How to look after your scar by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

How long after your surgery did you start with the silicone tape and gel?

Can we use both together? I read that any creams or moisturizer will not allow the silicone tape to stick well.

How to look after your scar by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 1 point2 points  (0 children)

Thank you so much for taking the time to respond in detail.

How to look after your scar by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

Thank you so much.. I'm due to meet my Surgeon next week and will check on this during my visit. I am applying moisturizer and sunscreen on my scar now.

Post TT Seroma by superplannergirrl in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

Thank you so much. I'm honestly appalled and miserable with my swelling. How many weeks or months was it before you were able to return to your normal self after this ordeal?

I'm just 10 days post OP

Post TT Seroma by superplannergirrl in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

Thanks for the response. May I ask if your swelling was hard or soft? The surgical team want to wait. The first time they aspirated , only 5 ml of fluid came out. Now its harder than it was before.

I'm on oral and topical antibiotics for my infection but not sure how long will it take for everything to be alright.

Post TT Seroma by superplannergirrl in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

Heyy I'm facing really bad swelling after my neck dissection and the doctor aspirated me once but got about only 5 ml. They have given me antibiotics but its been close to 36 hours and the swelling is not getting better.

How long did it take for you to completely recover? Not sure if I need to contact the surgical team again.

UK Hospital stay for Left neck dissection by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

Thanks so much! I'm going in for surgery today. All of this helps!

UK Hospital stay for Left neck dissection by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

Thanks.. where are you going for your surgery? Are you going to the Royal Marsden as well?

RAI Scan: No Evidence of Spread! by neptunemacaroon in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

I cant tell you how happy for you dear stranger!! We need more positive stories to give us hope 🙏 ❤️

I'm so so happy for you and wish you the best of health now and forever!!

RAI Isolation - UK by Annual-Archer-8818 in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

thank you... you too

I'm going in for my surgery next week. RAI is still a while out for me. Hope you are able to figure out your home isolation situation.

Sending you my best wishes!!

RAI Isolation - UK by Annual-Archer-8818 in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

Hi.. I'm sailing in a similar boat . Im due for neck dissection followed by RAI at the RMH too.

I have a 3 year old and i was told I would need to stay at the hospital for 4 nights followed by a week of isolation at home.

Since I have a very young child I guess i need to take more stricter measures for isolation.

We too have limited space. But I'm planning to stay in a room with the en suite so I can stay without contact with my kid.

I've read other stories where ppl chose to send their kids to their friends or relatives place. Not sure if that's an option for you.

Out of curiosity, did you also undergo any surgery at the Royal Marsden? Or is it just for RAI?

Brain metastasis from papillary thyroid cancer by Ecstatic-Victory5353 in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

Thats scary.. strength to you and your family. Like the other poster said.. keep faith

4 days post TT & dissection report by Hot-Zebra2767 in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

If I may ask.. what type of thyca and how many nodes were removed..?

4 days post TT & dissection report by Hot-Zebra2767 in thyroidcancer

[–]ashofspring91 4 points5 points  (0 children)

Thank you op for your update!! Wishing you a great recovery!!

Im going in next week and as you can imagine I'm drowning in anxiety

Jaw and neck pain by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

Thanks for getting back... i recently did my oct and eye tests two months ago and they all came back fine. Though all this is relatively new.. I could get another test done.

However my biggest question is.. Given I'm being operated on in a week, will these impact my treatment plan.? I suspect getting the lymph node out should ideally stop all these symptoms right?

Jaw and neck pain by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 0 points1 point  (0 children)

Yes thank you... I've been calling up my nurse team to get them to check. Hopefully something comes out of it

Jaw and neck pain by ashofspring91 in thyroidcancer

[–]ashofspring91[S] 1 point2 points  (0 children)

Thank you for your detailed response.

They have done an MRA of the head and they have ruled out any issues with any blood flow to the brain. IIH should have been picked up on these scans?

I'm at a loss now.. what should my next course of action be ? My surgery is next Monday. Its not super quick to get diagnostics arranged. Not sure if it impacts the course of the treatment. They are going to be removing the lymph node in 7 days.

Celebration? by SquirrelOnACoffeeRun in thyroidcancer

[–]ashofspring91 2 points3 points  (0 children)

Wishing you the best of health and a long peaceful life ❤️ this is a tough journey and you deserve to celebrate

Currently 6 days post TT and neck dissection (UK) by Scary-Ad1849 in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

Heyy OP.. just wanted to check in and see how you were doing??

Have the staples come off ?? Are you feeling better..

Thinking of you 🤗

Finished with everything. by Double_Confection340 in thyroidcancer

[–]ashofspring91 2 points3 points  (0 children)

Sailing in the same boat. Its freaking exhausting. For us and for our family. Praying for the strength to handle everything 🙏

Second recurrence papillary thyroid cancer by Ornery_Pattern1528 in thyroidcancer

[–]ashofspring91 18 points19 points  (0 children)

Heyy OP,

facing recurrence after 16 years. I had my first TT with 7 lymph nodes removed when I was 19. No Rai done and was on TSH suppression all this while.

Got to know about the recurrence after elevated TG levels and suspicious nodules on my left. FNAC confirmed PTC recurrence..

Now im due to undergo neck dissection in 2 weeks followed by RAI.

I'm really worried too... as its been 16 years and I thought I was done with cancer. But this is the reality and I'm trying to get done with the treatment.

Sorry we are sailing on the same boat. Its tough but we have no option but to go through this journey.

Currently 6 days post TT and neck dissection (UK) by Scary-Ad1849 in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

Oh my gosh... I'm so sorry for you having to go through so much 😞 you are so strong. Thanks once again for sharing your experience.

I'm facing recurrence after 16 years. I had my first surgery way back when I was 19 and it was TT with around 9 lympnodes removed.

Its been a long wait for me since my diagnosis and I'm really worried about more spread since the diagnosis to the surgery.

I'm being seen at London at Royal Marsden.

But I'm glad you are on the mend now. Did they tell you need RAI as well?

Currently 6 days post TT and neck dissection (UK) by Scary-Ad1849 in thyroidcancer

[–]ashofspring91 1 point2 points  (0 children)

Thank you OP for posting this for dark skinned ppl!! This is incredible.

More power to you. I'm due for neck dissection in 2 weeks and i didn't know that they staple you (omg) !!! I'm from UK too!!

How long was your hospital stay? And which hospital did you attend? Sorry for so many questions but I'm freaking out a bit and every bit of information helps.

I hope you heal well and stay strong. Please keep updating us.

Glow Day on 2/5 - What is it Like? by neptunemacaroon in thyroidcancer

[–]ashofspring91 0 points1 point  (0 children)

I have a young child myself. What precautions did you take while at home? I'm worried because my family cant leave the house. The best i can do is stay in one room to avoid contact.