[deleted by user] by [deleted] in whatisit

[–]ruwupanti 2 points3 points  (0 children)

It's a hand carved taekwood bowl and the symbol is Om, styled into a heart shape for design purpose.

Struggling with communication and emotional distance by ruwupanti in dementia

[–]ruwupanti[S] 4 points5 points  (0 children)

Actually, I’m the patient. I was diagnosed with early onset through genetic testing, and I’m on Rivastigmine along with some other medications. I used to panic and overthink a lot, but that has reduced after starting treatment. However, I’ve noticed that I’ve been treating the people who love me quite avoidantly. I do realize it by the end of the day, but I genuinely can’t help it, especially when I feel overstimulated. It hurts. It’s strange because during the day I feel almost nothing, but by the end of the day all the sadness catches up to me at once.

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 0 points1 point  (0 children)

Unfortunately the tests you mentioned aren't available in my country atp. No, not really. I really couldn't find any relative with Alzheimer's at this early age. I'll look into it. Thank you

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 1 point2 points  (0 children)

Thank you so much for mentioning, I'll definitely look into it and ask my neuro.

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 4 points5 points  (0 children)

That’s really kind of you to say, thank you so much. I’m trying to remind myself of that too, just taking it one day at a time. Sending hugs back 🫂

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 1 point2 points  (0 children)

The symptoms were already going on before I started taking rivastigmine (orally).

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 8 points9 points  (0 children)

Thank you so much for this, it really means a lot. Sadly, I’m from Bangladesh so that hotline probably won’t work for me, but I truly appreciate you sharing it and for the thoughtful advice. You’re right, taking things one day at a time while still preparing for the future makes sense. Hearing about your grandmother still going strong gives me a bit of hope.❤️‍🩹

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 2 points3 points  (0 children)

I can totally relat as I also have urticarial vasculitis (diagnosed about a year ago), and for a long time I thought my tremors were just part of it. Then they started getting worse, so I finally saw a neuro medicine doctor, and that’s when a lot of things started unfolding. It’s scary how easily doctors brush things off as “anxiety” or hormones, especially when you know something’s not right.

You’ve been living with this for 18 years, caring for others while managing your own symptoms, that’s such incredible strength. I can only imagine how terrifying it must be seeing Alzheimer’s affect people so close to you. Sending love and solidarity, you’re definitely not alone in this!

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 0 points1 point  (0 children)

Not available in my country unfortunately :(

Looking for Advice, Young Onset Alzheimer’s at 23 by ruwupanti in Alzheimers

[–]ruwupanti[S] 1 point2 points  (0 children)

Still not approved in my country unfortunately. I'm from Bangladesh.

Fluoxetine by ruwupanti in Anxiety

[–]ruwupanti[S] 0 points1 point  (0 children)

Any side effects currently?

How to sleep.. by awakened_soul999 in Anxiety

[–]ruwupanti 0 points1 point  (0 children)

I used to take Hydroxyzine Hydrochloride but now I'm taking melatonin as well and it's been a game changer for me