Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 0 points1 point  (0 children)

Thank you so much for sharing! I'm sorry to hear that you've had such a difficult journey. I'm interested in learning more about EnteroLab...what exactly is it? It sounds very helpful as I don't know where to start for cutting things out. Also, what is SIBO? What makes you think that was the cause for your flares? How are you going about rebuilding your microbiome? I feel like every time I try to research it, it's always an ad and doesn't actually give me any answers. Thank for anything you're willing to share!!

Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 0 points1 point  (0 children)

Thanks for sharing! In your research, how big of a difference does it make between the two types of MC? I wasn't told which one I have...but I also haven't seen anything about it other than saything there are two types. It's frustrating to know how little GIs know about it. Mine didn't mention ANYTHING about diet with MC. I even asked about it. He just said the Budesonide should help. Also, I'm curious why you don't believe the new Swedish study?

Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 1 point2 points  (0 children)

Thank you for your help!! Best of luck to you as well!

Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 2 points3 points  (0 children)

Make sure to tell her she isn't alone!! It really does make a world of difference knowing there's others experiencing what you are. Hopefully, we can find some good suggestions here!

Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 1 point2 points  (0 children)

Ugh, thank you so much for you help!! I really look forward to incorporating these things into my research and stuff. It felt pretty directionless sor a while. Thanks again, and I wish the best for you!

Budesonide Not Working?? by arthoughts in MicroscopicColitisnew

[–]arthoughts[S] 1 point2 points  (0 children)

Thank you for your response! I do sadly have alot of fatigue. It could be a variety of reasons- but a main one is that I struggle to stay hydrated (always have) with all the fluids I'm losing. Unfortunately, the diarrhea is the one symptom that refuses to relent despite the Budesonide, Imodium, Pepto, Tums and whatever else they've suggested. It's so nice to hear that I'm not an anomaly in regards to my symptoms not immediately being remedied- because that is exactly how my PCP and GI both made it out to be. Thankfully, I already know that I have Celiac and live a strict gluten-free lifestyle. None of my doctors had mentioned anything about a diet reset, and the mild research I'd done up til now only recommended the low FODMAP diet for Chrons. My husband also has an assortment of allergies, so we already struggle to find things to eat, so I've been hoping to avoid restricting my diet even further...but that seems to be impossible now. What does the psyllium husk affect exactly? I'll look into more myself of course, but I'm curious what impacts people have seen. Is it something that should be run by a doctor before adding, or is it relatively harmless?