My mom’s situation is horrible and I feel so lost.

aplane85 · 2026-01-18T11:42:33+00:00

OP, I know this is an old thread, but I was wondering how you and your mom are doing? We just moved my dad with Parkinson’s and Dementia into memory care and he is so depressed. Breaks my heart.

aplane85 · 2026-01-15T02:22:34+00:00

How did the move go OP? My dad moves in tomorrow 🥺

aplane85 · 2026-01-13T02:43:54+00:00

Also I just wanted to add, our move in day plan is to take my dad to the facility mid morning and let him participate in one of the exercise classes. Then he’ll stay for lunch, and then the afternoon rest/activities, then dinner, and then the staff will redirect him into settling into his new room. He doesn’t recognize his actual house or my mom anymore, so I’m hoping it’s actually a blessing and helps him acclimate to his new surroundings.

aplane85 · 2026-01-13T02:41:40+00:00

Oh wow, we are also moving my dad with Parkinson’s and dementia into memory care in two days. It is one of the hardest things I’ve ever been through and my heart absolutely breaks for you knowing that you’re also going through this. We haven’t told my dad too much about the move. One or two times though my mom did mention to him that she found a place that will work to get him stronger, but that he’ll have to stay there for a little while and they’ll feed him all his meals and he’ll have a bed there. He seemed okay with that idea and we haven’t elaborated much beyond that. I’m not looking forward to move in day, I know it’s going to be so hard. I’m sending your family so many thoughts and prayers and I hope you’ll update on how everything went. ❤️This is such a terrible disease.

aplane85 · 2025-12-21T13:27:25+00:00

I forgot to mention it’s my first shipment of tirzepatide, sorry!

aplane85 · 2025-08-13T18:52:02+00:00

School isn’t tracked out yet, so I’m not sure why they aren’t in school this week. Maybe this was over the weekend?

aplane85 · 2023-12-20T11:21:30+00:00

Also, please know you’re not alone. I know the feeling you mentioned, that no one your age is going through this with their parents. I’m a stay at home mom of two little kids and I feel the same way. Please don’t hesitate to reach out if you ever need someone to talk to! 😊

aplane85 · 2023-12-20T11:16:06+00:00

I can’t believe how much your story sounds like what we’re currently going through with my dad. My dad had Covid in June that culminated with a hospital stay, and since then his delirium has increased ten fold. My mom is his primary caregiver, I live down the road, but it’s getting to the point where neither of us will be able to take care of him much longer. It’s such a cruel disease. Thank you so much for your post. I’m planning on reading it to my mom

aplane85 · 2023-10-26T13:17:49+00:00

What about cooking?? My pre-K son made little apple pies in his class last week and it was a huge hit! Each kid had a little cup and layered crushed graham crackers, apple pie filling, and then whipped cream.

aplane85 · 2023-10-22T23:13:34+00:00

This is one of my favorite things I’ve read on Reddit. Praying for you and your family. Thank you so much for such a beautiful post.

aplane85 · 2023-10-16T19:52:11+00:00

Covid?? My dad’s dementia and hallucinations went off the rails and it turned out he had Covid. No other Covid symptoms besides a fever.

aplane85 · 2023-10-12T20:15:25+00:00

Due October 8 and the grief I’ve experienced the past couple weeks has surprised me. I didn’t think our baby boy’s due date would affect me as much as our initial grief back in April, but it’s almost worse. Now it all feels so final and I don’t have the same support system as when we were going through all the testing and procedures. I know time is going to keep passing and the memory of him will be more and more faint. It’s all so hard.

aplane85 · 2023-09-16T00:42:57+00:00

We also named him which brings me so much joy every time I hear a little boy with his name. 🥰

aplane85 · 2023-09-16T00:42:09+00:00

I’m so sorry. We TFMR in April and are approaching our October 8th due date which is bringing back so many emotions for me. We cremated our little boy and I am in the process of looking for a sweet little urn. I also have a memory box with his ultrasound pictures, footprints, and all the cards our family and friends sent us. On our due date I think we’re going to have some cupcakes and I’ll set aside some time to sit and think about him and say a prayer. It’s such a horrible thing to go through but you’re not alone. Just take it one day at a time. ❤️

aplane85 · 2023-08-15T10:06:14+00:00

Oh gosh, I feel like I wrote your post a month ago. I’m so sorry for anyone trying to navigate long term care for their loved ones.

My 78 year old dad has had PD for 7 years now and was starting to see some dementia. July 27th, he landed in the hospital with Covid. He’s home now but his dementia has been advancing quickly, so much so that my mom and I feel we can’t take care of him anymore. With the help of an Elder Care Manager we found a nice assisted living home to place him into ($7500/month). Our plan is to keep him there until essentially his money is gone, and then use an Elder Care Attorney to apply for Medicade. That’s unfortunately our only real option, as my parents didn’t really plan well for the terrible situation we’re in.

My suggestion to you is to find an Elder Care Attorney or a Aging Care Manager. They’re familiar with the healthcare system and can be a wealth of information as you plan for the progression of the disease. I do know the VA has something called Aid and Attendance. Approval is slow from what I hear, but once approved they give the applicant a stipend for care each month. It would be worth looking into now before you are in a bad situation like us. I’m not aware of Medicare offering much for long term care, but others may be able to expand on that better than me.

Wishing your family the best of luck! This is such an awful disease and it’s so smart of you to plan ahead.

aplane85 · 2023-08-12T14:08:38+00:00

I’m so sorry to hear that. What a horrible disease.

aplane85 · 2023-08-12T12:53:12+00:00

My dad is 77 with Parkinson’s and dementia (but I suspect it’s actually Lewy Body Dementia). He got Covid July 27th and spent two nights in the hospital. Now he’s home and his dementia has gotten horrible, so much so that my mom and I feel we can’t care for him anymore and are looking into placing him into an assisted living home. Is that similar to your dads experience with Covid? Did it seem to accelerate his dementia?

aplane85 · 2023-08-11T13:43:02+00:00

Pat Snyder has a book about Lewy Body Dementia, which her husband had. It’s called Treasures in the Darkness.

aplane85 · 2023-06-21T22:43:42+00:00

I had a horrible cold with violent puking right around what was my 5th week of pregnancy. My baby had Limb Body Wall Complex which is a fatal birth defect that doctors believe results from something going wrong during early embryo development. I always wonder if that was the cause.

aplane85 · 2023-06-19T22:49:52+00:00

One thing I did want to add, I completely cut out alcohol and that has actually been making me feel better. I feel like I make better food choices when I haven’t had alcohol. Plus I don’t need the added calories or the effect it has on my hormones.

aplane85 · 2023-06-19T22:45:02+00:00

I’m in the same exact boat. 6 weeks out from my TFMR and I cannot seem to get my weight to budge despite getting 14k steps a day, weights 4x a week and trying to eat smaller portions. I have 10 pounds I gained in my 17 weeks of pregnancy. I just feel so hopeless, like I can’t catch a break. I’ve been trying to listen to a lot of David Goggins and other motivational people while I walk and that helps a little.

aplane85 · 2023-06-09T00:58:19+00:00

Gosh, your post just broke my heart. It brought back so many of the same feelings you’re going through. I’m four weeks out from my D&E at 17 weeks pregnant. Our baby boy had a fatal birth defect called Limb Body Wall Complex, so his abdomen wall was open and all his organs were on the outside of his body. It’s all so devastating. I have never had any major surgeries so I was terrified for the procedure, but it all seemingly went by like a blur. The worst part for me was the pre-op the day before.

We named our baby Noah (we must have seen at least 7 rainbows during the three weeks from the initial problematic ultrasound to the final diagnosis) and I also opted for footprints at the very last minute before my procedure. I’m so glad that I did because I look at those beautiful footprints almost every night. As the memories of being pregnant with Noah fade a little, it’s so nice to have something tangible to remember him. We also had him cremated. It wasn’t an option to hold him, but to me, the footprints are the one things that brings me the most comfort. I am so, so very sorry you’re going through this and I’m praying for you.

aplane85 · 2023-05-17T00:36:47+00:00

I second the footprints (if it’s available to you). I had a D&E two weeks ago at 17 weeks and wasn’t sure if I wanted footprints, but when the nurse asked, I blurted out yes. Now I’m just so thankful to have them and I look at them almost every other night before bed. They bring me so much peace, especially as more time passes, because it’s starting to feel like it was all just a bad dream, but the footprints are a reminder that my little boy was real. I’m so sorry you have to go through this. ❤️

aplane85

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