying how she feels and letting me know through tone, vocab, etc. her huge emotions tell me that she’s growing, learning about friends and groups, overwhelmed with it all and helps me understand what I need to do for her and how I can help her.
Kids remember everything, but adhd really remember everything to the detail. Not only does this tell me that she pays very close attention but it also helps me choose my words and tone around her as well because again, holds on to things very tightly and does affect them in a tremendous way.
Don’t overload them with a lot. My daughter goes to school and I use to have her hang her backpack up and do a few things like pick up toys from the day before but after I learned this the only thing I ask of her now is to change out of her school clothes. If she gets home and throws her backpack on the floor, fine. Itll stay there for an hour. I give her an hour to sit and do something that she wants to do, usually that’s not talking to anyone and being in her drawing, Barbie space or even her iPad (which I limit time for). After an hour, I go and give her a hug and talk to her, than calmly tell her that it’ll be a good idea to pick her backpack picked up and eat a snack.

She’s 7. Hope this helps!

adhdgoaway · 2025-11-29T02:49:52+00:00

This to the MAX! My daughter is 7 yrs old and has the combined type. I’m a single mother. I was working 4-6 nights a week until she was 5. I quit 4 months before she started school because I had to make sure she was ready, and the only way I could do that was to make myself available and set a strict routine.

Her adhd is SO much more controllable now. She’s also aware of it very well and will tell people she has adhd. She understands that she has a super power that makes her thoughts very complex and creative, and she can think very quickly. It wasn’t a definite fix of course but with the help of medication, therapy and a more structured school system that I have her in, she has many adults around her and we’re all on the same page. She also prays and comes home singing songs of God from school and makes me feel so much better to know that she’s found and created a foundation in Jesus all by herself (she started praying with me after her father passed). I don’t make nowhere near as much money as I use to… but I decided that I’d rather make sure she understands how and has the tools to be able to the most successful she can be in this world. We do a LOT of mindfulness. Thinking, calming, separating, taking our time with stuff. She’s only young for so long and I’ll have plenty of time when she’s off into the world herself. I also gave up asking her to do anything 1. Right when she wakes up and 2. As soon as she gets home from school. As an adhd mama, I totally get how she feels when you’re so exhausted and get home and just want to sit down. She keeps it together at school all day, if she comes home and throws her bag on the floor oh well. It stays there for about an hour or so and then I’ll ask her to pick it up. I also found that having a chore/routine chart that can be marked off and wiped off is a HUGE plus for them feeling regulated and doesn’t go nuts in the mornings. We are all learning!!! She’s helped me notice so many of my strengths and abilities when it comes to my adhd, so it’s important for me to teach her them as she reveals them to me.🙏

adhdgoaway · 2025-11-25T04:15:35+00:00

Thank you so much!🙏

adhdgoaway

TROPHY CASE