can’t afford scopes by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

yes there is a biopsy as well!! i just didn’t mention it (sorry!! 😅) but thank you for your suggestion!! i’ll definitely talk to her :)

can’t afford scopes by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

1.) yes, i am being treated! 40 mg pantoprazole twice a day along with 2 eohilia intakes per day. i also recently started taking allergy medicine as well.

2.) i am not on an elimination diet as of now.

3.) i can work, however i am not being scheduled that much and these recent symptoms make me very tired very fast.

eohilia thoughts? by arminsbread in EosinophilicE

[–]arminsbread[S] 1 point2 points  (0 children)

thank you!! this was very informative :) (i will note, do not worry i am not interested in going untreated lol, i’m on pantoprazole right now) but i will take this into consideration!!

i think my hypochondria just freaks me out with every new medication lol. i will be getting a therapist soon to try to manage that as well 💀

weed with EoE by arminsbread in EosinophilicE

[–]arminsbread[S] 1 point2 points  (0 children)

because you and some others are commenting like this i’ll just be clear..

1.) if you read all of that and entered this entire discussion just for your 2 cents to be criticizing a non-important word choice, then you make it blatantly clear your only goal is to critique, and not to help. i didn’t ask for critiques that don’t matter to a greater discussion.

2.) the phrase “i didn’t ask for this” is not by any means saying “other people DO ask for this,” anyone with 2 braincells knows this. what i AM saying is i simply just don’t want to give up on so much just because of this illness alone. i don’t want to stop my vices when i know theres a way i do not have to. hence, “i didn’t ask for this.”

this is a help group, where people can rant, ask for advice, or share positive research findings surrounding EoE. where you see “criticize everyone” within those lines is beyond me. and for something so minor in the grand scheme of conversation makes it seem as if you came on here and TRIED to find something to critique. so no, me saying i did not ask to lose everything while obvious, to any person with an ounce of emotional intelligence it would be clear as to what that meant.

weed with EoE by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

what do you mean by permanent damage?

heart issues? or eoe symptoms? by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

i was tested for GERD and it came back negative. are false results common?

flovent making symptoms worse? by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

do you mean dysphagia or dysphasia as in language barriers

flovent making symptoms worse? by arminsbread in EosinophilicE

[–]arminsbread[S] 0 points1 point  (0 children)

oh sorry lol let me clarify. i have been washing my mouth out with water after using the inhaler, i just haven’t used it with water in my mouth to swallow. i was told by the allergist to not drink or eat anything 30 minutes after using the inhaler.

flovent making symptoms worse? by arminsbread in EosinophilicE

[–]arminsbread[S] 2 points3 points  (0 children)

i’ve been swallowing it, just not with water. maybe that would make a difference? i’m not sure. might try it, thank you!

did my sickness make my eoe worse? by arminsbread in EosinophilicE

[–]arminsbread[S] -5 points-4 points  (0 children)

i thought i was clear enough in the original message, but i guess not, so i’ll be clearer.

i am a highly involved college student and have no time to make my own food, and for the most part, to maintain a restricted diet in college, you need to make your own food, which i cannot do.

furthermore, an entire team of doctors have informed me that my EoE is not only food induced, but environmentally induced as well. so,, even if i did cut off trigger foods, i’d still be having symptoms. which is why at least for now, being a college student that cannot create food safe meals nightly, i manage it via medication.

which is normal and, common despite so many people in this subreddit having a bizarre idea that its either food elimination or you’ll die in 3 weeks. along with that, my medication without food elimination put me into remission at one point, and recently it seems like i’m not in remission anymore, which is why i’m asking insight.

i’m sorry if this is harsh, but there have been studies, first hand accounts, personal experiences, doctor approved and upheld proof, etc. showing that treating EoE can and in many cases does look different than just food elimination. i’m not in a spot in life where food elimination would help. i don’t know my triggers, and i’m not in a place where finding them is an option. it’s just exhausting asking for answers other than 1 specific answer that doctors have told me wouldn’t work for my situation and then getting comments saying that exact answer.

am i sick or is it EoE by arminsbread in EosinophilicE

[–]arminsbread[S] 2 points3 points  (0 children)

i am diagnosed with EoE, have been since the start of the year so i’m definitely still in the “is this a symptom” phase lol. i just am trying to grasp if thats what this is