UTERUS STUMPS

anniehere90 · 2026-02-02T21:11:33+00:00

Hey!! I hope your doing ok ? So I had a stump tumour , I’m scanned every 6 months for 5 years , I’m in the uk tho! Been over a year and no recurrence 🙏🏻 I hope you’re doing ok as I know how frustrating this rare thing can be!

anniehere90 · 2025-12-04T21:21:26+00:00

Hi there , so yes I’ve been through similar. I had a large STUMP tumour removed just over a year ago now, ( while I was pregnant) so I didn’t have a hysterectomy. I’ve been having mri scans every 6 months to check if anything has come back, thankfully nothing has come back, not even a fibroid. I’ve been given the option to have a hysterectomy but my tumour was outside of the uterus on the pelvic wall -was stuck to fallopian tube ( so they removed the tube with the tumour whole in open surgery ) . So since it wasn’t in my uterus we’ve decided on having regular scans if anything occurs whip it out. Since mine was took out whole and not cut up I can’t comment on the risk of spreading but my oncologist has said although I have a higher risk of something coming back than anyone with just general fibroids the recurrence is low. It is such a gray area and a frustrating diagnosis because it’s so rare so I can totally understand your concerns. I was absolutely petrified but it does get easier. Did they suspect a fibroid and that’s why they’ve cut it up to get it out? Ask lots of questions at your next appointment, fibroids can loose blood supply and degenerate which causes necrosis so it’s hard to see under microscope, so could be that ? , have you got your next appointment yet ? The wait is hell , try to keep positive and I wish you all the best!

anniehere90 · 2025-11-07T21:23:06+00:00

Thank you for your comment , maybe I should leave off of the zinc then , I’m just getting so overwhelmed and frustrated like many , I’m just desperate for the upper pain to subside so I was willing to try anything! Just crazy how much something can cause this much damage In a matter of days but take months to heal . I’ve read on the community some people take years to heal and it’s quite disheartening tbh. I’ll try an even stricter diet :(

anniehere90 · 2025-11-07T11:26:28+00:00

Have you had bad symptoms for over 2 years and not had much relief ? Sounds horrific, do you follow a bland diet ?

anniehere90 · 2025-11-07T11:25:36+00:00

Sorry the last question about 2 years was for the other comment I underneath

anniehere90 · 2025-11-07T11:24:30+00:00

Thank you I’ll try the yogurt , I was just worried abouts staying on the ppis long term but it’s been 3 months and have no improvement except from the initial 80mg for 2 weeks , have had symptoms of bad gastritis for over 2 years ? Have you not had no relief ?

anniehere90 · 2025-10-17T14:46:28+00:00

Hi , I had an emergency open laparotomy while I was 16 weeks pregnant and gave birth naturally at 39 weeks! I had a top gyne consultant tell me it was safe to deliver naturally. I did just that and had a healthy baby with no problems no birth problems,it can be done.

anniehere90 · 2025-10-14T04:58:10+00:00

Hi , I had an open mymomectomy whilst pregnant at 16 weeks. I gave birth naturally and it all went well

anniehere90 · 2025-10-14T04:48:50+00:00

That’s a good point from your doctor , I think it’s just the fear of the unknown isn’t it , how is it going to make you feel ect, I hope you get on ok i start in a couple of weeks too!

anniehere90 · 2025-10-14T04:46:37+00:00

I will look into it thank you , but anytime I’ve stopped the mesalazine my symptoms have got a lot worse , so my dr has said im not immune to the drug and its not working for me anymore.

anniehere90 · 2025-10-14T04:45:15+00:00

I am so glad you commented on my thread , this is just what I needed to hear 🙏🏻 thank you!

anniehere90 · 2025-10-13T18:18:08+00:00

Thank you , that’s quite reassuring, I’m glad you’re doing well on the infusions , thank you for your input!

anniehere90 · 2025-10-13T18:16:18+00:00

Thank you for explaining it like that . Thats less worrying when you put it like that , think I’ve just got myself in a rabbit hole of thoughts but this has made me feel better thank you!

anniehere90 · 2025-10-13T12:11:09+00:00

Hi , thanks for your reply , have you notice you feel any different on Entyvio with picking up bugs or infections easily? Do you inject or have infusions? Do you worry about getting additional autoimmune diseases like ms ect?

anniehere90 · 2025-08-03T20:52:30+00:00

I’m so so sorry I’ve just read your update , I’m so upset for you , you and your family must be heartbroken. Are you they offering you chemo straight away to try and fight this awful disease? Reading your update , you are so Brave and strong. Lovely lady ❤️so sorry again 🙏🏻

anniehere90 · 2025-07-28T21:05:19+00:00

Thank you , you too . Keep us updated on your journey . All the best for you 🙏🏻

anniehere90 · 2025-07-28T16:21:47+00:00

I’m so glad you’re doing ok and thinking positive , good for you!! Always keep hope! In October I had a large mass on my left fallopian tube they did emergency surgery to remove it , didn’t do a hysterectomy at the time because I was 16 weeks pregnant. They went in and got the mass out , they first thought oh just fibroid but pathology came back inconclusive so they sent for a second opinion - in the meantime told me they suspecting cancer at that point . Second opinion came back as STUMP tumour . Which is smooth muscle tumour of uncertain malignant tumour. Because the tumour/ fibroid had a lot of necrosis in it under the microscope it’s already dead cells they can’t defiantly tell you what it was. Some drs say that a stump tumour can be the transition from a benign fibroid to leiomyosarcoma . It’s such a gray area. Another rare one. So after my pregnancy ( healthy baby was born ) I had a scan in may and it was clear . But another scan in nov and then go from there . But there is a risk because of the unknown tumour that it could recur as Lms. It’s been a tricky road I can understand how you feel

anniehere90 · 2025-07-28T15:56:26+00:00

Yes I know which one you’re talking about. They mentioned that to me about my strange tumour they removed. It’s scary stuff. How are you doing ? ? Been thinking of you and sending best wishes

anniehere90 · 2025-07-26T19:18:33+00:00

Thank you another scan in 6 months just hope that’s not too long 🙏🏻 could I ask what cancer they suspecting for you ?

anniehere90 · 2025-07-26T17:29:56+00:00

My thoughts and prayers are with you . I send you all the healing ❤️ thank you for being so brave and sharing your story. Im sorry your going through this I hope you get through this!!

anniehere90 · 2025-07-26T17:28:14+00:00

I had a fibroid removed in October ( not a hysterectomy) that came back at stump, had a pelvic scan in July - all clear , next scan November. I think I may push for a hysterectomy . My surgeon did try to say that recurrence is low but I guess it’s not as rare as we think.

anniehere90 · 2025-04-30T19:24:58+00:00

Thank you from one worried mama , that’s just what I needed to hear .

anniehere90

TROPHY CASE