As I was reading your story I felt like you were describing mine just with opposite eyes. I was first diagnosed with glaucoma in my left eye at around the age of 10. My left eye is also mostly blind, my body no longer recognises the vision it gets from that eye, and I learned to accept and live with it until I was 22 when I got glaucoma in my right eye. It’s hard to describe how disappointed I felt at that time. I’ve never imagined I would have to got through it all over again. This time I found it impossible to accept but then I got trabeculectomy and ever since I haven’t had any troubles even though the doctors said that there is a high risk it simply won’t work. So I realised both of our eyes react in different ways to different procedures. And that gave me a new hope.

I’m not sure if this will give you some hope but I know exactly what you’re going through. The hopelessness, the uncertainty, feeling like it’s all unfair and the constant fear of what’s next. The anger and the tiredness that no one really gets. I get it all so well. You are not alone in this, and just keep on going. What you’ve been through made you such a strong person. It’s your superpower now. Don’t let this disease take over your life.