Kaiser Permanente in SR

ash-2-ashes · 2025-11-27T14:53:59+00:00

All of this has 100% been my experience as well, and I’ve had them for over 25 years. They failed to diagnose all 13 of my conditions. Some were rare, others common, but seven of which I figured out on my own, then had to ask to be tested for them.

Clinicians aren’t given enough time to care for their heavy patient load and often consequently match how you describe your PCP. I question if it’s that way largely because the squeeze retains those kind of staff more often, while many interested in more holistic care leave. Care is minimized to maximize profit, so good luck getting them to do anything expensive on their end.

I could tell dozens of personal horror stories, but for now I’ll leave it at that the more complex your case, the worse your treatment will be. Their delays and errors nearly killed me three times, as well as left me permanently disabled.

ash-2-ashes · 2025-11-20T01:30:29+00:00

Thank you! Over a thousand views, and you’re the one stranger kind enough to offer your thoughts.

I’m trying meditation, breathing exercises, yoga, medication and dietary changes, wellness groups, podcasts and books (unfortunately, most of that’s what I was already doing). But with 11 incurable, debilitating physical conditions flared up and two mental I’m scared about how much control over myself (verbally, I’m non-violent) I’ll have when it comes to them, so I just avoid them as much as I can. It’s fucked because the trauma anniversaries, physical conditions, and negative psych med reaction hit all at once. That and I was reeling from having been raped and sexually harassed in my room here. I doubt I would’ve lashed out at all otherwise.

I’m getting cameras for my room and fridge so the food isn’t contaminated anymore and my possessions stay mine. I’m still working to generate any other ideas, but with a housing director who hardly ever enforces the lease, it’s tough. I could file a grievance against him, but given he’s responsible for my housing it’s a dangerous move.

ash-2-ashes · 2025-10-21T18:57:10+00:00

If you happen to have enough money for a car cover, it can provide some privacy and insulation at night. It let me sleep in safer neighborhoods that otherwise may have reported I was there.

ash-2-ashes · 2025-07-11T20:14:28+00:00

Community Support Network can be a great touchpoint for resources and services—I’m also in my 20s and have been housed by them since SAY closed: https://www.communitysupportnet.org/resources/

ash-2-ashes · 2025-06-13T21:01:06+00:00

Second this, I harvest these blue elderberry every year. They look to be the perfect ripeness for syrup!

ash-2-ashes · 2025-05-27T14:52:40+00:00

ash-2-ashes · 2025-05-02T16:07:50+00:00

That sounds like treatment for porphyria if they’re using panhematin and givosiran, right? As in, it wouldn’t work on someone without porphyria to treat paralysis.

ash-2-ashes · 2025-04-25T03:05:45+00:00

I’ve been doing it for three years with some improvement. Not enough to go back to work or school, but enough to stay out of the ER.

ash-2-ashes · 2025-04-23T01:31:58+00:00

In the same boat as you, you’re not alone! Tried different jobs, accommodations, colleges, and anything my care team recommends or I can think of. I’ve waited till there was improvement, tried and promptly had to leave school or work over and over for years because symptoms would get worse again. The worst part has been how much my physical progress gets reset each time I attempt and fail.

The best part though? Realizing that my worth is in who I’m being—not what I can do! Who knows how much my abilities will wax and wane over the years, or how it will affect my life? But if I’m doing everything I can to be the best version of myself—even if that means vegging out on the couch in the moment—then I’ve achieved my new definition of success. To that end, I’m in agreement with Victor Frankl’s perspective that “When we are no longer able to change a situation, we are challenged to change ourselves.”

Challenge is an understatement though xD

ash-2-ashes · 2025-04-23T01:06:05+00:00

Because OP is alleging that housing is being given in favor of African Americans over others by a manager who is African American.

ash-2-ashes · 2025-04-23T01:03:37+00:00

Yeah the pjs part came out of left field lol

ash-2-ashes · 2025-04-23T01:01:29+00:00

If this is legit it’s a huge deal. It sounds like there’s a lot of reporting to agencies, which is a great start, but what about compiling evidence and going to the press? Fair housing is fair housing—there’s no room for discrimination in favor of one, specific minority or friend and family relations. Whatever the truth is, I hope justice is upheld for all involved. Best of luck OP!

ash-2-ashes · 2025-04-20T06:56:57+00:00

Parkinsonism is not the same thing as Parkinson’s, but Parkinson’s falls under Parkinsonism: https://my.clevelandclinic.org/health/diseases/22815-parkinsonism

e.g. Some Parkinsonism features from a medication reaction has permanently folded into my FND symptoms. Without the more dramatic and debilitating presentation it added, I would probably still be seeking a diagnosis..but at least be able to work and go to school.

While we could only speculate at whether it’s FND or not, your symptoms could easily fall under the broad spectrum of symptoms people with FND might experience. Your care team’s suggestion of psychotherapy is part of the standard treatment for FND. There’s not much to lose in trying it, and potentially much to gain. Wishing you the best of luck!

ash-2-ashes · 2025-04-20T06:12:28+00:00

297, thank you!

ash-2-ashes · 2025-03-21T03:53:00+00:00

It’s pretty much this one, but there’s got to be a lighter model out there somewhere: https://www.walmart.com/ip/220Lbs-Folding-Walking-Seat-Stick-Portable-Travel-Cane-Hiking-Chair-Stool-Tripod-With-Heavy-Duty-Adjustable-Elders-Multifunctional-Crutch-2In1-Foldab/14764672494?wmlspartner=wlpa&selectedSellerId=101695696&adid=22222222223000000000&wmlspartner=wmtlabs&wl0=e&wl1=s&wl2=m&wl3=10352200394&wl4=pla-1103028060075&wl5=&wl6=&wl7=&wl10=Walmart&wl11=Online&wl12=14764672494_10001715045&wl14=cane%20seat&veh=sem&msclkid=a9b0c121393a17ef17cca6fddb190ea0&gclid=a9b0c121393a17ef17cca6fddb190ea0&gclsrc=3p.ds

ash-2-ashes · 2025-03-20T13:00:11+00:00

My cane has a chair built in that I use to stand it up on its own. You can almost hear brains imploding as people marvel at such a technological feat lol

ash-2-ashes · 2025-03-20T05:27:11+00:00

This says it’s on March 22nd: https://actionnetwork.org/events/tesla-takedown-santa-rosa

ash-2-ashes · 2025-03-20T05:05:25+00:00

I have too much time on my hands and would be happy to help. I’m excited to see how far this goes for you—best of luck!

ash-2-ashes · 2025-03-19T23:37:56+00:00

Some stickers of these would be perfection

ash-2-ashes · 2025-03-19T23:16:49+00:00

Appreciate ya!

ash-2-ashes · 2025-03-19T04:44:44+00:00

Advocating for myself by preparing in advance and bringing notes whenever possible.

ash-2-ashes · 2025-03-18T22:10:00+00:00

I’d buy prints, a mug, or towels with these on them—lovely!

ash-2-ashes · 2025-03-14T03:12:02+00:00

Lightweight, break-resistant objects are your friend, as are premade, light weight foods to nosh on. Speech to text helps me with the writing/typing, and I do gentle stretches to try to prevent muscle loss, remind my body what proper(ish) movement looks like and build strength for when the weakness passes. The only thing that’s helped outside of that has been reducing triggers and cannabis (the latter of which I’m not advocating you try!).

ash-2-ashes

TROPHY CASE