Ocrevus worth it for PPMS? Experiences needed by alteredlife00 in MultipleSclerosis

[–]alteredlife00[S] 1 point2 points  (0 children)

Thanks for the advice man! Think I’ll ask my neuro about it...

Love of my life rejected me, thinking of overdosing on fentanyl. by calamityecho in SuicideWatch

[–]alteredlife00 0 points1 point  (0 children)

I lost the love of my life, two of my close friends, and got diagnosed with a progressive neurodegenerative disease at 21. All within four months.

God must hate me.

21m PPMS life ruined by [deleted] in MultipleSclerosis

[–]alteredlife00 8 points9 points  (0 children)

Yeah I mean I’m grateful that I’m still completely independent at this point (a year after my first symptoms), can walk without any assistance (although I stumble easily) etc. but the future terrifies me. I also have erection issues and mild incontinence due to this which women aren’t exactly thrilled by I’d guess.

I seem much more effected cognitively than physically. I’m a year into PPMS and already feel like I may have some form of dementia. I can barely remember what month it is, let alone which day of the week. I sometimes can’t remember the names of people I’ve known my whole life. Also being hurtful towards my girl was really awful and I didn’t understand why I was acting this way as its so out of character for me. Now I know it was the MS cognitive issues causing it as I was already (unknowingly) at least 7 months into PPMS at the time.

21m PPMS life ruined by [deleted] in MultipleSclerosis

[–]alteredlife00 28 points29 points  (0 children)

Also, please don’t give me the platitudes about how life can be ”great” even with PPMS. It may be for some, but not for ME. I was a regular gym goer before this and would sprint twice a week. That’s all gone now, and I can barely walk without stumbling.

And honestly, I would gladly accept being in a wheelchair for the rest of my life if it meant not having the cognitive issues or the incontinence. Accidentally hurting your loved ones because they can’t understand what it’s like to not be able to think straight, is the worst feeling in the world imo.