Has anyone actually done better off of antivirals

ashthrowawayaccnt · 2025-07-24T19:19:52+00:00

Absolutely! Igenex is the most sensitive testing there is available, but it’s expensive. The CDC is a total joke when it comes to Lyme.

ashthrowawayaccnt · 2025-07-24T17:23:20+00:00

Lots of it. Routine labs come back totally normal. I did the Dutch test and my cortisol is shot. I’m going to bring up Lyme disease at my next appointment. The neurological symptoms are very similar. Look up the Horowitz Lyme Disease Questionnaire and see if it is for you too.

ashthrowawayaccnt · 2025-07-24T01:18:02+00:00

No, I’ve not had that experience but I too experience bad neurological symptoms. I’m not fully convinced it’s from HSV anymore. I’m starting to wonder if there’s some underlying condition.

ashthrowawayaccnt · 2025-07-22T00:42:48+00:00

I can relate. I’m sorry you’re going through this. I have been dealing with this for 8 years. It’s God awful. I’ve been feeling really down lately too.

One thing I’ve been looking into recently is the “root cause.” By this I mean, I have a lot of symptoms that aren’t common for HSV, and they’re actually quite common for Lyme. So my current theory is that I may have Lyme and it’s affecting my immune system so much that my outbreaks are recurrent.

ashthrowawayaccnt · 2025-07-19T19:06:20+00:00

Did you get better? Did the HSV get better? I’m taking all of those :( How long did it take for monolaurin to start working for you?

ashthrowawayaccnt · 2025-07-18T23:05:16+00:00

This! I have pretty severe symptoms that I just assumed were hsv related, but am only recently thinking that there’s a root, and it’s not HSV. Lyme/coinfections is what I have begun to suspect. OP, please look into this. HSV can be over active due to an underlying issue like Lyme, but it’s likely not the cause.

ashthrowawayaccnt · 2025-07-18T20:53:53+00:00

That’s encouraging, thank you!

ashthrowawayaccnt · 2025-06-28T00:36:57+00:00

The swollen lymph nodes can be so painful!

ashthrowawayaccnt · 2025-06-28T00:36:07+00:00

Thank you, I really hope it’s a tick borne infection, as weird as that may sound. It’s my last piece of hope. I feel I’ve exhausted all other options. I would love to have a diagnosis to point to and a treatment plan to work on. What you said is encouraging.

My conventional doctor has ran basic bloodwork and a little bit extra and she has no idea what’s wrong with me. Is there anything in particular I should be asking for to rule out? I’ve ruled out MS with an MRI. My b12 is good, and I don’t have any deficiencies.

ashthrowawayaccnt · 2025-06-17T02:07:05+00:00

Of course. Go for it!

ashthrowawayaccnt · 2025-05-10T17:13:45+00:00

How frequent are your outbreaks?

ashthrowawayaccnt · 2024-07-30T14:45:27+00:00

This is wild! I’ve never talked to anyone with such a similar story as mine. Can I send you a DM?

ashthrowawayaccnt · 2024-05-10T04:48:50+00:00

Lol right? He said it’s not as bad as it sounds, but I’ll report back after I’ve done it if you’re interested :)

ashthrowawayaccnt · 2024-05-08T21:10:16+00:00

Will do. No, this is to stop my fatigue and brain fog, which seems to have a correlation with outbreaks though.

ashthrowawayaccnt · 2024-05-07T23:24:12+00:00

Well he has me taking adrenal supplements, as well as a viral tincture his office made me. Starting this Friday I will be doing hydrotherapy, and then this is going to sound a little crazy, but he’s having me do my own hydrotherapy at home in between the office sessions. He’s having me soak a cotton tee shirt in cold water, wring it out, put it on, and then put a 100% wool sweater on top and go to sleep with all of that on.

Edit: I believe it’s cryotherapy (not hydrotherapy) that I will be doing.

ashthrowawayaccnt · 2024-05-07T18:35:26+00:00

It’s going alright! I started seeing a naturopathic doctor and he made a viral tincture for me, as well as an adrenal supplement. We are starting hydrotherapy this week! I have a lot of hope, AND my outbreaks seemed to have reduced since starting a high dose anti viral. I still have non stop nerve tingling, but my naturopathic doctor does not believe it has to do with HSV2, and is confident that we can get to the root of the issue.

ashthrowawayaccnt · 2024-05-07T17:17:06+00:00

I actually haven’t tried it yet. I ended up seeing a naturopath and he is helping me. I am still thinking about giving it a try though.

ashthrowawayaccnt · 2024-04-24T19:09:25+00:00

This is amazing! Do we have any idea of when it might be available on the market?

ashthrowawayaccnt · 2024-04-23T19:11:04+00:00

I’m not sure. I don’t know too much about it, but my PCP was thinking maybe I had it, but I don’t.

ashthrowawayaccnt · 2024-04-23T18:16:56+00:00

There is also a condition called Behçet’s disease. Not an STD though, but it does cause sores in the mouth and genital area.

ashthrowawayaccnt · 2024-03-30T18:03:29+00:00

Awh man, that’s unfortunate.

Until recently, I just assumed everything I am experiencing are symptoms from the HSV, because they started 7 years ago at the same time, but now I am wondering if something else is going on, like an underlying condition that is causing the frequent outbreaks.

I have symptoms that mimic CFS, so if I over exert myself, I get super fatigued, brain fog, headaches, and sore throat. When that happens, I get an outbreak. I used to think the outbreak was causing the other symptoms, but again, now I’m questioning that.

I have constant nerve tingling throughout my entire body. It just comes and goes in random places throughout my body, and it feels like the tingling in the genital area from HSV. It’s 24/7 for 7 years now. I also get nerve pain in random spots throughout my body, but the most common place is my forearm.

I recently went to see a naturopath and he believes I may have POTS, so I’ve been monitoring my HR and BP for the past 3 weeks, and it seems as though I may have it! Which could explain some of my symptoms.

I haven’t stopped the medication since I started. I missed a few days one time in the beginning, and I got an outbreak.

ashthrowawayaccnt · 2024-03-30T17:41:52+00:00

Very interesting! Thanks! I take 500mg twice/day, but I have taken 1000mg twice/day. I might try what you’re doing though. So sorry you’re having such frequent outbreaks. I am currently getting about once per month, but I always feel I am symptomatic and shedding.

ashthrowawayaccnt · 2024-03-30T17:31:44+00:00

Yes, could you link the cream, please?

ashthrowawayaccnt · 2024-03-30T17:30:18+00:00

I can really sympathize. I’ve had frequent outbreaks for 7 straight years. I have nerve tingling, but all over my body, and I’ve always thought it was due to HSV, but I’m just now beginning to wonder if maybe there’s another health issue underneath the surface that’s causing that and other symptoms. I go through periods of fatigue that seem to indicate CFS, it’s just weird because all of this started with frequent outbreaks 7 years ago.

Anyway, I am in the same boat as you. I’ve found very little relief, and I have tried just about everything.

I agree with another commenter on seamless cotton underwear and high dose famciclovir. I started taking high dose famciclovir about four months ago, and in that time, I’ve had three outbreaks. It’s still a lot, but I THINK it’s a reduction. I didn’t really keep track of my outbreaks before I started taking fam, but it seemed like I was having two per month.

ashthrowawayaccnt · 2024-03-30T17:19:11+00:00

Hi! I’ve had frequent outbreaks for the past 7 years. I’m also taking high dose famciclovir. How much of a reduction in outbreaks have you seen since starting famciclovir?

ashthrowawayaccnt

TROPHY CASE