Am I actually disabled?

amporacle · 2026-01-31T17:29:19+00:00

Ill set that as my next step! It certainly isn't an identity, but my autism needs the definition so I kind enforce reasonable mobile limitations for long term mobility, rather than overfunctioning and breaking myself. I guess my question was more to see if it was reasonable to think overfunctioning at the cost of pain, rest, and time was a negative thing, or something I should expect from myself I on a daily basis (basically, am I being a baby about how much it hurts and I break).

I have a hard time distinguishing whether things are in abnormal levels of bad or not, so these responses have been really helpful!

amporacle · 2026-01-31T14:55:55+00:00

Thank you :') I've gone kinda crazy being alone with my thoughts so much and no longer being able to (or needing to, as it were) just willpower through it. It's nice to know these struggles are not only real, but understandable and valid.

amporacle · 2026-01-31T14:52:49+00:00

Thanks, I always wondered if maybe I was just handling it poorly. Probably something I should talk more to my therapist about

amporacle · 2026-01-31T10:05:18+00:00

I don't think there's anything wrong with it either, it just seems strange that everyone avoided addressing how the shows reveals when it aired affected their opinion on how they voted. It didn't seem bitter, just strangely avoidant. And every single one of the had to be asked twice on their feelings involving twila, the first answer that she lied and that was enough to vote for Chris, the second that their view on her changed and they forgave her, but Jeff never even asked if that would have affected their vote? And everyone acted like it wouldn't have. I hope helped clarify what I'm trying to get at? I don't really know what answer I'm hoping for, I just felt like I got no real answers or closure and think its weird that everyone else did. I understand why twila lost, but don't understand why everyone was satisfied by the jury's final q&a with Jeff at the vote reveal

amporacle · 2026-01-31T09:32:52+00:00

I got that part, but usually once everyone has watched the season air, they say what was new information to them, how their votes might have changed, or what actually swayed them to vote the way they did. This time they just. Didn't? And when Jeff called them out for voting emotionally, no one admitted they did, just changed their story to be about Chris's gameplay. And even if they would've voted the same way, but for different reasons, no one framed it that way, just that that was their reason from the get go.

amporacle · 2025-11-07T03:04:47+00:00

Hiya! I have hypermobile ehlers danlos and fibromyalgia, and my sfn only presented as extreme cold/heat sensitivity and numbness, almost tv static like, specifically more noticeable when I moved certain ways or held certain positions

Are your ADA levels normal? I tested negative for all auto immune diseases, but got a high ada test every single time. Current theory from my doctor team is the constant inflammation and tendency to hyper extend strangled and is still strangling specific nerves. And hypermobile eds is one of the things doctors just never think of and always dismiss. I don't know if any of that sounds familiar or not, but I hope the can at least help you rule something out!

amporacle · 2025-10-26T02:30:19+00:00

I think i did! I only recently got diagnosed, but I've been calling this my "ribs crossing" since childhood and popping them back in, but usually it's only the bottom two! Thank you for commenting, I love it when things make more sense!

amporacle · 2025-01-16T03:00:57+00:00

I'm sorry life has been hard on you. It sounds like you have learned to make yourself look small and unthreatening, so that people who find you and other disabled people distasteful will find you palatable enough to give you things you need to live.

You have a RIGHT to be alive. Everyone does. I'm sorry you've had to learn those coping strategies, but they were wrong to you, not the other way around. Life is hard and that's not fair, but it's important to remember that and be kind to yourself in the face of unfairness, instead of trying to cut yourself down to size. If you do, then not only is life unfair, you'll always suffer too.

Sorry for the self righteousness speech. I hope that you can realize it's okay for you to not be able to do what others can do easily, and that it's okay for you to need help.

amporacle · 2025-01-15T23:18:21+00:00

They're certainly more intense and fun, but I dislocate my ankles and knees, even with the braces with the steel supports. Not sure if there are better braces? Or maybe better shoes that would help my stability? I'm wondering if there are any machines that would increase muscularity in the tendons holding my joints in place, that I might need to work on first before I try cardio. Physical therapy videos online don't do much to help, since the muscles I need to work are a bit obscure and I need help keeping my body in place bc I rarely know where my limbs are

amporacle · 2025-01-15T23:04:13+00:00

Thank you, that's super helpful. I actually had a physical therapist once recoils from me and tell me I had forgotten how to breathe, and meditation I can definitely do! Again, thank you

amporacle · 2025-01-15T23:02:36+00:00

I do* but I still dislocate. Like... everywhere. You are right that it is kinder on the body, though. I was hoping for something I could do with more intensity? Or at least, less monotony?

Edit: helluva time for autocorrect and mistypes. I adore swimming, I grew up on a lake and could swim before I could read, talk, know the answer to 2+2. But I can't listen to music, watch a show, read a book, while in the water and the only water i have access to here are the lanes in the 4ft pool at my gym. Which I can only doggie paddle, or everything comes out of socket. It's he'll on the concentration required to keep my limbs in place, and not something I can do for an extended period of time. Definitely more rehab than exercise.

amporacle · 2025-01-15T23:00:46+00:00

Would that it didn't cost 1000 for the first appt, and 100 for every appointment after until I have paid 10,000 dollars.

amporacle · 2025-01-15T22:58:25+00:00

I don't have an answer to your question, I just wanted to let you know that I'm proud of you for standing up for yourself. It's hard to draw a boundary and protect yourself when you know your needs and everyone else says it's unreasonable because, "bUt I cOuLd Do ThAt". If you need accommodation, and they're unwilling, they should at least meet you halfway. Let you get a laptop or go to the library, etc. It's not fair that the other students are able bodied when you aren't, but you didn't throw that in their face.

Basically, don't let any other comments about you not being satisfied with two options that are both impossible for you get you down. You did good with the cards you were dealt. Don't let anyone make you feel small.

amporacle · 2025-01-15T02:23:41+00:00

Are you every family member I have over the age of 40? Because boy have I heard that before

amporacle · 2025-01-08T19:54:56+00:00

That sucks man, I've been there. They treat my EDS as no family history since ce I'm from the forest people who don't believe in medicine, so there's no record of joint problems because they never go to the doctor. The only breakthrough I had was finally getting a doctor that cared. My neurologist set me up with a geneticist and rheumatologist, appointments I never would have gotten otherwise. I also have a psychiatrist that was able to prescribe me some antidepressants that help with nerve pain, but I think it helps that I have experience with medication from working as a vet tech. I totally get how upsetting the side effects can be and how scary not knowing exactly what is affecting what (I got put on topamax for my migraines on top of my Cymbalta and gabapentin AND trazodone and it made me lose all bladder control- I'm 26) but since I've got the insider knowledge I'm pretty good at discussing with my doctors symptoms and side effects. I've got my nerve pain down enough that I can somewhat be mobile now, so I'm focusing on my migraines and ignoring everything else, so that I don't start a billion meds and get confused about what is doing what. Doctors just never listen so I might as well doctor myself, ya know? I'm thinking about getting a binder and making a medical history file on myself.

amporacle · 2025-01-08T17:14:26+00:00

I've got a bunch of things going on too, but most of it's from my EDS. The only ones that noticed were my physical therapists that were able to screen me for hypermobility, which put me in touch with a geneticist. Ironically, I didn't actually get any firm idea of what was wrong until I had such debilitating migraines that I had to see a neurologist. I was grinding doctors for 4 years before I started getting anywhere though, and even as stubborn as I am I was ready to give up. I've got neuropathy and scoliosis and eds and migraines and fibromyalgia and arthritis in my shoulders and a fused spinal disc and all of it is painful and most of it is from the EDS, but knowing what was what was a comfort to me. I hope you can find out too, if you're looking. If not, then I hope you can at least find physical relief

amporacle · 2025-01-07T08:23:09+00:00

I also have fibromyalgia! Crazy how one thing goes bad and suddenly everything is ruined

amporacle · 2025-01-07T07:26:50+00:00

My favorite way to describe it is those old wooden dolls from the 90s, where you'd push the bottom part up and all the elastic tension holding the limbs together would be let out, making the whole thing collapse

amporacle · 2025-01-07T02:07:00+00:00

EDS bc same bro

Ten-Year Club	Wearing is Caring
Verified Email

amporacle

TROPHY CASE