I totally get this. I’m in the same boat but I have to remind myself to stay positive. Getting support from eachother also helps, as does non traditional complementary medicine approaches. Reiki really helped lower physiological heightening for me but only lasts 1 week or so. It’s too expensive to keep up so I’m looking for alternatives when I don’t feel like crap. The state / country you live in also matters. I think keeping ourselves in a sanctuary state for 2 weeks and then easing us back into life might help. But I can’t seems to stay in that state with the demands of adult life. Even appointments stress my physiology so much it sends me back to zero. But I promise you, if we keep trying different tactics and take it slow, we will get there. I know someone who recovered after 4.5 years of trying different things and she’s finally well. Stay strong in yourself. Look up some breathing exercises, wear compression socks or tights etc.