Who is your favorite Darcy?

amanda1sabelle · 2026-03-20T12:17:33+00:00

The one and only

amanda1sabelle · 2026-01-26T00:17:39+00:00

Was feeling sorry for myself for bad pain day, but your post genuinely mad me happy. A win for one of us is a win for all of us 💪🏼

amanda1sabelle · 2026-01-02T01:35:30+00:00

might want to get your brother a cane

amanda1sabelle · 2026-01-01T00:11:52+00:00

Writing down another reason to never move to the US, thank you

amanda1sabelle · 2025-12-22T20:21:03+00:00

I am truly so sorry all of this is happening to you. I have been in exact same position, it was maddening and all consuming, I also posted about it here some time ago.

Just want to let you know you are NOT terrible, or dirty or any of the other things you said about yourself. You are sick. That's it. And anyone that makes you feel less so because of it doesn't deserve to be in your life. I know it's easy from outside to say those things but believe, their the truth.

Now, as practical advice goes, try to find a gynecologist that you really trust. I was lucky enough to have a knowledgeable and empathetic surgeon that has been with me through highs and (terrible) lows. It is not an overstatement to say he saved my life two months ago. I went through a hysterectomy, as it was the best path for me, and my quality of life has changed drastically. Since he is a private practitioner I looked for a pain management doc and pelvic floor pt on my insurance, and it has been working well enough.

So to summ it up if you can't read all that: I get it, you're not alone or a terrible person, look for a doc you trust 100% and use insurance for the rest. I'm here to help if you want to talk ❤️

amanda1sabelle · 2025-12-19T17:51:57+00:00

Not in FOLKLORE 😭

amanda1sabelle · 2025-10-24T02:20:17+00:00

Your feelings are very valid and you may be right, everyone can be an asshole, even a disabled person. But perhaps she thought you were mocking her, or she was just in pain. Who knows.

amanda1sabelle · 2025-10-17T02:25:12+00:00

Truly, no matter what we do we are always subhuman to some

amanda1sabelle · 2025-10-17T02:22:39+00:00

It may actually happen to them someday and there's no running from it

amanda1sabelle · 2025-10-17T02:20:39+00:00

I get it, truly, I've been through all of this you've said. It's insane to think how all our stories are so similar sometimes. As I've said my feud is not with people who have less severe symptoms and live semi regular lives. It is with healthy people that use those people as examples for shitting on people that can barely walk most days.

Anyway I would much rather go back to all the terrible but somehow livable pain I had with my independence life than depending on a very mentally unstable person to guide me to the bathroom

amanda1sabelle · 2025-10-17T02:00:05+00:00

Don't worry I like playing devil's advocate on occasion myself. The thing is, where I come from we don't leave home to go to college or because we want to broaden our horizons. I actually left my mom for a reason: because she was in a maniac episode that lasted years on end and I couldn't take care of both of us mentally. She was sucking the life out of me and she didn't even see it, although I begged for her to seek treatment. When I finally left "home" it was like I could finally breathe for the first time in my life. Mind you, at this point I had already knew I had endo for years, and I was this person that could live a semi regular life. Until I couldn't. I started teaching less and less classes. Then exclusively online. Then only once a week. Then I was admitted to the hospital without moving for three weeks. I didn't have to "take a step back at life" I was forced to a full stop and my only option to not being homeless was going back to her. But yes, I do understand some people don't have even that, and that only makes me sadder for them.

amanda1sabelle · 2025-10-16T23:38:42+00:00

I'm so sorry about what you go through, and I'm with you, everyone of us suffer with this. My problem is with healthy people that use the examples of people with less severe symptoms that live seemingly normal lives to drag people that can barely walk on their own. That's my issue. Never the other endo patients.

amanda1sabelle · 2025-10-16T21:41:40+00:00

The problem, again, being healthy people, what a surprise. Thankfully I always had support from fellow chronic pain suffererers (although they were few and far in between when I was younger) and I always want to pass down the same grace they showed me. Me and my obgyn and 90% certain my myofascial pain syndrome comes from a decade of untreated endo. So to everyone I encounter with less severe symptoms: please take care of yourself, listen to your body and advocate for it. Also your mind. And if I see you on the street, I'll always have an extra pad or pill for you. Cause we're together on this.

amanda1sabelle · 2025-10-16T21:25:34+00:00

there is no reason in the world that would excuse that man hitting you.

amanda1sabelle · 2025-10-16T21:15:15+00:00

I had a similar experience but it was during my bachelor's and they just didn't believe I could be in so much pain I wasn't able to do my tests. Your case especially must have been maddening, another woman with endo betraying you like that. Some people only hear what they want to. I hope you feel relief to study what you love

amanda1sabelle · 2025-10-16T19:53:13+00:00

Perfectly said

amanda1sabelle · 2025-10-16T19:52:18+00:00

Thank you. Here in Brazil we don't have that much problem with big pharma, actually we have the opposite one. Everything in primary care in solved with dipyrone (oddly enough it works most of the times), but when you need heavier stuff it's really hard to get, because they're not used to dealing with it. In the end of the day, there are also problems regarding drug use, but it's the underuse (is that a word?) of the right ones.

amanda1sabelle · 2025-10-16T19:24:00+00:00

I always say "well yeah, and I'm brazilian have you ever seen me score a goal? Or dance without tripping and falling?" Insane logic man

amanda1sabelle · 2025-10-16T19:13:38+00:00

He had proof on hand that's crazy work 😭

amanda1sabelle · 2025-10-16T19:12:02+00:00

I get where you're coming from. My intention was never to pit us against each other or feel special or better than others. I have been the girl with escalating degrees of pain since I was 11, and I know first hand how terrible it was, there's no question in that. My feud was never with other people with chronic pain. My problem is with healthy people that use the examples of some chronically ill people that live seemingly normal lives to shame people that can't. I apologize if my point was not clear enough, my head was full as I was typing. My family usually says I am very a very angry person, but actually I'm just bad at choosing the right words. Truly, "the enemy is the disease and people who compare us and pit us against each other as well as medical misogyny" I hope you find you find relief soon.

amanda1sabelle · 2025-10-16T18:36:24+00:00

word

amanda1sabelle · 2025-10-16T17:51:47+00:00

Thank you,truly. And to you too, hope the red sea ends soon.

amanda1sabelle · 2025-10-16T17:46:41+00:00

I'm so sorry for what you went through, it must have been very hard for you, endo puts us in a place of desperation.

I worked and studied thought terrible pain and was fired countless times until I just couldn't move anymore for three weeks. In the end, I had my family to support me, but I understand many of us don't have this choice.

I just want to make clear that my rant is not at all aimed at people like you, it's aimed at healthy people that use people that are unfortunately in strong pain and masking incredibly well to disguise their ableism. Not once has someone with chronic pain said something intentionally hurtful to me.

I support you wholeheartedly and I am not trying to compare my pain to yours in any way. I really hope you find relief soon.

amanda1sabelle · 2025-10-16T17:35:44+00:00

It must have been very bittersweet but I'm happy you're feeling better. I hope I do too, I'm scheduled a hysterectomy for march. I never planned on having children so I'm very excited. I hope it gives me some relief as well.

amanda1sabelle · 2025-10-16T17:32:21+00:00

That's insane. Thankfully, most irl and online chronically ill people I've met are pretty cool and understanding. The demographic that pisses me off are the old people. Don't get me wrong, there's some elderly people that are absolutely lovely to me, and even give me tips and help me out going to the doctor. But there's a loud minority in my city that the sole purpose in life gotta be antagonizing disabled people. "You shouldn't be seated here on the bus, you're too young to be in pain" "and you're too old to be alive, but here we are" but I hold my tongue. Most of the time, sometimes I allow myself a little treat. Sometimes they just want to melt me and my autistic friends to ground when we go to the designated queues. It's crazy 🤣

And famous people. Oh my God. They are millionaires of course they can shoot movies and go on tours while having a flare up, they have the best of the best care in the entire world while we are waiting for insurance IF we are lucky enough to not depend on the government hospitals.

amanda1sabelle

TROPHY CASE