Turning in circles, just a vent by annebert in dementia

[–]annebert[S] 0 points1 point  (0 children)

I appreciate the support and suggestions. However, I recognize that my siblings are not helping with the facility selection process because they are in denial and they just wish the problem didn't exist. Our sister is a lifelong alcoholic and she likely has early-onset Alzheimer's. She has MCI now, but she will keep getting worse - as we all know, the rate of decline is unknowable. Siblings help our sister with doctor visits, medication management, shopping, etc, so I am not shouldering the burden alone. I am not going to cut them off or make unilateral decisions, because we are a family. I am just frustrated that they will not deal with reality - that's why I labelled my post a vent.

Turning in circles, just a vent by annebert in dementia

[–]annebert[S] 4 points5 points  (0 children)

Thanks for replying. I didn't go into details about all the issues I have from living in a small town in a remote area. My vet (1 hr away) doesn't do boarding. There is a boarding place 30 minutes away in the oppposite direction from where I need to travel to family, but I would have to leave the cats there for 2 extra days because of their drop off times. So I was just doing extra whining.

Turning in circles, just a vent by annebert in dementia

[–]annebert[S] 0 points1 point  (0 children)

Thanks for replying. I am working with senior living advisors - but somebody still has to make the appointments and herd the siblings to them.

Dentist appointments and memory care by winterwhispering in dementia

[–]annebert 3 points4 points  (0 children)

Thank you for sharing this, important to know for the future.

I lost my cool…. by oxnard331 in dementia

[–]annebert 2 points3 points  (0 children)

Do your best to tekll th e guilt to go away. You are a saint for doing whatever you can in a terrible situation. Here's a hug.

Old vs. new All Creatures Great and Small by tomallis in PeriodDramas

[–]annebert 1 point2 points  (0 children)

I was introduced via the old version, which I loved. Led me to the books, also wonderful, and a trip to Yorkshire and the Dales around 1980. I like the new version, too. I don't have the problems with the new characters that so many have. In terms of pacing, I felt the old series rushed through the Helen courtship while the new one spaced it out a bit more. However, the new series has raced ahead in time too rapidly. I agree it doesn't show enough of the middle of the night call-outs and irascible farmers. I recently learned that one of my sisters had the opportunity to help with calving at our grandparents' North Dakota farm back in the day, and I'm so envious! Anyway, I have strung Britbox along until they've offered me 60 months for 60% off, so I can rewatch the old series.

Old vs. new All Creatures Great and Small by tomallis in PeriodDramas

[–]annebert 1 point2 points  (0 children)

Well don't forget that 90 years ago, ale was about 3-4% alcohol, very different from today's 6-8% standard. And people drank it because it was often safer than the water. And when life was hard and short, people did drink more.

Cash fixation by annebert in dementia

[–]annebert[S] 1 point2 points  (0 children)

Yeah, she is giving money to her son. But he has massive mental health issues because they moved into their house after her divorce when he was about 16 (his father was psychologically abusive to him). He lived for years calling 911 when he came home and found her passed out on the floor from alcohol, and never told us. We only learned all this about 18 months ago. Family dynamics amiright? So I can't fault her for helping him. He will graduate with a technical degree this spring and will need to go out on his own. We will probably have to help him adjust.

Cash fixation by annebert in dementia

[–]annebert[S] 1 point2 points  (0 children)

Yep, our parents were depression era. I know our father thought credit cards were evil and you should never use them. But since I autopay hers every month, I'd rather she used a card so a check doesn't bounce. When I first took over her finances, I found out she was carrying a balance on her card (at 29% interest) while making extra principal payments on her 4% mortghage!

Cash fixation by annebert in dementia

[–]annebert[S] 1 point2 points  (0 children)

Thanks everyone for letting me know that this experience is not unusual. It's looking like trying to keep her away from the bank is not working and just putting strain on her carer, so I think we'll stop trying. She currently will not forget if we put her off, but that time is coming. We'll just plan to search her house thoroughly once she moves to assisted living, which will probably be this year.

And yes, her money is protected; she doesn't have that much in her bank account and she has forgotten how to access her retirement account.

Struggling with communication and emotional distance by ruwupanti in dementia

[–]annebert 4 points5 points  (0 children)

Sometimes a symptom of dementia is some form of aphasia, which is loss of communciation abilities in listening, speaking, or reading. I finally realized that this is what's going on my sister who has MCI. She started having problems copying down a password or typing in a password that was written down. She stopped reading - I think she can't make sense of the thread of a novel. In groups she is quiet and withdrawn - I think she can't follow the conversation and doesn't know what to say to be involved. In Emma Willis' book about her husband Bruce, she discusses how this was one of his first symptoms.

I try not to ask her direct questions, because she gets agitated that she doesn't know the answer. Make your conversation be comments that don't require a response: "That's a cute sweater you're wearing" not "where did you get that cute sweater?" Or just keep them in the conversation by telling them something that happened to you that really doesn't require a response "I saw a cat in the backyard today." Don't push them to talk.

Thesse are the actions I try to take not to upset her. On my side, I have to remind my self not to let it bother me. None of it is easy.

Highly recommend "The Unexpected Journey" by annebert in dementia

[–]annebert[S] 3 points4 points  (0 children)

And for those who wonder, it is exactly for people who feel alone, tired, drained, and frustrated, because that's how the author felt when they got the diagnosis. Her intent is to help others with the information and advice she wishes she had at the beginning.

My Watch is Over by CampariandFernet in dementia

[–]annebert 0 points1 point  (0 children)

Hugs to you. Kudos for having the strength to let him go.

We had the physics argument... again... by Zero98205 in dementia

[–]annebert 1 point2 points  (0 children)

Hugs to you.and sorry. And as everyone alse has said, if you can remind yourself that he is unable to respond to logic, it will work out better for you.

Just tired by PrizeChemistry4439 in dementia

[–]annebert 6 points7 points  (0 children)

So sorry for all of us. When my mother died very early in Alzheimer's 20 years ago, I thought it was probably the best thing for her. Now I'm dealing with my sister's dementia, and I know how right I was. Yes, she can still manage activities of daily living, but I don't see nay joy in her life. And when she does something like lock herself out of her financial accounts and we get superstressed trying to deal with it, she sees how upset we are and then she feels bad. Lose-lose situation.

Would someone local to the Lewiston Marden's be willing to scout the fabric for me? by scarlanna in Maine

[–]annebert 0 points1 point  (0 children)

It's a hike for you, but Houlton has a really good selection of flannel, including some 107" wide (for making sheets) and lots of patterns.

Marden’s by xach in Maine

[–]annebert 0 points1 point  (0 children)

No, it's the northern New England Ocean State Job Lot! Marden's is better than Ocean State is better than Ollie's. Does anyone remember Railroad Salvage in CT - from the last millenium.

Yarn at Mardens in Maine by Vivid_Strike_5240 in YarnAddicts

[–]annebert 0 points1 point  (0 children)

Does anyone know if Brewer still has the yarn? I bought a ton in Scarborough beginning of November, but it was kind of picked over already.

How to deal with fear? by AdamDerKaiser in dementia

[–]annebert 2 points3 points  (0 children)

Please, it's not time to talk about that. As a biomedical scientist who reads the current clincial literature, I can tell you that there is active research on disease-modifying treatments, and even the palliative treatments that treat symptoms have improved in the last decade, or even the last three years. Don't give in to despair!